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Posted by stevei
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Re: Images and Videos January 06, 2010 11:33AM |
Bi-polar child Oct 2005
hardofhearingchildren.com by PAM Candlish MLS
"What did you say?" "Eh?" "WHAT did you say?" "MM?" "WHAT DID YOU SAY?" oh "PARDON ME!"
Bi-Polar children
The Bi-Polar Child: the definitive and reassuring guide to childhood's Most Misunderstood Disorder. by Demitri Papolos MD and Janice Papolos. New York: Broadway Books,2002,452 p. ISBN 0-7679-1285-3
It has always been my intention to provide thoughtful researched information on other disabilities as the availability of information became available. It was difficult enough to find any information on DCD or dyspraxia which was listed in DSM-IV as a condition. Even leaner was any thought on how a child gets through childhood with Bi-Polar Disorder. The doctors declined to consider it, and passed over defining bi-polar in children until sometime in the future. At least part of this can be directly blamed on Freud. We still have children with bi-polar disorder. We still have families coping with the disorder thinking it is something else.
The Doctors identify each condition separately
What ever difference we are discussing, we must remember that the medical method is to identify each condition separately, and provide care regardless of other conditions. This provides pure research, but nothing to do with the lives of children with all sorts of problems. The complications are only truly understood by the parents who are with the child all the time.
living with bi polar people can be challenging, events can be super-charged, or utterly nothingFor the most part, bi-polar children make bad role models for their hard of hearing siblings but they can be inspired to try harder than anyone else too. I wonder which condition would be the one most quickly responded to by family. Who is grumpiest or angriest or weighs the most or is older or younger? Which professional group gets paid first, the psychiatrist and drug industry or the audiologist and hearing aid industry?
My Sister was Bi-Polar
Joan Margaret Morgan Gordon, Teacher extraordinaire.
My sister Joan was a three day happy person, and then watch out. As a child I was aware that when she got sad, or angry that she was not worth staying around. Nothing made her happy, not forward rolls, or hugs, and she was sufficiently vicious I would run away and leave her alone until she "got happy" again. Those are the memories of a four or five year old.
Joanie was sent to boarding school after breaking her arm and falling behind her classmates. She loved the boarding school environment which is rule bound and time-based, had friends, was a prefect. Boarding school was Joanie's best environment.
According to the Papolos, the bi-polar child has been studied in the Amish study.
"The regularity and simplicity of the Amish lifestyle, characterized by consistent social values, a philosophy of nonviolence, strong family and community kinship structures, a a proscribed daily, weekly and monthly schedule centering around the church provides focus and structure to the social world. The absence of electricity weds the Amish to the natural daily and seasonal light/dark cycle and-in comparison to the ordinary American child-introduces a complete buffer to over stimulation. These social and environmental buffers may modify many behaviours that could reach their extreme pitch in families that do not have such defined social and religious values, and cannot provide such consistent boundaries. (Papolos, Papolos, The Bi-Polar Child. 2002, p 164-165)
Miss Morgan, teacher
Then she choose to be a teacher and went to teaching school, graduating in 1956 and becoming a teacher up in a little town in Quebec. I used to visit her, attended her classes as a student, and went skiing. She had a white MG with running boards. She sang and played folk guitar introducing me to many folk artists. When I was in grade 3, my mother's illness required my father to ask Joanie to live at home again and help with me. Some years she was at home, teaching and riding horses with her "lady friend" who rode horses and trained dogs. Other years she had her own place to live, tiny houses. Our family dog was a collie named Tigger. When Tigger died, Joanie got her first breeding quality sheltie a great boy named Intl.Champion Braedeen Brae Brigh Nicht CDX, or Nicky for short. Nicky was smart, doing everything with flying colours and a loving personality if he thought you wanted it. At dog shows, when the judge wanted to see the teeth, Nicky would smile on command. If you asked him if he was getting a cold, he would sneeze, and laugh.
