Huntington Disease Lighthouse Families

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PREDICT-HD Study

Posted by ChiTom 
PREDICT-HD Study
May 16, 2007 03:25PM
Are there any studies that are looking for gene positive asymptomatic candidates. I thought Predict-HD was one but I have not had any luck contacting anybody. If anybody has any info on any studies please let me know.
Re: PREDICT-HD Study
May 16, 2007 04:27PM
Tom,

[www.huntington-study-group.org] I've been in the study at Emory for about 4 years. It's been extremely satisfying.

Will
Re: PREDICT-HD Study
May 16, 2007 04:30PM
COHORT is a new study for phd's and their while families, symptoms or no symptoms
dcb
Re: PREDICT-HD Study
May 16, 2007 06:48PM
The recruiter for Predict is Elizabeth Penziner at Iowa Univercity--she is out of the office till June but has other memebers of the group returning calls---her# is: 319-353-4292----You can let them know that Deb from Michigan gave the # I have been envovled in Predict for about 4 years now
Good Luck
DCB
Re: PREDICT-HD Study
May 16, 2007 08:20PM
Yes, my sister and I participated in one Predict HD study. They find a testing/ research site of your choice and take care of the accomodations. This year we did not participate.
Re: PREDICT-HD Study
June 04, 2007 08:01PM
I also took part in this in Edmonton Alberta Canada

I felt blessed to take part knowing I may

Help Future generations.............my 4 years are done

Soft smile

Anne
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