This is for those pHDs and care givers being serviced by the specialty pharmacy Accredo – pay attention and do something !!!!!!!!!!!!!
Previously posted about the fiasco trying to reorder Linda’s Xenazine Rx from Accredo via the 800 number. With help of the Xenazine info center, Chris??? thanks, Accredo Florida confirmed delivery would be on 12//6/13. Another phone call from Accredo Tennessee confirmed insurance information. Guess what - UPS did not show as Accredo promised.
Called in the cavalry, the Xenazine information center, again. They tried to contact Accredo, after holding for 30 minutes a real person answered – the original refill order was never scheduled and now was too late, after 4:00PM, to schedule shipment and they don’t work on the weekend - shipment now scheduled for Monday with delivery on Tuesday. Linda runs out tomorrow
We, as a community, can send a strong message to those who benefit from this disease, i.e.Accredo. Care givers and pHDs can contact the information center, 1-888-882-6013, and request to be switched to another specialty pharmacy. If Accredo is servicing only 20 pHDs with a Xenazine Rx the same as Linda’s, that will be a loss of annual revenue of over $1,600,000 to Accredo.