I have hereditary hemochromatosis (too much iron) and was told that there are no medications or supplements to lower iron levels in the organs.by TenilleM1201 - Huntington's Disease Support Center
I also take Melatonin. In the US it is an over the counter herbal supplement, inexpensive and in varying strengths. Trader Joe's sells a chewable tablet that is nice for people with swallowing issues.by TenilleM1201 - Huntington's Disease Support Center
Yes still waiting on blood results. After reading the forum I am really wishing I had found this before getting the blood test. Long term care insurance, etc. No genetic counseling, etc., was made available.by TenilleM1201 - Huntington's Disease Support Center
I have also been told I have Perivascular Spaces but a normal MRI. I was told that many people have them and it isn't anything to be concerned about. They were originally read as "white spots" and the neurologist said they were Perivascular Spaces. The spots were not in the pattern for MS so they have been ignored.by TenilleM1201 - Huntington's Disease Support Center
Out of curiousity, what do you all think of the theory that neurologists do not mention HD because of the "no cure" and psychological impact with a diagnosis? I went to a neuropsyc and she said that she thinks that is why neurologists don't mention or seriously consider HD.by TenilleM1201 - Huntington's Disease Support Center
My neuro is talking about adding a spinal tap to my next group of tests. I have had very painful experiences with them in the past so I'm not looking forward to them. I think making sure your doctor does these on a regular basis is very important. Also they may or may not tell you that you will get a headache afterwards. I have every time and caffiene helps immensley. A nurse said to sip on dietby TenilleM1201 - Huntington's Disease Support Center
The heat makes my symptoms worse and also incredibly tired. (Yes, plus the added affects of the medication on sunburns)by TenilleM1201 - Huntington's Disease Support Center
I have a couple questions for those of you with more knowledge. 1.) How long does it take to get test results? 2.) Does anyone else have issues with drs saying they are making up symptoms? 3.) Has anyone had any speech issues such as an accent? I developed an accent in January around the time my symptoms worsened that has been called anything from Swedish to Welsh. No one can figure out whyby TenilleM1201 - Huntington's Disease Support Center
Hi! I'm currently waiting for the HD test results (it's been two weeks). My family is very complicated and it is unknown if I have family history of the disease. I became symptomatic last year (at age 30) but since January of this year (2013) I have been getting progressively worse. Today is a "good" day...I can type. After having speech, memory, and cognitive problems, I also developeby TenilleM1201 - Huntington's Disease Support Center