Mrs. Gordon, teacher
Nicky died suddenly of leptosporosis, and Joanie met her future husband. Joanie went into a store to buy a shovel because she was taking Nicky to our summer house to bury him. The tough old guy behind the counter enquired what she wanted a shovel for, she explained, he said "that is not a job for a woman." Charlie closed his store and drove my sister up to our summer house, dug the hole, buried the dog. Charlie had been one of the earliest professional hockey players in Canada for the Montreal Maroons. Charlie loved Joanie. Perhaps his Irish ancestors prepared him for a wife who screamed a lot. They got married when I was 13, living in small towns in Quebec where Joanie taught and raised shelties. Then they moved to Nova Scotia, Charlie had a general store which lost money and Joanie taught geography. Charlie was there for her attempted suicides. He called me to come, picked me up at the airport and cried all the way to the hospital. He asked me what to do, he loved her and was beyond comfort. I went to my sister's bed and said "Stop this, you are hurting Charlie. You are smart and if you want to kill yourself, do a good job and get it over with." She did stop trying to kill herself. Charlie had a stroke and died. Only at his death did I observe that my sister loved him too. Bi-polar people are difficult to live with, Charlie was so loving to her, even when she was really down.
Joanie used to phone me from Nova Scotia, almost every night, and would taunt me with that message, but you know, I had not one clue how to handle her. It was pretty hard talking to my sister on the phone all night, and then working all day.
White Owl Conservation Award 1973
Like most bi-polar people, when Joanie did something, she did it superbly well. She was a geographer, and took the summer school at McGill in which the students went to Mt. Washington NH and starting from the bottom, walked to the top. She used to taunt me with that accomplishment as I was chubby. She applied what she learned from McGill to her teaching. One year she took all the kids out in a bus, and had them walk across the bottom of the Musquodoboit river, then draw maps of their own river. The next year she charmed a pilot into flying the whole group down the river to the ocean, and then up to its source. I was working at the Canadian Council of Resource and Environment Ministers as a student librarian, and filled out an application for a White Owl Conservation Award which she won.
I wrote a book about Joanie called Displaced Mirth, which got mired in presenting what was going on when she was down, which was nothing, but I cannot write about nothing, the product of depression effectively. Understanding the mania aspect of someone is fairly easy to see, they do more, they don't sleep, they don't eat, they are happy. Joanie was involved through her neurologist Dr. Andre Barbeau with the earliest committee to combat Huntington's Disease which she also had in the early stage. She adored Woodie Guthrie's music.
To protect family sensitivities, I changed my mother's HD to alcoholism and attempted to understand why my sister was shot in the head with my grandmother's target rifle? Why she had an affair with a Roman catholic priest after Charlie died? Was it really suicide? The priest disappeared by the time she was found, not even available to the police for a statement.
My sister burned out as a teacher. One fall day she ran screaming from the classroom "I can't take it anymore..." In the end she was a victim of the school system. She had no pension because she had not taught for long enough, 40 year old teachers burning out merely allowed the educational system to replace them with younger cheaper teachers. She died in utter poverty in Nova Scotia leaving 22 shelties as her legacy.
Her evident Mood determined whether we would have fun or not.
I did not know my sister was bi-polar, but I did know that she had a rhythm of good and bad. That rhythm was there when I was a child, but not diagnosed by any doctor, just part of a family problem which we lived with to the best of our abilities.. I read a terrific book about Dr. Spock and his wife who really did all the work for the book. Jane Spock was a psychiatric patient for most of her life, and studied the child development from Freud's point of view. After reading the book, I realized that she was probably bi-polar, but that was never one of her diagnosis, which would explain why she did not get any better. I would also be very unhappy if I did all the work, and got little credit.
None of that in our family
When one of my husband's cousins was diagnosed as bi-polar, his mother said, "Oh there has never been anything like that in the family." Around 1800, the family was evicted from Scotland by the Presbyterian church for being too strict, continuing to Ross's grandfather with shimmering religiosity. My parents' generation hid anything like mental illness or disabilities, unless the child could pass as normal. As we all know, passing as normal with a hearing loss causes many problems, socially, mentally.
