Huntington Disease Lighthouse Families

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Today is my last day "at risk"

Posted by notme 
Today is my last day "at risk"
October 09, 2008 05:37PM
The HD psychologist called me today to tell me that my test results are in. It has been exactly 4 weeks. She said that the neurologist would be out the next 2 weeks, but that they had discussed my case and agreed on a game plan. She asked if I could come in Friday afternoon to discuss my results.

So Friday (tomorrow) at 2PM, I get my results. No more of this torture waiting. I am either positive or negative, but I am no longer at risk. I've lived knowing that I was at risk for over 30 years.

I had been told to prepare for a positive gene result (I'm symptomatic). The fact that there is a "game plan" is a big hint, eh? I mean why would I need a game plan for a negative gene test result? Or I guess I could be one of those symptomatic folks in the 36-39 CAG range, maybe that would require a game plan.........?
jl
Re: Today is my last day "at risk"
October 09, 2008 05:45PM
Whew! I'm so glad that they were able to speed up the schedule!

I know how anxious you have been.

I'm glad that tomorrow will bring an end to your anxiety.

My fingers are crossed! Good luck
Re: Today is my last day "at risk"
October 09, 2008 06:02PM
I am crossing fingers for you!!!

Good luck!
Re: Today is my last day "at risk"
October 09, 2008 06:07PM
dear notme,

so hard for you i know, but it is as you say, the end of a long road.
if you dont have it, hurray. if you do have it, you will deal the hand that has been given you, right? it is, what it is, as they say...

if you have it, you must allow time for grieving, you will recover from the news, you will live strong and live positive. we are here for you, and you for us... hoping you all the stregth and hope, in the world!

The wave
Re: Today is my last day "at risk"
October 09, 2008 06:35PM
No matter what the results are ...I hope the day goes well.
Re: Today is my last day "at risk"
October 09, 2008 07:02PM
We will be waiting Pam smiling smiley

[www.hdyo.org]
Re: Today is my last day "at risk"
October 09, 2008 07:11PM
I'm glad the wait is over. For some reason, the period between the results coming in and the appointment to get them is usually the hardest time.

We'll all be with you in spirit when you go in. Remember that you have friends here who understand and will help you fight back if the result is positive.
Re: Today is my last day "at risk"
October 09, 2008 07:55PM
Just wanted to let you know I'll be thinking of you.

Patty
Re: Today is my last day "at risk"
October 09, 2008 07:59PM
will be waiting here with everyone to celebrate or hold you up. Ready for both. Thinking of you, Pat
Re: Today is my last day "at risk"
October 10, 2008 05:07AM
Good luck today...

A person here once told me "you either have HD or you don't, the living at risk part is the hardest one to cope with day to day."

Live strong, laugh and fight hard no matter what the result... We are here for you.

rgds,
LP
Re: Today is my last day "at risk"
October 10, 2008 07:25AM
Thanks the chat last night PAM!
Re: Today is my last day "at risk"
October 10, 2008 09:32AM
Good luck - my fingers are crossed.

Stacy-NJ
Re: Today is my last day "at risk"
October 10, 2008 10:07AM
Good luck!! You're in my prayers.
Re: Today is my last day "at risk"
October 10, 2008 11:32AM
Thanks everyone for your prayers, support, and well wishes. Just 1.5 hours to go until I know.
dcb
Re: Today is my last day "at risk"
October 10, 2008 11:52AM
You will be in my thoughts - Please be sure either way to take at least today for yourself - after you return home do something you really enjoy and brings you total happiness!!
Praying for the best!!

DCB
*Living for today*
Re: Today is my last day "at risk"
October 10, 2008 12:08PM
I'm praying for you today! Hoping for the best. ((hugs))
Re: Today is my last day "at risk"
October 10, 2008 12:14PM
We're right here, Pam.
Re: Today is my last day "at risk"
October 10, 2008 02:25PM
Good luck!
Re: Today is my last day "at risk"
October 10, 2008 02:52PM
I hope it all went well today for you.

charlie x
Re: Today is my last day "at risk"
October 10, 2008 02:58PM
Good luck we are thinking of you
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