Does anyone know of a good neurologist or HD Centre of Excellence in the Salem or Portland, Oregon area who deals with HD and is knowledgable of HD?

I have a BIL living in the area who most likely has HD and needs to find a place to help him.

Thank you.
Sharon

Sharon, I know of no COE in the Portland/Salem area.

I was unable to even find a physician with any HD experience in Salem (where I used to work).

I would suggest Oregon Health Sciences University, in Portland. Dr Penelope Hogarth (a neurologist) has lots of experience with HD. Karen Kovak (genetic counselor) does too. Both of them are terrific.

jl

Gee, finally, I get to answer an Oregon question!

You want to answer Oregon questions JL? Why are Oregonians so nutty?

Can't answer that, E!

Most Oregonians think Southern Californians are totally "bat-shit".....

Depends on one's point of view.

And everyone has one!



Edited 1 time(s). Last edit at 05/02/2008 10:23AM by JL.

JL-
Thank you so very much for the information. I will pass it on.

That information saved many of us many hours trying to find someone.

We appreciate it very much!!!
Sharon

My pleasure, Sharon!

As an aside (all of you know I can't resist those) - and in reponse to Eric's unforgivable and unfounded attack on the proud inhabitants of my glorious state - I have this to add.

The Oregonian primaries are imminent - and I've been suffering through the endless mispronunciations of "Oregon".

I swear to god, I'll vote for the candidate that is able to pronounce it correctly!!!

Even Larry King, the inveterate New-York-ophile who usually manages to mispronounce most EVERYTHING, until someone corrects him in his little earphone - EVEN LARRY finally managed to get it right (at least, a couple of times).

I was extremely proud of Larry. Oregon has only been a state for 150 years - usually Larry is not so quick on the uptake!

Larry!

You guys make a delicious cookie there in Oreogon.

You just lost my vote for President, Eric......

JL, Larry King was probably on vacation when Oregon became a state and it has taken him awhile to catch up.



Edited 1 time(s). Last edit at 05/04/2008 10:22AM by Marsha.

Good one, Marsha!!!

And besides we Oregonians like to make you all think that we are nutty so that we can keep this beauty to ourselves.! What do you think JL, snow two weeks ago and its supposed to be in the 90's by Tuesday!

Thanks for those contact names Sharon! I looked them up so I could file them as a reference! On the OSHU website I also ran across a lecture and video both of these doctors on genetic diseases, including HD!

Love
Jean

Movement Disorders & Parkinson's
Clinic: [www.ohsu.edu]
Department of Neurology
Oregon Health & Science University
3303 S.W. Bond Avenue
Portland, Oregon 97239-3098
To schedule an appointment: (503) 494-7772
Directions: see clinic website

Penelope Hogarth M.D.,
Director of the OHSU Augmentative Communication Clinic, Assistant Professor. Clinical Interests Movement disorders: Parkinson's disease, Huntington's diseases, tremor, dystonia.
Email: hogarthp@ohsu.edu


Genetics
Karen Kovak, M.S., C.G.C.
Child Development & Rehabilitation Center
Shriner's Hospital Genetic and Birth Defects
707 S.W. Gaines Road
Portland, OR 97239
Phone: 503 494-4800

Video DNA, Disease, Destiny and The Brain
PART 1 - Penny Hogarth, M.D.
[www.ohsu.edu]

DNA, Disease, Destiny and The Brain
PART 2 - Genetic Counseling in the Post - Human Genome Project Era
[www.ohsu.edu]
Speaker: Karen Kovak, M.S.

Jean-
First, JL was the one who posted the contact names and I am so thankful for those.

Jean, thank you so much for the additional information. I am anxious to look at the videos. I will also pass this information on to my nephews.

I am anxious to view the videos and to talk to these people. I have talked to both of their offices and we are trying to connect.

Thank you all so very very much.

Sharon

I posted this yesterday but it didn't show up ;-)

Thanks for those contact names Sharon! I looked them up so I could file them as a reference! On the OSHU website I also ran across a lecture and video both of these doctors on genetic diseases, including HD!

Love
Jean

Movement Disorders & Parkinson's
Clinic: [www.ohsu.edu]
Department of Neurology
Oregon Health & Science University
3303 S.W. Bond Avenue
Portland, Oregon 97239-3098
To schedule an appointment: (503) 494-7772
Directions: see clinic website

Penelope Hogarth M.D.,
Director of the OHSU Augmentative Communication Clinic, Assistant Professor. Clinical Interests Movement disorders: Parkinson's disease, Huntington's diseases, tremor, dystonia.
Email: hogarthp@ohsu.edu

Services at this Clinic

Consultations to help explain neurological symptoms
Second opinions regarding an existing diagnosis (Parkinson?s disease, Huntington?s disease, dystonia, ataxia and others)
Surgical interventions for Parkinson?s disease, spasticity and other movement disorders (e.g. deep brain stimulation)
Innovative and minimally invasive procedures


Genetics
Karen Kovak, M.S., C.G.C.
Child Development & Rehabilitation Center
Shriner's Hospital Genetic and Birth Defects
707 S.W. Gaines Road
Portland, OR 97239
Phone: 503 494-4800

Clinical Genetics at Oregon Health & Science University

Video DNA, Disease, Destiny and The Brain
PART 1 - Penny Hogarth, M.D.
[www.ohsu.edu]

DNA, Disease, Destiny and The Brain
PART 2 - Genetic Counseling in the Post - Human Genome Project Era
[www.ohsu.edu]
Speaker: Karen Kovak, M.S.