Tonight?!?! Down here in Texas we call 3:55AM time to get up and feed the horses. Thanks for alerting me. I've reported the problem to the ISP. Steve Irelandby stevei - Huntington's Disease Support Center
I'll confess that I'm in a grumpy mood today - so take the following for what it's worth. There are two things that that the HD community lacks relative to other effective organizations. Leadership and direction. It has nothing to do with Iraq, the government, or anything else. I'm tired of excuses. The closest thing we have to leadership is embodied in the High Q foundation. But it's noby stevei - Huntington's Disease Support Center
Over on the left side of this page you can click on "Online Support". That page lists all of the online chats that I know about. Have fun! Steve Irelandby stevei - Huntington's Disease Support Center
Fred, I was only praying that you were mistaken. I would never presume you to be anything but a man of integrity. When I get a round tuit I'll take a look at the mechanism the software package uses to flag new messages and see if it is anything that I can correct. Thanks, Steveby stevei - Huntington's Disease Support Center
I never bothered trying to clear all of the flags, but I finally took a few minutes to learn how. It is possible to clear all of the flags with one click. If you go to the Message List and scroll down to the bottom you will find a hyperlink named "Mark All Messages Read". Click on this and all of your messages will be flagged as having been read...you don't need to visit each messaby stevei - Huntington's Disease Support Center
Sort of like what I was hoping when I saw your thread title?by stevei - Huntington's Disease Support Center
Nice site Craig, I've added it to the list of HDSA chapters and affiliates under HD Organization Sites. Good luck with your fund raising efforts! Steve Irelandby stevei - Huntington's Disease Support Center
Fred noted that there is an odd behavior about the "new post" flag on the list of threads page. You must visit the last page on a multiple page thread in order to clear the "new post" flag. What I normally do is rather than clicking on the name of the thread, I instead click on the last page number listed in the "Go to page 1,2" that is displayed to the right ofby stevei - Huntington's Disease Support Center
It's working for me from the office here using Internet Explorer. It's just a simple link. What browser are you using and what happens when you click on it? Steve Irelandby stevei - Huntington's Disease Support Center
Well, first you have to tell us what the URL to your site is so that we can all gush over it. If it has anything about HD I'll add it to our list of Family links.by stevei - Huntington's Disease Support Center
Congratulatins Ballyhoo. I've added the site to our list of HD Organization sites. And I appreciate the extra effort you went to to add an English version of the site. Sweet! Steveby stevei - Huntington's Disease Support Center
And you may be right Fred. It DOES often seem to me like Marsha left me with HDAC when she adopted the HDLighthouse. But the reality is quite different. 95% of the articles that we publish on the HDLighthouse are also available on HDAC. (You can find them without the graphics in the HDAC Library). I just don't advertise that fact because at this time our focus is on making the research artby stevei - Huntington's Disease Support Center
Great comments. There seems to be a gender bias though, so maybe the solution is that everyone register, telling me what their gender is. Then I'll route the women through 2 or maybe 3 sites and hundreds of pages to get all of the information they want and the men will find everything on one monsterously large page. <g> I AM teasing, but it's a interesting thought. Steveby stevei - Huntington's Disease Support Center
Thanks for the feedback. And Barb I tend to agree with you. Although I first thought it was a great idea, I to hesitate to correct someone else's writings except to make obvious spelling corrections or add "white space" in order to make it easier to read. However, on Wikipedia those academics are aggressive in correcting each other's articles. So maybe it works there bit doesn't wby stevei - Huntington's Disease Support Center
*Crumb Trails* I'm going to rework the HDAC home page a little. I was wondering if anyone used the "crumb trail" at the top of the page for navigation. For those of you who don't know what a crumb trail is, it's a list of the pages that one has visited. The visitor can click on one of the listed pages and go directly back to that previously visited page. I personally don't use the cby stevei - Huntington's Disease Support Center
