Huntington Disease Lighthouse Families

For HD families ... by HD families
 

organ doner ?

Posted by mjg 
mjg
organ doner ?
June 23, 2013 12:10PM
I've always, planned, to be an organ doner. I'm, hd positive. What, are, my, limits?



Edited 1 time(s). Last edit at 06/23/2013 01:32PM by mjg.
Re: organ doner ?
June 24, 2013 03:50PM
From a previous post:

Here's the rules at the Harvard Brain Bank. [www.brainbank.mclean.org] Scroll down to Types of Donations. You're correct - in most cases you can donate your brain or organs, but not both. However, you can donate eyes, skin, blood or bone tissue along with your brain.

My brain will be going there. I'm pre-registered and it's in my will.

Will
Re: organ doner ?
June 24, 2013 10:37PM
Obviously organ donation for research is a great way to make a direct impact on research as Will is doing.

For other types of donations I reached out to the Health Resources and Services Administration for answers about organ donation. Here is their response to me.





Dear Mr. Ireland,

Thank you for your inquiry to the HRSA Information Center.

There is information from the U.S. government about organ donation at [www.organdonor.gov], including the following:

“Medical Condition? You may still be able to donate your organs. Doctors will evaluate the condition of your organs when the time arises. The transplant team's decision will be based on a combination of factors such as your specific illness and your physical condition to determine which organs and tissues can be donated.”

For information regarding organ donation by a living donor, please refer to: [www.livingdonorassistance.org]. For additional information on this topic, please use the contact information at: [www.livingdonorassistance.org].

If we can provide further assistance, please contact the Information Center at our toll-free number, 1-888-275-4772.

Sincerely,

Information Specialist
HRSA Information Center
P.O. Box 2910
Merrifield, VA 22116
Toll-Free Lines: 1-888-Ask-HRSA
TTY: 1-877-4TY-HRSA
Fax: 703-821-2098
E-mail: ask@hrsa.gov
URL: [ask.hrsa.gov]
Sorry, only registered users may post in this forum.

Click here to login