Hi Mike, I have been symptomatic for 1 year now and im on really good meds which help make my cognitive symptoms bearable. I have just started getting quite bad movement and it is noticeable now so im finding it quite hard knowing HD is starting to take over me! but im doing ok! How are you ?xby melissa1991 - Huntington's Disease Support Center
Thanks everyone! Luckily I have a really good HD doc and she gave me new meds which seem to have helped quite a lot. xby melissa1991 - Huntington's Disease Support Center
Hi everyone, I am 22 years old and im symptomatic early stage 1. I have a CAG of 51 which is why ive got it so young. My dad passed away last year from HD and had a CAG of 45...his symptoms started at 30. Would be great to talk to some other people who are symptomatic too xby melissa1991 - Huntington's Disease Support Center
Thanks everyone xby melissa1991 - Huntington's Disease Support Center
Hi Carla, thank you! How old was Tim when he got HD? xxby melissa1991 - Huntington's Disease Support Center
Hello, sorry I haven't been on here in a while!! Yes I got my result and I tested positive with a CAG of 51...which explains why I already have symptoms at 22 How are you doing? xxby melissa1991 - Huntington's Disease Support Center
Hi Steph I am 22 and i started the testing process about 6 months ago. The reason i decided to go ahead with the testing is because i have been showing some symptoms and decided that i need to find out rather than always wondering if it is or isnt hd. I am having the blood test done on the 5th march and then i get the results on the 3rd april. They have already told me that they think i mby melissa1991 - Huntington's Disease Support Center
Hi everyone. I am 22 years old and i had a neurological exam done this week at my local hospital. They noticed twitching in my arms/face/body and that i have un-responsive eyes. They said i MIGHT be symptomatic. They have said i have to wait until 5th march to have the blood test and then get results on the 2nd april. Then if i am positive i will be sent to london to do more tests to see if iby melissa1991 - Huntington's Disease Support Center
Hi...just an update from me. I had the neurological exam and they noticed twitching and that i have un-responsive eyes...and they said i MIGHT be symptomatic. I have to wait until 5th march to have the blood test and then get results on the 2nd april. Then if i am positive i will be sent to london to do more tests to see if i am symptomatic...not looking good but im ok...just NEED to know.by melissa1991 - Huntington's Disease Support Center
Hi Mike, well i went to my first appointment with the genetic councellor and i told her all the symptoms ive been having (which im not sure if they are early signs of HD or if its just from stress) so anyway i am having a neurological examination done next friday to see if i have any symptoms. (They said its my choice if i want to know...which i will!) and then i will have the blood test in feby melissa1991 - Huntington's Disease Support Center
I am doing a 5km run tomorrow to raise money for the HDA...Please sponsor me! im so close to reaching my target! www.justgiving.com/Melissa-Shanahanby melissa1991 - Huntington's Disease Support Center
Thanks everyoneby melissa1991 - Huntington's Disease Support Center
Hi everyone, i had my first appointment yesterday with the genetic councilor. We spoke about my family history, the affects of HD and she asked lots of questions. Then i told her all the symptoms that i have been having and she said that they could be HD. So she said that my next appointment will be with her and a consultant who will do diagnostic tests on me to see if i have any HD symptoms. Theby melissa1991 - Huntington's Disease Support Center
Hi, i also have my first appointment to be tested on tuesday so im quite nervous!!! I am also convinced that i will test positive for various reasons like yours. Good luck with the testing process.by melissa1991 - Huntington's Disease Support Center
Hi everyone, next sunday im doing a 5km walk/run to raise money for The Huntington's Disease association. Please sponsor me and help me reach my target Thank you! www.justgiving.com/melissa-shanahanby melissa1991 - Huntington's Disease Support Center
Thank you to everyone who has sponsored me so far!!by melissa1991 - Huntington's Disease Support Center
Thank you Willby melissa1991 - Huntington's Disease Support Center
Hi everyone, on the 9th December i am doing a 5km run to raise money for Huntington's disease. Please sponsor me and help me reach my target www.justgiving.com/melissa-shanahan Thank youby melissa1991 - Huntington's Disease Support Center
I know how you feel. I have got my appointment in 2 weeks to start the testing process and see if i have symptoms - Im soo scared!! Feel free to add me on facebook or email me if you ever need to talk to someoneby melissa1991 - Huntington's Disease Support Center
Hi Angela. are you ok? What are you worrying about?by melissa1991 - Huntington's Disease Support Center
Thats greatby melissa1991 - Huntington's Disease Support Center
Of course thats ok Im glad you like it!by melissa1991 - Huntington's Disease Support Center
Kris King is spending a month alternating between cycling 100 miles one day and running a marathon the next to raise money for the HDA. This is amazing so please like his facebook page and sponsor him. This is a great way to raise HD awareness and help find a cure!by melissa1991 - Huntington's Disease Support Center
It sounds like your very lucky to have such a supportive family and friends. I know my family will be great if i test positive too which is a relief to know. I can understand you must be worried about your children...i will keep my fingers crossed for you and your family. Hopefully they wont get HD as it wasn't in your family history! This forum is great and its so nice to be able to talk tby melissa1991 - Huntington's Disease Support Center
Just wanted to say thank you to everyone who has donatedby melissa1991 - Huntington's Disease Support Center
Congratulations! Thats great!!by melissa1991 - Huntington's Disease Support Center
Hi Mike, that must of been a big shock when you got diagnosed with HD...especially as you have no family members with the disease! Its great that you have a supportive family, friends and wife!! It sounds like you are doing the best you can living with HD which is really good. Its nice to hear from some people living positively with HD...you should be proud! Melissaby melissa1991 - Huntington's Disease Support Center
Great article Do you know how many years away these treatments are likely to be?by melissa1991 - Huntington's Disease Support Center
Hi, this is where i read about the trials: http://curehd.blogspot.co.uk/2012/09/lifting-huntingtons-families-spirits.html Also it mentions when the trials are taking place on the video Im not sure how long it will be until the treatment is available though. We just have to keep fingers crossed xby melissa1991 - Huntington's Disease Support Center