I am a 36 y/o female and I just tested + for HD a few months ago. My cag is 42. I watched my dad suffer from this insane, confusing, infuriating, hopeless disease. My sister (who tested negative) and I had to deal with helping with paying his bills, taking him to appt's, and getting him groceries. And then the really crazy stuff started. I would get calls from the local police that they found him walking around town warning people about radiation coming from the tv... that's after he threw everything out of his apartment into the street. After receiving several calls we finally had to put him in a NH. He passed away last October.
I am scared that I will follow in dad's footsteps. Will I alienate myself like dad? Will I have a numerous amount of suicide attempts? Will I run around town like a crazy lady?
Nobody ever knows what HD is. I tell my friends and they say "did you say you had MS?"
I'm glad to read this forum because it's comforting reading everyone else's confusion too.