It's been awhile since a visit.
Am becoming involved, again, working with a local family who have just found out HD is in their family. Trying to gather some information for them, specifically A Physician's Guide to HD published by HDSA. However, seems that HDSA, in their infinite wisdom, has ceased support the publication, along with several others. Too bad, as I used the Guide to educate Linda's care providers. Case in point: a new dentist, after reading the guide, changed the firm's practice from a wet cleaning to a dry procedure for Linda because of the swallowing issues discussed in the pub.
So looking for another source of pub's or similar information
From the south of Maryland, thanks
Fred Lothrop
