Dear Paula : Thank You for that info. I would be verrrrry scared of that test BLOCK DESIGN I have never been able to do Rubik cubes .by db - Huntington's Disease Support Center
Dear Fred : What you say I believe . I just hope that there would be times when even at the worst of the worst you could have good thoughts just some times in a person with HD , mind . I also hope most pPHD do not get as bad as it can get . All my best . dbby db - Huntington's Disease Support Center
Dear Everybody : When I say entertain ones self I mean if you are unable to vocalize and communicate to others can you still say things to your self like ; I hope they have applesauce for supper tonight ; that is a blue jay out side my window ; I need to fill my time I am going to try to remember the words to " Mocking Bird " ; I am going to pray to GOD to give me strength to cope withby db - Huntington's Disease Support Center
Dear JL; or any one : JL you mentioned that a PHD their thoughts are still there it just becomes increasingly difficult for that one to access those thoughts to express them . After I read that comment I remembered all my reading . "Obviously I was not accessing a lot last night ; not to remember something so fundamental , but alas it is so ." Any hoo my ? is can the PHD rely on the knoby db - Huntington's Disease Support Center
On the thread entitled 'neuropsychological testing ' : Paula on Feb. 18 12:31 p.m. mentioned she had been in a serious accident . Which made me wonder about traumas . Does traumas have an effect on HD ? For ex. An accident ; anasteshia ;loss of a love one . Does traumas make any difference does it effect the body enough to hurry the disease a long ? What do all of you think ? All my best . dbby db - Huntington's Disease Support Center
Dear Marsha : What are the sub scales ? What does that mean ? And why is IQ preserved for a long time ? I have done a lot of reading I just do not remember any of that info. Thanks so much . dbby db - Huntington's Disease Support Center
Dear Kats : A friend of mine went to a psychiatrist ; and he made this statement about antidepressants . They will not help if you don't need them . If you notice no difference after taking them awhile in how you feel, you do not have a chemical imbalance . I am not saying everyone should be on an antidepressant if they are depressed . On the other hand if your depression has gone on a while orby db - Huntington's Disease Support Center
Dear JL : I don't have the foggiest idea ! But I am telling you this JL my mom and dad share a cat with their neighbor across the street from them and I think it is a big blessing for them . The cat gets talked to , fussed over ,fed , fed,fed the cat distracts mom . I bless that little cat for coming in to their lives . All my best . dbby db - Huntington's Disease Support Center
Dear Kats : Living with infirmities can be a challenge . Living with the possibility of infirmities is a challenge . We all face many challenges from many different directions ; the least of all is facing HD in our lives . I did read this regarding hopelessness and fear , "The Encyclopedia Americana states : "The operation of fear on the mind is often ,if uncorrected ,attended with theby db - Huntington's Disease Support Center
I was wondering if any of you find it easier not easy ,but easier to handle the bigger symptoms of HD than the smaller things . I seem to have the inner fortitude for the big stuff most of the time but little things like watching my moms beautiful hand writing become messy brakes my heart . Just wondering . dbby db - Huntington's Disease Support Center
Dear JL and Terri : My mom had all of her testing done before they sent the DNA test off . It seemed in thinking back about that time period that it was standard procedure for that hospital unit . All my best . dbby db - Huntington's Disease Support Center
Dear Anita : Have you tried contacting the HD society of Canada to see if they can point you in the direction of a doctor that can help you more than the other doctors have . All my best . dbby db - Huntington's Disease Support Center
Dear Linda : What a difficult time you have had . You are to be commended for still being a good daughter and helping your mom . So much of what others like your self have gone through resonates with memories of each one of us . I think the worry of will that be me someday , is one people at risk of HD think about a lot . Will I be the one causing the heart aches ; not the one putting up with thby db - Huntington's Disease Support Center
Dear Didee ;StevieRAY ;Alice : I do not have HD . Well I should rephrase I am at risk of HD . What I was trying to say is HD is an exertion of normal human weakness that all of us have . I had the thought in my head for a week or two . Some how it gave me insight into HD . Maybe the thought will not help someone else . I think we all should trade tid bits of knowledge .( Oh by the way any Canadiby db - Huntington's Disease Support Center
