Huntington Disease Lighthouse Families

For HD families ... by HD families
 

Chorea Matters

Posted by normzach 
Chorea Matters
March 07, 2013 08:22AM
Am on a mailing list from Lundbeck, "Chorea Matters". Their last note contained advice and an excellent short video about chorea.

Was unable to copy the url and/or the Lundbeck post into this note, however you should be able to get to it via their web page www.ChoreaMatters.com and look for the reference bulletin CNS149R2.

Maybe someone smarter that I can get the note and video on this forum so all can access it.

Would be great to get this kind of information into the primary care provider education chain.

Fred Lothrop
Re: Chorea Matters
March 09, 2013 01:02AM
Maybe you have to use some type of Software like Asp.net
Ann
Re: Chorea Matters
March 31, 2013 10:24PM
As a caregiver for my husband who has HD, I tried to join "Chorea Matters". Unfortunately for us, the site is for U.S residents only.sad smiley ( We are Canadian.)
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