Hello! I am writing to get information. My boyfriend has a mother who has HD and is in an assisted living home. We are going to see her in July and I am doing some research. He has not been tested yet and we are going to start counseling soon. I want to marry this man and I just want to get as much knowledge of this disease as possible. I am hoping to hear from anyone who would like to share some of thier experiences with me. As they say "knowledge is power." I believe knowing what to expect takes some of the scariness away.

Any information would be greatly appreciated...

Hello MIMA, I'm so glad you wrote.Your interest show you love him.
I just wanted to share with you a great piece of information my husband and I just found out from his hd. doctor.
If your worried about children in your future with this man,you shouldn't. My husbands doctor says that his sperm can be tested for the hd. gene and find the sperm without it and the healthy sperm be implanted in you to assure the gene won't be passed on. I hope this helps.God Bless Paula

The HDSA Massachusetts Chapter has a very good article
covering the following information on HD with the last one
giving good information on prenatal and other testing available.

[www.hdsa-ne.org]

What causes the symptoms of HD?
Is there treatment for HD?
How common is HD?
How is HD inherited?
Can HD occur without a family history of HD?
What is juvenile HD?
Can testing be done for HD before symptoms appear?
How does someone decide whether to be tested?

Love
Jean