When a child has a properly diagnosed condition and good information, and modifications at school, the child has a better chance of being successful. This is so fundamental to an understanding of parenting special needs kids.
IEP for Bi-polar Children
The book by the Papolos has an excellent sample IEP for Bi-polar children. Actually the Papolos' IEP is very close to the IEP which we negotiated for Reid over many years and many disabilities. Of course the school board did not do their job. A recent similar case in the US had a settlement of $6 million for not educating the child with special needs. I also won in Ontario Court against the school board for not educating Reid through Ontario Human Rights. The Upper Grand District School board supplied Reid with an oral laptop computer. Our case took 4 years and was resolved in his last year of high school. The case has been closed, but as the school board had to promise to review the educational support of every single disabled child in the board. All it takes is one more parent, and the case will go back, as there is so much research done already against the school board.
The role, the abilities of a normal child not well understood.
At university in the 1960's we were just learning about the childhood problems like mental retardation. In many countries, the role of the child is to be a small fragile adult. In other countries the child's role is the tabula rasa, meaning the child is empty and needs to be filled with knowledge. Many countries see children as devils in development which need beating to nuture.
For a hearing impaired child, the last thing anyone would think reasonable would be to wait until the child was an adult to do something about hearing and speech.
In 1984, when Reid was a baby, the average age diagnosis of profound congenital hearing loss was 5 years. The Public Health departments attempted to screen for hearing loss and reduced that age to 36 months, which is still ridiculous with 3 full years of lost hearing and speech. When Jonathan was born in 2000 there were many factors in the system preventing hearing tests for everyone, and even though the equipment to test babies hearing had arrived in the hospitals, it was still two more years before they had people who could do hearing tests. By the time Erica and Roberta were born in 2003, they had hearing tests before leaving the hospital. Due to Reid's hearing loss, my grandchildren are at least at risk for hearing loss. Now we are diagnosing babies, and putting hearing aids in their tiny ears.
At the same time, the psychiatrists have declined to outline bi-polar illness in children, preferring to leave it until the child has his/her first real attack as an adult.
I see no wisdom in the bi-polar child having a natural childhood, while waiting for the bi-polar to escalate to an identifiable level.
Two of my children had temper tantrums, two did not. My husband is bi-polar. I now realize that his original attraction to me is the high which my sister had on her good days. I did not see the similarities at the time because I only recognized my sister's cycle, not my husband's which is very long and not my daughter's which is ultra-rapid.
As the parent of a child who grew up to be bi-polar, would I have preferred to know what was going on? YES!!! because she was considered to have something else which made no sense to me, as her mother. We could have found a proper child psychiatrist, and tried drugs to see if they would help her, and forced the school to help her too.
Co-morbid Conditions like learning disabilities, or hearing losses, ADHD, ADD, autism, tourettes.
The other big factor is the co-morbid conditions like learning disabilities, or hearing losses, ADHD, ADD, autism, tourettes. The Papolos' say. "Perhaps the greatest source of diagnostic confusion in childhood bi-polar disorder is that it's symptoms overlap with many of the symptoms of attention-deficit disorder with hyperactivity. At first glance, any child who can't sit still, who is impulsive, inattentive, easily distracted or emotionally labile is more likely to receive a diagnosis of ADHD than bi-polar disorder." (Papolos,Papolos The Bi-polar Child 2002 p 36) The list of symptoms for ADHD in DSM-IV looks a lot like the typical day of the hard of hearing child too.
So it was with some pleasure that I saw the beginning of knowledge about bi-polar children at about.com first.
www.bpkids.org
[bipolar.about.com]
www.bipolarchild.com/
[www.bipolarworld.net]
-PAM Candlish
2October 2005
Edited 1 time(s). Last edit at 01/06/2010 11:39AM by dustyblues.
hardofhearingchildren.com by PAM Candlish MLS
"What did you say?" "Eh?" "WHAT did you say?" "MM?" "WHAT DID YOU SAY?" oh "PARDON ME!"