Hi : I read a paragraph lately that stated "mental aberrations are but extreme forms of weaknesses we all have " . For example we all can be unreasonable at times , we can all be inconsiderate of peoples feelings ,we can be obsessive in our thoughts and deeds etc. People with HD weaknesses are magnified because they do not have the ability to self talk . They can not reason with themsby db - Huntington's Disease Support Center
Dear Eric : That was quite an informative post you gave . Is that your last word on the subject ? LOL as you would say . Smile . dbby db - Huntington's Disease Support Center
Dear JL and Fred : You 2 are so entertaining . All my best . dbby db - Huntington's Disease Support Center
Dear Eric and JL : Thanks to both of you for answering my posts . I always enjoy listening to others thoughts . All my best . dbby db - Huntington's Disease Support Center
Dear JL : On a personal note I would get tested but my ducks are not all in a row . Once they are I think I will ,maybe; maybe not ; maybe ; maybe not .If all I had to think about was just me I would not worry about the test . It is my family that It might help . I know you didn't ask I thought I would share . I am glad to know you did not regret taking the test . Have you ever heard of anyone wby db - Huntington's Disease Support Center
Dear jl : who are you talking to me ? If so no I have not . Is there a reason your asking ? all my best . dbby db - Huntington's Disease Support Center
Dear Eric : Like I said in my previous post on this topic I think a person has to be careful with alternative medicine YET much of main stream meds. came from herbal antidotes . The world over scientists are investigating tonics and or their individual ingredients . For example Indian gooseberries ( Amalaki ) this is used in a very old tonic and now researchers are looking into it and finding outby db - Huntington's Disease Support Center
Dear Stacy : You don't like blueberries . What could you possible not like about these sweet delicious little round blue gems . No blueberry parfaits , no blueberry cheesecake ,no blueberry grunt ,no blueberry jam . Please say it isn't so . From the blueberry capital of Canada Nova Scotia , all my best . dbby db - Huntington's Disease Support Center
Dear Terrie : You certainly have a lot going on in your life . Does your DX. think there is a connection with your health problems and your daughters ? Also I personally am very careful with alternative therapies , many are good many are not . I know it has been said if your budget is tight spend your money on the best nutritional food you can afford , then work out what you can spend on other thby db - Huntington's Disease Support Center
I think it was a miss print on that Fox web site for House . I saw the show and I think they ended up saying no to HD and I can not remember anything being said about her testing positive . I love that show ;but I would fire any DX. who treated me like he portrays treating patients . Great show for entertainment purposes . dbby db - Huntington's Disease Support Center
Dear Barb : What you said in your post makes sense to me . Following the logic if creatine helps muscles ; it could very well help the bowel muscles .Thinking about the posts from others I can see where it just might be another HD problem lazy bowel muscles causing constipation . Always such good insight from so many . All my best . dbby db - Huntington's Disease Support Center
Dear Stevei : you are witted . All my best . dbby db - Huntington's Disease Support Center
Dear : Howard you certainly have a challenge in your life . I have a 2 sons in their 20,s . Those moms and dads like yourself that are still caregivers to adult children deserve a great deal of respect for being such good examples of kindness . All my best . dbby db - Huntington's Disease Support Center
Dear Fred ; What I want to know is as long as it is creatine does it really matter about whether it is ultra pure or just regular creatine . Thank You . dbby db - Huntington's Disease Support Center
Hello Everybody : I looked up NEOtine put out by Avicena Group on their online store . Their product is an ultra _pure ,Ultra refined creatine monohydrate . A package of 30 costs $29.99 American . It is 1 months supply . How would this be any better than the creatine one buys else where ? Thanks in advance . dbby db - Huntington's Disease Support Center
Dear Dave : I would say your doing an excellent job with what you are giving her for her constipation . All the other suggestions are good ideas also . I am going to mention there was a study regarding nursing homes and regularity ;it found prune juice was as effective as meds. when given on a regular basis . In the homes that I go in those clients who are bedridden or are on a lot of meds . etcby db - Huntington's Disease Support Center