Fred. You know it does. This is a perfect example of what happens when the social support system breaks down. Caregivers can step right in with the best of intentions and with all of the love in the world, but when the system starts dumping on the caregiver, this can easily lead to frustration, then depression and then all of the other crap just builds up. It sounds like this guy really feelsby stevei - Huntington's Disease Support Center
Sorry folks... Cindy is another alias for kstevenson. I'm closing the thread, but I'm not deleting it because even though the request was fraudulent, the information provided in response is good. (except for mine of course that was intended to be totally without value).by stevei - Huntington's Disease Support Center
I don't understand what you mean by "...men don't have to have hd to exhibit this type behavior...", but I certainly understand that it's tough to distinquish between a woman with HD and women in general. That's why it took me so long to to be convinced that my wife had HD. uh...Joeby stevei - Huntington's Disease Support Center
It certainly doesn't sound like it's going to be HD unless he is adopted or one of his parents was a secret lover who had HD. But I wouldn't start accusing anyone until he's had the genetic test for HD. <g> Maybe he's reacting badly to one of the supplements. Or it could be just old age. Most of those "symptoms" sound like those I often have.by stevei - Huntington's Disease Support Center
Nancy Wexler (name dropper I am) asked us to solicit feedback from the HD community regarding experiences with Tetrabenazine. There apparently is some push-back from the FDA regarding Tetrabenazine and she needs help in getting some momentum going for U.S. approval for FDA. Your thoughts and opinions are appreciated. Steve Irelandby stevei - Huntington's Disease Support Center
I have a couple of observations that might be of interest to you. 1) If your pastor says that you should get a separation then you probably should do so. Caregivers are usually the last to see what is going on. They will tolerate an amazing amount of abuse, often to the point where their children also become victims in one way or another. 2) After you've separarated, and if you still wantby stevei - Huntington's Disease Support Center
But you don't want to spoil it for others do you?!?!by stevei - Huntington's Disease Support Center
1.What is the possibility that my grandfather (my > dad's dad had the hd gene) he was 70 when he died > from cancer. About the same chances as my winning the Lotto. > > 2.If my dad's dad did have the hd gene then surely > my dad who is 44 or my dad's brother who is 49 or > one of my dad's 2 sisters who are 45 and 47 would > have showin symptoms or been diagnosed wby stevei - Huntington's Disease Support Center
Visit and review your symptoms with them. I agree that you have some problems, most likely myoclonus, but certainly not HD. The experts on myoclonus are over at WeMove. This thread is now closed folks. Thanks for visiting. We are moving on. Steveby stevei - Huntington's Disease Support Center
Visit and review your symptoms with them. I agree that you have some problems, most likely myoclonus, but certainly not HD. The experts on myoclonus are over at WeMove. Steveby stevei - Huntington's Disease Support Center
Everyone has provided their opinion. It's highly improbable that you have HD, but if you are sincere about your symptoms and not just yanking everyone's chain, then you should obviously see a doctor. The general consensus is that it is absurd to continue this thread. Steve Irelandby stevei - Huntington's Disease Support Center
Amy, I could not resist this opportunity to advertise. <g> Marsha is scheduled to give a presentation on caregiving for HD families at the upcoming conference. She gave it at the last convention and she's been invited back to do it again. If you can make it, don't miss it. Steve Irelandby stevei - Huntington's Disease Support Center
Thanks for the kind words. It's always nice to know that the artists appreciate the canvas. :-) Steve Ireland Web Canvas Makerby stevei - Huntington's Disease Support Center
Barb, there is ALWAYS someone that likes to tell someone else how to take care of their children and how to raise them. Of course, they are usually those that have not successfully raised children of their own. And I didn't qualify them as being "in their right mind"...if you get my drift. If I was in Anita's situation I'd be doing everything she's doing. I wasn't being critical..by stevei - Huntington's Disease Support Center
Anita, Every site I read says don't do it. But, of course, none are considering the issue of providing a creatine supplement to a child that has tested postive for JHD. Of course, no one would suggest that anyone undergo chemotherapy for the hell of it either. It's a risk management decision. I'm also sure that some out-of-touch individual might even consider it child abuse. So be carefulby stevei - Huntington's Disease Support Center