If anyone going to the convention and wants a something to discuss – check out the HDSA publications order page and the list of information, some as current as 1992 and 1991, the care givers packet is dated 1988, for which they charge a fee plus shipping costs. For example, they are charging $12.50 for The Physicians Guide (IMHO the most pertinent pub they offer), plus shipping. If you want to down load the current addition of The Marker, good luck.

Enjoy Florida

from the south Maryland
Fred Lothrop

Fred, that is rather disturbing! I would think there is current information, why would it not be updated? Maybe they need a volunteer web master to present the most up to date information. It would also be nice if the PGMHD book were available free of charge to our families. I did get one when I went to the convention in MN a few years back, no charge.

Carla