Bi-Polar children
The Bi-Polar Child: the definitive and reassuring guide to childhood's Most Misunderstood Disorder. by Demitri Papolos MD and Janice Papolos. New York: Broadway Books,2002,452 p. ISBN 0-7679-1285-3
It has always been my intention to provide thoughtful researched information on other disabilities as the availability of information became available. It was difficult enough to find any information on DCD or dyspraxia which was listed in DSM-IV as a condition. Even leaner was any thought on how a child gets through childhood with Bi-Polar Disorder. The doctors declined to consider it, and passed over defining bi-polar in children until sometime in the future. At least part of this can be directly blamed on Freud. We still have children with bi-polar disorder. We still have families coping with the disorder thinking it is something else.
The Doctors identify each condition separately
What ever difference we are discussing, we must remember that the medical method is to identify each condition separately, and provide care regardless of other conditions. This provides pure research, but nothing to do with the lives of children with all sorts of problems. The complications are only truly understood by the parents who are with the child all the time.
living with bi polar people can be challenging, events can be super-charged, or utterly nothingFor the most part, bi-polar children make bad role models for their hard of hearing siblings but they can be inspired to try harder than anyone else too. I wonder which condition would be the one most quickly responded to by family. Who is grumpiest or angriest or weighs the most or is older or younger? Which professional group gets paid first, the psychiatrist and drug industry or the audiologist and hearing aid industry?
My Sister was Bi-Polar
Joan Margaret Morgan Gordon, Teacher extraordinaire.
My sister Joan was a three day happy person, and then watch out. As a child I was aware that when she got sad, or angry that she was not worth staying around. Nothing made her happy, not forward rolls, or hugs, and she was sufficiently vicious I would run away and leave her alone until she "got happy" again. Those are the memories of a four or five year old.
Joanie was sent to boarding school after breaking her arm and falling behind her classmates. She loved the boarding school environment which is rule bound and time-based, had friends, was a prefect. Boarding school was Joanie's best environment.
According to the Papolos, the bi-polar child has been studied in the Amish study.
"The regularity and simplicity of the Amish lifestyle, characterized by consistent social values, a philosophy of nonviolence, strong family and community kinship structures, a a proscribed daily, weekly and monthly schedule centering around the church provides focus and structure to the social world. The absence of electricity weds the Amish to the natural daily and seasonal light/dark cycle and-in comparison to the ordinary American child-introduces a complete buffer to over stimulation. These social and environmental buffers may modify many behaviours that could reach their extreme pitch in families that do not have such defined social and religious values, and cannot provide such consistent boundaries. (Papolos, Papolos, The Bi-Polar Child. 2002, p 164-165)
Miss Morgan, teacher
Then she choose to be a teacher and went to teaching school, graduating in 1956 and becoming a teacher up in a little town in Quebec. I used to visit her, attended her classes as a student, and went skiing. She had a white MG with running boards. She sang and played folk guitar introducing me to many folk artists. When I was in grade 3, my mother's illness required my father to ask Joanie to live at home again and help with me. Some years she was at home, teaching and riding horses with her "lady friend" who rode horses and trained dogs. Other years she had her own place to live, tiny houses. Our family dog was a collie named Tigger. When Tigger died, Joanie got her first breeding quality sheltie a great boy named Intl.Champion Braedeen Brae Brigh Nicht CDX, or Nicky for short. Nicky was smart, doing everything with flying colours and a loving personality if he thought you wanted it. At dog shows, when the judge wanted to see the teeth, Nicky would smile on command. If you asked him if he was getting a cold, he would sneeze, and laugh.
