Hi, does anyone out there take care of adult pHD children? I feel so alone with no one to vent, except you guys..........I was just wondering if anyone else is in my position............help!
I sure do! First my wife, now my daughter! Allison is 31 with a CAG of 60. She has been symptomatic for about 14 years. She and I live alone. We used to have visiting nurses but they greatly let us down. I've been around this site forever and have literally seen so many people come and go.
Howard
I also care give for my sons. Both have HD and one of them lives with me. It is heartbreaking and there is not a lot of support as both Howard and I know all to well.
Hang in there.
