Renee and I have been talking for a while about setting up an Aussie forum. We have managed to find a free sight which offers us the opportunity to do this!

We see this as an opportunity to reach many Aussie families facing hd and offer them a space to connect with others and learn about local services. We will also provide them with the links to HDAC for further information and support regarding research, supplements, broader worldwide connection etc.

We are also trying to get the support of services and the HD Association to assist with the sight and provide information about what they can offer the hd community. We are aware that we are not experts in the field of HD which is why we aim to draw on the resources through services as well as our connections through hdac.

We wanted to thank Marsha, Stevie, Eric, Gordon and everyone who participates on this sight for inspiring us to offer something similar with an Australian focus. We thought we can only give it a try and see what happens!!

HDAC will always be home...this is like a little neighbor...or sister... and you guys are the first people we have told so we are a fairly quiet neighbor for now...

the link is [www.hdaustralia.freeforums.org]

Renee and Michelle



Edited 2 time(s). Last edit at 05/18/2007 04:53AM by Michelle.

it is very pretty ladies and a fantastic idea

thanks for getting it together

erica xx

Looks good you guys! Way to go!

Great Idea guys.

Looks great.

I will go have a look at this, it sounds good. But don't think the rest of you will get rid of us that easily - we are still waiting for JL to arrive with her banana treat for us. Swim a bit faster JL, we are getting very hungry.

No Bananas Foster for you!

I'll have to join you electronically.

I swim like a rock.

Good luck with your site.

What get up and go , you two have ! I hope all goes well . All my best. db

Thanks everyone!

No Debbie they wont get rid of us...we will just bring more of us to them!!!

i will be one of those little kiddies that will never leave this home and ill bring all my friends back with me ...lol

(awe bummer jl i was really looking forward to my banana treat....oh well Ill be happy with just the photo of you!!!)

Michelle

Great stuff!I wish you all the best in your new website,I am sure that it will go from strength to strength.
Take good care.
Gordon

great Idea guys

Weldone ladies! Just had a look at it... very good! Best of luck with it!

Thanks guys...thankyou so much for your support

wow ladies, just took a look, this lookds great---looking forward to checking back!!!! Good for you
Dcb

Congratulations Michelle and Renee! Way to go. Your forum looks awesome, and i think it will be a fantastic resource that you have created for so many down under, that wanted Aussie connections and local Aussie info. Absolutely incredible what you young ladies have done!

awe...thanks so much barb...couldnt have done it without you guys and all your support!!

we have a domain name too now which is [www.hdaustralia.org] just so its easier to remember!

Great job! Way to go!

So how's Aussie land doing?

well barb...i think its going well...im really happy that people are signing up...its been really wonderful to make stronger connections with people from australia...and get the extra support from a few visitors...its really lovely

i guess where i am at with it now is trying to make contact with services who work with families facing hd so they can help to share that we are there...which is a rather big task when i dont have alot of time and im leaving messages with people etc and hoping they get my messages and get back to me! But those that have have have been very supportive and encouraging about the forum so i am very happy about that

I think it will take time for people to hear that we are there but i am very hopeful that with time we will grow and become a place people can visit and get the support and information they might be looking for

I truly believe that everyone who has experienced hd, in all its different forms, has so much knowledge to share that it is rather priceless what one person can offer another

so anyway...thats my rave today......other than that Australia is getting rather cold!! well maybe not cold in comparason to the weather you guys get..but cold for us!

Love Michelle



Edited 1 time(s). Last edit at 06/02/2007 03:38AM by Michelle.

it is getting very cold michelle ...i was thinking today i dont think i could cope with snow type cold weather...i would never go outside and live as a hermit in my nice warm house

the site is going great guns and hopefully some of those services you have contacted will tell people and start putting links on their own websites

i know having our own aussie site was something we were looking for a year ago.....

Brain wave twiggy!! i will ask the association to put up a link on their site...gee you a clever chook...lol..



Edited 1 time(s). Last edit at 06/02/2007 10:42PM by Michelle.