Mrs. Gordon, teacher
Nicky died suddenly of leptosporosis, and Joanie met her future husband. Joanie went into a store to buy a shovel because she was taking Nicky to our summer house to bury him. The tough old guy behind the counter enquired what she wanted a shovel for, she explained, he said "that is not a job for a woman." Charlie closed his store and drove my sister up to our summer house, dug the hole, buried the dog. Charlie had been one of the earliest professional hockey players in Canada for the Montreal Maroons. Charlie loved Joanie. Perhaps his Irish ancestors prepared him for a wife who screamed a lot. They got married when I was 13, living in small towns in Quebec where Joanie taught and raised shelties. Then they moved to Nova Scotia, Charlie had a general store which lost money and Joanie taught geography. Charlie was there for her attempted suicides. He called me to come, picked me up at the airport and cried all the way to the hospital. He asked me what to do, he loved her and was beyond comfort. I went to my sister's bed and said "Stop this, you are hurting Charlie. You are smart and if you want to kill yourself, do a good job and get it over with." She did stop trying to kill herself. Charlie had a stroke and died. Only at his death did I observe that my sister loved him too. Bi-polar people are difficult to live with, Charlie was so loving to her, even when she was really down.
Joanie used to phone me from Nova Scotia, almost every night, and would taunt me with that message, but you know, I had not one clue how to handle her. It was pretty hard talking to my sister on the phone all night, and then working all day.
White Owl Conservation Award 1973
Like most bi-polar people, when Joanie did something, she did it superbly well. She was a geographer, and took the summer school at McGill in which the students went to Mt. Washington NH and starting from the bottom, walked to the top. She used to taunt me with that accomplishment as I was chubby. She applied what she learned from McGill to her teaching. One year she took all the kids out in a bus, and had them walk across the bottom of the Musquodoboit river, then draw maps of their own river. The next year she charmed a pilot into flying the whole group down the river to the ocean, and then up to its source. I was working at the Canadian Council of Resource and Environment Ministers as a student librarian, and filled out an application for a White Owl Conservation Award which she won.
I wrote a book about Joanie called Displaced Mirth, which got mired in presenting what was going on when she was down, which was nothing, but I cannot write about nothing, the product of depression effectively. Understanding the mania aspect of someone is fairly easy to see, they do more, they don't sleep, they don't eat, they are happy. Joanie was involved through her neurologist Dr. Andre Barbeau with the earliest committee to combat Huntington's Disease which she also had in the early stage. She adored Woodie Guthrie's music.
To protect family sensitivities, I changed my mother's HD to alcoholism and attempted to understand why my sister was shot in the head with my grandmother's target rifle? Why she had an affair with a Roman catholic priest after Charlie died? Was it really suicide? The priest disappeared by the time she was found, not even available to the police for a statement.
My sister burned out as a teacher. One fall day she ran screaming from the classroom "I can't take it anymore..." In the end she was a victim of the school system. She had no pension because she had not taught for long enough, 40 year old teachers burning out merely allowed the educational system to replace them with younger cheaper teachers. She died in utter poverty in Nova Scotia leaving 22 shelties as her legacy.
Her evident Mood determined whether we would have fun or not.
I did not know my sister was bi-polar, but I did know that she had a rhythm of good and bad. That rhythm was there when I was a child, but not diagnosed by any doctor, just part of a family problem which we lived with to the best of our abilities.. I read a terrific book about Dr. Spock and his wife who really did all the work for the book. Jane Spock was a psychiatric patient for most of her life, and studied the child development from Freud's point of view. After reading the book, I realized that she was probably bi-polar, but that was never one of her diagnosis, which would explain why she did not get any better. I would also be very unhappy if I did all the work, and got little credit.
None of that in our family
When one of my husband's cousins was diagnosed as bi-polar, his mother said, "Oh there has never been anything like that in the family." Around 1800, the family was evicted from Scotland by the Presbyterian church for being too strict, continuing to Ross's grandfather with shimmering religiosity. My parents' generation hid anything like mental illness or disabilities, unless the child could pass as normal. As we all know, passing as normal with a hearing loss causes many problems, socially, mentally.
When a child has a properly diagnosed condition and good information, and modifications at school, the child has a better chance of being successful. This is so fundamental to an understanding of parenting special needs kids.
