Huntington Disease Lighthouse Families

For HD families ... by HD families
 

Surveys

Posted by SteveI 
Surveys
December 10, 2012 07:34AM
I removed the Czech survey. All surveys that are posted on this message board must be HD related and verifiable. Although this one was HD related I couldn't easily associate it with any particular academic organization. Most professional and academic organizations actually request permission first, stating their purpose and how the data is to be used..

Steve
Coffee and computer
Re: Surveys
December 11, 2012 03:28PM
Good job, Steve. I guess you could say they were czechmated. :-)

Sorry - couldn't resist.

Will
eve
Re: Surveys
December 11, 2012 03:51PM
Ha! Good one Will. Your mensa IQ is showing!
Re: Surveys
December 12, 2012 09:09AM
I'm not sure how you figured out that I belonged to Mensa. It's not on my Facebook page and I don't think I've mentioned it on the forum. I'm fortunate to test well. My high school yearbook Prophecy was that I would become the President of Educational Testing Services (the College Board folks). That was a snide reference to my board scores that were significantly higher than my grades would have predicted.

I do recall mentioning it once during an HD test. It was during the Mini Mental State Exam where you have to give the examiner all the words you can think of starting with a certain letter in 30 seconds. I had a brain freeze with one and could only come up with 3. I shook my head and said, "Sh*t. I belong to Mensa and can't come up with more than that!" She laughed.

Will
eve
Re: Surveys
December 12, 2012 10:16AM
A long time ago you happened to mention it here on the forum and somehow I remembered. It's just another reason I admire you. But I mainly admire your great attitude and you caring to share your knowledge with all of us.
Re: Surveys
December 12, 2012 05:35PM
Good laugh.....
Survey - Huntington
December 16, 2012 01:39PM
Hello, we are medical students from the Second Faculty of Medicine at Charles University in Prague, Czech republic (http://www.lf2.cuni.cz/homepage.htm). We are working on a project called Mutual help of patients with Huntington disease and their families. We are researching how people react to learning the diagnosis, how this affects their lives and relationships and especially how they help each other...wether they are interested in meeting others with Huntington or wether they seek help in HD specialised organisations. We would therefore very much appreciate if you could fill in our short and anonymous online questionnaire which you can find here:
[mojeanketa.cz]
If you have any questions about this survey feel free to contact us at this email address: ms_aneta@yahoo.com

Thank you very much for your help with our project and your time!!!
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