Posted on this site at [
www.hdlf.org] is an article titled.
Research Opportunity to Give a Voice to People with Huntington's Disease and their Caregivers
Researchers at Northwestern University are conducting a study to create a new self-report questionnaire to better address these issues. An important first step is to speak with people diagnosed with Huntington’s disease and caregivers to learn more about how one’s quality of life is affected.
To accomplish this, they are conducting telephone interviews with interested individuals across the country in March, 2012
Click on the above link for more information.
Steve
Edited 1 time(s). Last edit at 03/20/2012 10:11PM by SteveI.