Hi everyone,
My daughter has HD and is suffering from bilateral jaw pain ..... she has tried botox and neurontin, but is still suffering. Does anyone else have this and if so, what meds have helped.
Thanks so much!!

Maybe she grinds her teeth (could be at night so she doesn't realize) or clentches her jaw. Maybe it's TMJ and you could look into treatments for that if so. Could some sort of mouthpiece work? Maybe you've already tried a trip to the dentist. I'm sorry, I'm not sure what is going on. I hope she can find help and relief.

Hi Janigirl,

Ask the dentist to send her for a cone CAT scan. I had terrible jaw pain that no one seems to be able to figure out why. Turned out that I had infected cracks in the roots of a few teeth from grinding. This resulted in infected bone. Nothing showed on many different kinds of X-rays. It was so painful. It wasn't until someone finally sent me for the cone CAT scan that something turned up.

CP

Hi Concernedpartner,
Thanks for the CAT scan advice. Is that referred by an MD or Dentist?

oral surgeon!

Have you tried Baclofen? I use that for my Trigeminal Neuralgia

No, haven't tried baclofen, but will ask her neuro at the COE. Thanks very much!