My daughter has just been tested for HD
Posted by joanie
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Re: My daughter has just been tested for HD July 11, 2009 10:40PM |
Registered: 15 years ago Posts: 265 |
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Re: My daughter has just been tested for HD July 14, 2009 04:47PM |
Registered: 15 years ago Posts: 149 |
Just to add to the information about HD symptom onset, both my brother and father started with involuntary movements, not emotional or cognitive symptoms. My brother was initially diagnosed with benign familial chorea, since we did not know HD was in the family. This was in 1982. In 1984, he and my father were both diagnosed at an HD clinic by their involuntary movements. My brother had cognitive issues which accompanied the chorea.
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Re: My daughter has just been tested for HD July 20, 2009 09:12AM |
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Re: My daughter has just been tested for HD July 20, 2009 10:03AM |
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Re: My daughter has just been tested for HD July 20, 2009 10:25AM |
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Re: My daughter has just been tested for HD July 20, 2009 12:58PM |
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Re: My daughter has just been tested for HD July 20, 2009 01:56PM |
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Re: My daughter has just been tested for HD July 20, 2009 03:32PM |
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Re: My daughter has just been tested for HD July 20, 2009 03:45PM |
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Re: My daughter has just been tested for HD July 20, 2009 03:56PM |
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Re: My daughter has just been tested for HD July 20, 2009 05:23PM |
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Re: My daughter has just been tested for HD July 20, 2009 08:47PM |
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Re: My daughter has just been tested for HD July 20, 2009 10:15PM |
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Re: My daughter has just been tested for HD July 20, 2009 10:15PM |
Registered: 15 years ago Posts: 132 |
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Re: My daughter has just been tested for HD July 20, 2009 10:24PM |
Registered: 15 years ago Posts: 146 |
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Re: My daughter has just been tested for HD July 21, 2009 09:51AM |
Registered: 14 years ago Posts: 32 |
Thanks to all of you that helped me through the past couple of weeks. I was totally lost about what to do and what to feel. I went back through other posts and read a lot of what has been said here. I went into our test results meeting yesterday fearing the worse, that we were in for the battle of our lives, but confident that I was up for the battle and I was not going to let this define my daughter's life. I got that strength from all of you and everything that I read.
You are truly a wonderful, loving and supporting group of people.
Thank you so much.
You are truly a wonderful, loving and supporting group of people.
Thank you so much.
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Re: My daughter has just been tested for HD July 24, 2009 03:07PM |
Registered: 18 years ago Posts: 1,783 |
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Re: My daughter has just been tested for HD July 24, 2009 10:12PM |
Registered: 15 years ago Posts: 480 |
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Re: My daughter has just been tested for HD July 25, 2009 03:04PM |
Registered: 15 years ago Posts: 119 |
just read this post... im so pleased for you and your family. What a massive massive relief.
What an awfully worrying time this has been; well done for staying strong for your daugther and finding out all you can in order to try and prepare for the worst case scenario.
I hope that now this nastiest of illnesses has been ruled out, whatever lies ahead you can in some ways go forward and know that whatever comes; you will manage it.
YOur daughter is happy and healthy in so many ways and obviously has a mum that loves her.
she is blessed x x x
What an awfully worrying time this has been; well done for staying strong for your daugther and finding out all you can in order to try and prepare for the worst case scenario.
I hope that now this nastiest of illnesses has been ruled out, whatever lies ahead you can in some ways go forward and know that whatever comes; you will manage it.
YOur daughter is happy and healthy in so many ways and obviously has a mum that loves her.
she is blessed x x x
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Re: My daughter has just been tested for HD July 26, 2009 08:18PM |
Registered: 15 years ago Posts: 149 |
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