IEP for Bi-polar Children
The book by the Papolos has an excellent sample IEP for Bi-polar children. Actually the Papolos' IEP is very close to the IEP which we negotiated for Reid over many years and many disabilities. Of course the school board did not do their job. A recent similar case in the US had a settlement of $6 million for not educating the child with special needs. I also won in Ontario Court against the school board for not educating Reid through Ontario Human Rights. The Upper Grand District School board supplied Reid with an oral laptop computer. Our case took 4 years and was resolved in his last year of high school. The case has been closed, but as the school board had to promise to review the educational support of every single disabled child in the board. All it takes is one more parent, and the case will go back, as there is so much research done already against the school board.
The role, the abilities of a normal child not well understood.
At university in the 1960's we were just learning about the childhood problems like mental retardation. In many countries, the role of the child is to be a small fragile adult. In other countries the child's role is the tabula rasa, meaning the child is empty and needs to be filled with knowledge. Many countries see children as devils in development which need beating to nuture.
For a hearing impaired child, the last thing anyone would think reasonable would be to wait until the child was an adult to do something about hearing and speech.
In 1984, when Reid was a baby, the average age diagnosis of profound congenital hearing loss was 5 years. The Public Health departments attempted to screen for hearing loss and reduced that age to 36 months, which is still ridiculous with 3 full years of lost hearing and speech. When Jonathan was born in 2000 there were many factors in the system preventing hearing tests for everyone, and even though the equipment to test babies hearing had arrived in the hospitals, it was still two more years before they had people who could do hearing tests. By the time Erica and Roberta were born in 2003, they had hearing tests before leaving the hospital. Due to Reid's hearing loss, my grandchildren are at least at risk for hearing loss. Now we are diagnosing babies, and putting hearing aids in their tiny ears.
At the same time, the psychiatrists have declined to outline bi-polar illness in children, preferring to leave it until the child has his/her first real attack as an adult.
I see no wisdom in the bi-polar child having a natural childhood, while waiting for the bi-polar to escalate to an identifiable level.
Two of my children had temper tantrums, two did not. My husband is bi-polar. I now realize that his original attraction to me is the high which my sister had on her good days. I did not see the similarities at the time because I only recognized my sister's cycle, not my husband's which is very long and not my daughter's which is ultra-rapid.
As the parent of a child who grew up to be bi-polar, would I have preferred to know what was going on? YES!!! because she was considered to have something else which made no sense to me, as her mother. We could have found a proper child psychiatrist, and tried drugs to see if they would help her, and forced the school to help her too.
Co-morbid Conditions like learning disabilities, or hearing losses, ADHD, ADD, autism, tourettes.
The other big factor is the co-morbid conditions like learning disabilities, or hearing losses, ADHD, ADD, autism, tourettes. The Papolos' say. "Perhaps the greatest source of diagnostic confusion in childhood bi-polar disorder is that it's symptoms overlap with many of the symptoms of attention-deficit disorder with hyperactivity. At first glance, any child who can't sit still, who is impulsive, inattentive, easily distracted or emotionally labile is more likely to receive a diagnosis of ADHD than bi-polar disorder." (Papolos,Papolos The Bi-polar Child 2002 p 36) The list of symptoms for ADHD in DSM-IV looks a lot like the typical day of the hard of hearing child too.
So it was with some pleasure that I saw the beginning of knowledge about bi-polar children at about.com first.
www.bpkids.org
[bipolar.about.com]
www.bipolarchild.com/
[www.bipolarworld.net]
-PAM Candlish
2October 2005
Edited 1 time(s). Last edit at 01/06/2010 11:39AM by dustyblues.
|
Re: Images and Videos January 07, 2010 06:40PM |
Dusty, you ARE awesome. I am so glad i finally got to meet you. Will you be coming again for the Walk this year? Gonna hug you again, if you are!
Hugs, Suzanne
Hugs, Suzanne
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