Marsha what about the tratments that turned out to not help HD . Aren't you glad you have a hands off , policy , for yourself . A person could have lost money . My best . dbby db - Huntington's Disease Support Center
You have done well to get that done . dbby db - Huntington's Disease Support Center
Barb , I hope you and your family are doing well . I thought I might tell you about my Granddad ; he was a big smoker , one smoke right after the other . He had to give up smoking in his 70's . He whittled himself a wooden cigarette , painted white with a red tip . He smoked that cigarette for a year . He was sucessful . I was so surprised that he was able to quit . He had smoked since he was a kby db - Huntington's Disease Support Center
I am not sure what a person should do . But as I sit here , I was thinking what if you asked a family member or friend to do most of the forms . Or telling what ever organization your dealing with , you have a disability and need them to help fill out the form . I know that would help a small amount . But , what about when the pHD gets overwhelmed with thinking about the questions . I know mom woby db - Huntington's Disease Support Center
Thats great jl . But as I was reading your post , i thought how hard it must be for pHD that have lost their motivation . wouldn't it be difficult for some to do what you needed to do . I could see many people needing help just to apply for what you were able to do . so I am really happy for you . But , a little sad for those who could not have done that . I hope I explained myself well enough .by db - Huntington's Disease Support Center
Liz Welcome to the forum . Liz visiting people in nursing homes at the best of times is hard . Visting your mom would be extra hard , you love her , feel compassion for her and other than your support nothing much else you can do . That must at times makes you feel sad . If it was me I would put off testing for just a little while ; because a person needs to feel strong in spirit when testing .by db - Huntington's Disease Support Center
Welcome to the forum . If I was me , I would keep as healthy as possible . But , what " Will " , said ; "that he doesn't think that much about HD other than when he is posting , here on the forum ." Is a good idea . Because your not ignoring HD , but , your allowing yourself to live life . If at somepoint your health changes , then deal with that change , but , keep on livingby db - Huntington's Disease Support Center
Have a Happy " 48th " Anniversary on Friday Feb. 5th . I hope you have a great day . All my best . dbby db - Huntington's Disease Support Center
That is good news . jl you could pretend it is your own private limousine . dbby db - Huntington's Disease Support Center
I personally feel that pm's have a real place on this forum . And I thank you for suppying this feature , it is a kindness on both of yours part . All my best . dbby db - Huntington's Disease Support Center
This might be a strange question , but , how much would that type of drug be ; big , big ,big , bucks or moderately big bucks ?by db - Huntington's Disease Support Center
Many in my family line with HD lived a very long life . Well into their 70's , 80's , 90's . My Mom is 81 . dbby db - Huntington's Disease Support Center
Thank you for that info . And of course I retried the link and it worked this time . dbby db - Huntington's Disease Support Center
Dusty I am so sorry your having a real trying time period . Wish you felt better . dbby db - Huntington's Disease Support Center
May I ask where are you from ? I am from nova Scotia . My Mom has HD . Like many on this sight HD was all around me , but , I didn't realize that . My Mom has a very low CAG 39? . She actually has less symptoms than a couple of years back . My Dad is the main caregiver and he is very pleased that Mom is a smidgen better . Especially emotionally better ; although she still has problems . May I askby db - Huntington's Disease Support Center
maryk Welcome to the forum . dbby db - Huntington's Disease Support Center
I am just getting an error page . dbby db - Huntington's Disease Support Center
I too enjoyed reading the articles . thank you . dbby db - Huntington's Disease Support Center
I try to quiet my mind . I stop , I look at beautiful scenery , or I have a magazine handy to lookk at ; I drink a tea ; if I can I lay down for 15 minutes ; I also imagine a forest or lake or beaches . I am trying to quite my mind . I have a husband I can talk to , and I make it a matter of prayer . All of that helps , but , their are times when my mind will not settle , then , I have a hard tiby db - Huntington's Disease Support Center
Brett knowing where people are from , just seems to help me . Thanks . Getting use to any hardship ( especially deteriorating health ) takes time . When it is your brain's health , I think that it is harder still . But simplifying your life the best you can , helps . Starting to use calenders , and to-do lists . Developing a routine for your week . Because routines get put in to different partby db - Huntington's Disease Support Center
Oh I feel really depressed , Eric's post was what I wanted to say . Oh woe is me . But welcome back Rowan . I have a different hair colour , more grey ......dbby db - Huntington's Disease Support Center
Done . But I did find it confusing at times . They asked about my health , which is the pitts . But as far as I know not from HD . Although I could have symptoms I am not aware of . Anyways I hope my answers do not throw them off . but I can not be the only one with my circumstances . dbby db - Huntington's Disease Support Center
Welcome to the forum . I really enjoyed Marsha's post , didn't you ? May I ask what country you live in ? dbby db - Huntington's Disease Support Center
such a good article . Thanks to all the hard work of those who try to find out , "why and how to help" . dbby db - Huntington's Disease Support Center
Dusty I see in another thread you answered that question . sorry . dbby db - Huntington's Disease Support Center
Dusty I can not remember if you all ready talked about this , but , Can you go to aquatics classes for the general public ? Even if the classes were not as specific as the classes you were able to once attend , wouldn't a general class still be helpful ? Do you go to the pool at all ? I know you enjoy the water . My best . dbby db - Huntington's Disease Support Center
. I thought this might be encouraging for many . I certainly realise this does not always happen , yet it does happen . dbby db - Huntington's Disease Support Center
I know it seems like it is one of the items that helps Mom . dbby db - Huntington's Disease Support Center
That makes me happy . dbby db - Huntington's Disease Support Center
Welcome to the forum . dbby db - Huntington's Disease Support Center