HDSA got it right with this after notable misfires with outdated and erronous information. They will send free copies to health providers - if you give them contact information, something I normal don't do - but then the provider is on a mailing list for HD information from HDSA and Lunbeck which they would not get otherwise, so it is a win win situation for pHDs. I ordered several copies -by normzach - Huntington's Disease Support Center
Wondering if anyone has experience in using assistive communications devices to help pHDs and care givers with communication issues in advanced stages.by normzach - Huntington's Disease Support Center
Linda has been on Xenazine since 04/09 with no noticeable side effects. Was able the observe the benefits over the holidays when the Rx expired over the holidays leaving her a couple of days without the med until everything got back on schedule. Chorea ramped up within 24 hours and subsided again when she began using. Cost in the U.S. is definitely a question that should be addressed , especiby normzach - Huntington's Disease Support Center