My boyfriend has HD and he drinks - heavily at times. His emotions are definitely more out of control when he is drunk. There are times when he does not remember things he does or hateful things he says. Everything is always ok the next day. It is an awful disease and I hope you never have to go through it yourself.by aloneandscared - Huntington's Disease Support Center
He told me he had HD before we started dating. His father passed away last March. He spent his whole life being active and self sufficient. Had his own business that he started from scratch. He can't stand not being able to do it all himself. Mikee I admire your spirit.by aloneandscared - Huntington's Disease Support Center
It is a horrible disease. It is destroying both of us. He is just bitter and angry all the time. Please try to live a HAPPY life regardless of the test results. DO NOT GIVE UP ON EVERYONE.by aloneandscared - Huntington's Disease Support Center
The only comfort I find out here is that I am not alone. FevreDream - the accusations anger and unreasonableness never seem to go away. There are times when I think he just wants me to hurt - and if I cry it makes him all the more angry. He refuses all the meds - feels if it wont cure him or slow it down it isn't worth itby aloneandscared - Huntington's Disease Support Center
I think I will. I do not have hd but my boyfriend for the last 4 years does. It is a terrible disease and it is eating away at me also.by aloneandscared - Huntington's Disease Support Center
Love it. Want to get one.by aloneandscared - Huntington's Disease Support Center
OK - I don't have hd and it is not in my family. But my boyfriend does and his grandmother and father both passed because of it - they were 73 and 69. My boyfriend was tested (before we met). After dealing with him knowing I don't recommend the test. He has given up because in his mind he is a dead man. None of us are guaranteed a tomorrow. Until things are out of control, mentally I believby aloneandscared - Huntington's Disease Support Center
I do feel I over-react to situations. I feel insecure and shouldn't - I am trying to change. And I totally relate to everything you are saying and feeling. It is hard being around someone who is impossible to please. I try to understand how he feels. He feels his life is over - but when have any of us been promised a tomorrow? I wish he had never gone for the testing. His grandmother and faby aloneandscared - Huntington's Disease Support Center
Wow. I came out here today looking for something positive. I have been with my boyfriend for 4 years. We have had good and bad. This week has been bad. He treats me like a slave and then tells me I need to take better care of him. When I say I just want some appreciation and compassion - I am losing my house, my parents dog died, my older kids have had their own issues - one was in a mentalby aloneandscared - Huntington's Disease Support Center
I have been with my boyfriend for almost 4 years. He had been diagnosed before we started dating and was up front from the beginning. He also refuses treatment as there is no cure. It is not an easy life. I have older children and so does he. The worst thing I deal with is the emotional out bursts almost always aimed at me. I am the closest person. He is not close to his mom or sister - hiby aloneandscared - Huntington's Disease Support Center
Wow it really is amazing how similiar some stories are. My boyfriend has very unusual sleep paterns and becomes irrate when I wake him - even when he has told me to wake him for a particular event. He is up late - 3 4 5 in the morning then sleep till noon or 1. He also naps again while I am at work. I am the one who never sleeps. I work 8 - 5. It is very exhausting.by aloneandscared - Huntington's Disease Support Center
Thank you for sharing your story. You sound like a strong independent person - much like my boyfriend. I think he resents having to rely on me but he has alienated every one else in his life and would have done the same to me except he told me about the Huntington's and I did my homework to know what I was facing. He also gets overwhelmed by decisions. He has to focus on one thing at a timeby aloneandscared - Huntington's Disease Support Center
That is good news.by aloneandscared - Huntington's Disease Support Center
Thank you both that helps. I was feeling like I failed him. And Indigo I totally hear you - I have experienced alot of the "outbursts". Yesterday was particularly bad - he just kept running me down. Last night he apologized and said he had been having a bad day. And there are times when he says or does something exceptionally mean and he has no recollection of it. This disease makby aloneandscared - Huntington's Disease Support Center
This has been one of the bad weeks. I am stupid and inconsidered and unreliable this week. I totally understand the wanting to sit in a corner and cry.This disease takes a toll on everyone around it. I will never be the same again.by aloneandscared - Huntington's Disease Support Center
My boyfriend for the past 4 years has HD. Between us we have 6 kids - older now. He can tell the symptoms are increasing. We were living together but it was too much when the older kids came home for the summer. He says he will not move back in - it is too disruptive for him to go back and forth. He is talking about assisted living which breaks my heart. I always wanted to be there for him.by aloneandscared - Huntington's Disease Support Center
WOW reading this is scarey - my boyfriend does the same things with me. We have been together 3 years. Somedays I feel like I am going crazy. At least I know it is the disease doing these things. I love him unconditionally.by aloneandscared - Huntington's Disease Support Center
I apreciate hearing what you are feeling. I am in love with a wonderful man with HD. Some days he just seems to be crazy - talking about planes he has flown and trips he has taken and having been in the military. We have only been together for 3 years but I believe a lot of what he says he has done is just some sick mind trip this disease is pulling. I try to be there for him and help him enjby aloneandscared - Huntington's Disease Support Center
WOW I will be keeping an eye on this one!by aloneandscared - Huntington's Disease Support Center
I feel where you are coming from. I am just the girl friend but do most of the "care giving".by aloneandscared - Huntington's Disease Support Center
Everything seems to be calm for the time being - it seems to go in cycles. I need to try to identify what sets him off.by aloneandscared - Huntington's Disease Support Center
No he does not drive anymore. He does walk places when he has no other choice. He has alienated his entire family. His sister does check in with me to find out how he is doing. I resent his mom leaving him to me alone but I guess I understand. I feel like I am all he has. He does talk to his kids on a regular basis and they come to see him alot. He does a lot for them - works on his daughterby aloneandscared - Huntington's Disease Support Center
My name is Anne and I knew nothing of Huntington's until 3 years ago. I am divorced and dating a wonderful man. On the second date he told me he was dying - he has huntington's. I have researched and learned a lot in the past 3 years. Have also since learned my father has Parkinson's. My bf's father just passed away in March - he had huntington's as well. I have four children - 20, 18, 15, 1by aloneandscared - Huntington's Disease Support Center
We met and talked last night and he did come home. The evening was quiet and uneventful. And yes he is concerned about the children and what they think. We went by his dad's grave before we went home - he just passed in March and yes he had huntington's too. He has not been to his doctor in a while I will talk to him about going and see if he will let me go with him - I think that would help boby aloneandscared - Huntington's Disease Support Center
Last night my bf - who lives with me- got totally irrational. He has huntington's. We have been together for 3 years. I have noticed he is more and more irritable. I have 4 children - the older 2 came home recently for a short time. The dissagreement escalated to him trying to swerve the car into traffic while I was driving. He even asked if I was ready to die and said he was. When we gotby aloneandscared - Huntington's Disease Support Center