Hi Dawn - Did Jim see your message and respond? His personal email address is jjpollard*at*curehd.com if you'd like to direct your questions to him there. Jim
is one of THE most knowledgeable people on care for the HD patient in an
assisted living or nursing home environment! He has trained professional
caretakers and administrators in HD around the world.
Do you have a copy of the Physician's Guide to the Treatment of HD? The electronic copy is available on the HD Caregivers Web Directory (below) as well as some other excellent literature on caring for someone with HD.
People with HD do not adapt well to changes and moving your patient, as well as
placing her in a nursing home at the same time, will be a very traumatic experience
for her. You are to be commended for you care and attention to this patients
needs. My daughter had juvenile HD and lived 15 years after onset. Anyone who
goes out of their way to help someone with HD is an angel on earth in my book!
Jean & Kelly Miller
(in heart/in spirit)
Email: jemiller*at*tampabay.rr.com
HD-Zing: [
www.imagestation.com]
ICQ: ICQ#81225062
Huntington's Caregivers Web Directory
[
www.geocities.com]