So i decided to be brave and get a tattoo today. Its a butterfly with the HD ribbon and then it says 'Cure HD' underneath. I really love it and i know my dad would too if he was still around. It was very painful though!! but im glad i got it

Click here to see it



Edited 1 time(s). Last edit at 11/07/2012 05:45PM by melissa1991.

That's awesome, I really like it!!

I just recently got one for my mom and dad. My dad passed 2 years ago from a massive heart attack at 55 and now we will never know if he had HD or not. I'm hoping to get tested in the next year myself

Not a tattoo person, it's a personal choice. I do like it and in the back of my mind after seeing it an HD tattoo would be something to consider. Looks great.
Mike

Thank you x

Love this tattoo!

Carla

I was never into tattoo's either, but I wanted a way to prove to my boys several years ago, that I truly believed they would be safe from HD. So I got one. I remember the tattoo artist asking me if it hurt, and it DID, but I said, not as much as thinking my kids could get HD!. I LOVE your tattoo!

Thanks

Love it. Want to get one.

Thanks are you going to get one?

I think I will. I do not have hd but my boyfriend for the last 4 years does. It is a terrible disease and it is eating away at me also.

Thats a nice idea to get a tattoo for your boyfriend. It is a horrible disease!
I am being tested next month and i already have symptoms so thats why i got the tattoo

It is a horrible disease. It is destroying both of us. He is just bitter and angry all the time. Please try to live a HAPPY life regardless of the test results. DO NOT GIVE UP ON EVERYONE.

Thank you for your advice i will definitely remember that and do my best to stay happy

How long has your boyfriend had HD for?

Melissa, not everyone is bitter. I nor my family has any experiece with HD. From my reading, there are some horrible circumstances. Personally I am more calm than ever before in my life. You may ask why; I do not know. I've had my share of outburst, anger, paranoia, etc. in the past. When I got sick I was devastated. To be so active and go from superman to spongebob overnight was pretty tough. If I was still in the workforce, etc...I don't think I could do it. I don't like where I am but it's where I am.......Good days, bad days.....mediocre days and so on. Be positive......I pray you don't have a positive test result. Maybe we need to come up with an HD tattoo, I may even consider it.........that's a big change for me........ask my son with the Ninja Warrior on his rib cage.......
Mike

Hey Melissa!! Beautiful tattoo!!! I also have an HD tattoo. I got it six months after my husband was diagnosed. It is a "bracelet" of pink flowers in vines, with the center reading "Cure HD". Basically, I got it to support him, and educate others. My husband and I both had wedding bands tattooed years ago, and many people asked about them. Now they ask about the bracelet. You'd be surprised at how many people still don't know of this disease, but are very willing to learn.

Hi Mike, thats great that you try and stay positive in your situation. How long have you had HD for?

That would be a great idea to make a HD tattoo

Thank you i will keep you updated with my result and i will definetely try and stay positive no matter what x

Thank you. Your tattoo sounds lovely and its great that you have done it for your husband x

Hi Melissa, I've had symptoms about 2.5 years didn't find out till December 2011 what was wrong. Also have damaged Otoliths in my vestibular system. Cag 36 (why not this luck with lotto). Thought to have been brought on by a head injury. Lost some hearing, vertigo and lots of other junk. Yes, it sucks but at least I wasn't given a short sentence. Check previous post for any more detail.

By the way. My son came in this weekend and presented me with a 3/4 tattoo, failed to mention it also wrapped around his back.......Oh well I guess his Ninja (turtle, ha, ha) has company.

Best of luck,

Mike

Hi Mike, so did none of your parents have HD?

How do you find life living with the disease?

Haha wow! he is brave to get a big tattoo...i was a wimp about having a small one. x

Hi Melissa.

No, I am the first. I guess someone has to be, just wish it had been for something more glorious. My Dad died when I was 6 at the age of 57. I was the youngest of 4. In those days you just didn't have children at 43 like my Mother did. She was a wonderful person, raised me well (not without issues of course) and instilled many things in me that were good. Just today I was thinking about being the first. So many here have seen relatives, loved ones suffer from this disease. If I had that in my background I can assure you my attitude would be different. I am thankful my cag is low and although my symptoms keep me from doing the the things I love, I awake each day. Problem is my head injury began symptoms. Trust me, I wenthoughtht the mill to find out. I knew I couldn't settle for "I just don't know what's wrong" from specialist.

Life with the disease has been difficult; very difficult. I am in a place that I never expected to be. You go from being good at your job and artistic, creative and active to very limited with no real understanding of why you feel the way you do except for your diagnosis. Quite often I ask my wife if she thinks I could go back to work, have guilt about not being productive, hate the problems I have following a conversation, driving, etc. I am blessed to be surrounded by the best family, friends and a very understanding wife.

Trust me, he knew to warn me first. I gave him some stuff about it and continued hopiembarrassbarass him a little. I have to admit, it did look good, just on someone else......ha, ha.

Mike