ok alice... that is B_LLSH*T... DONT YOU DARE LET IT GO!!!!! ONCE YOU AGREE TO IT, ITS TOO LATE... ofcourse he offered to fix it... 1- his reputation would be badly tarnished 2- his insurance would whack him 3- a suit for wrongful medical practice will cost him... seriously you should just first call a lawyer, if you cant afford one LOOK UP 'LEGAL AID', in your area and call them. orby skmf12 - Huntington's Disease Support Center
ohhhhhhhhhh is it your birthday then? i drink to your special day, know that we love ya..by skmf12 - Huntington's Disease Support Center
you know what maggie, i am going to finally ask a question that i've been too embarrassed to ask in the past, ok? what are you talking about with this folding thing and the computer... i dont understand, what is it?by skmf12 - Huntington's Disease Support Center
stevei, you know what? ....YOU TWO ROCK!....YES YOU DO.... your funny people, we should have a regular weekly column called: 'STEVE and MARSHAS EXCELLENT ADVENTURES'.... have fun, find a cold drink with alcohol in it, and phone home regularly. (no i meant here, phone here)... oh and can you hammer out a cure while your at it?by skmf12 - Huntington's Disease Support Center
jamie, much love for you during this painful time... someday i hope the heartache lessens, she will never be forgotten, with you to keep her memory alive.by skmf12 - Huntington's Disease Support Center
stevei i dont personally mind there being different forums.... in some ways it would be good to have, so that members have a place to get away to, when this one is going through 'personal difficulties'... (i. e. fights and disputes) anyway, so i need to re-register as a new member? from what i've seen, i really like it, its up front in your face with issues. which is something thatby skmf12 - Huntington's Disease Support Center
HEY, PLEASE COME BACK AND CHECK IN... AGAIN AND AGAIN AND AGAIN... ps... be happy... we are...by skmf12 - Huntington's Disease Support Center
wow dusty, you must be so proud...by skmf12 - Huntington's Disease Support Center
cbreeze, cry...it hurts... you made the appointment, but you could change your mind if you feel that it is not imperative that your child have this news right now. on the other hand, if he is really having issues, perhaps he needs to go. if not, maybe he could have a couple more years of reprieve... but understand, it is a lonely, sad, scary road, and sometimes you need to talk aby skmf12 - Huntington's Disease Support Center
i wonder if medicare or any of those insurances, will pay for the baths that have a door on them? i've seen the commercials, and they say they give financing... anyway its suppose to be very safe, and they get to sit in a higher position and it doesnt feel so scary... hmmm do we have a section on here with pictures of useful equipment? well anyway, at the very least a person who is scared cby skmf12 - Huntington's Disease Support Center
they are unclear about how many we need eric?by skmf12 - Huntington's Disease Support Center
AWW STEVEI, that was just wrong... why did u do that to me? my heart breaks again.. its not fair that so many beautiful people, should have such pain... okay i will get a grip... yes that was lovely, he was lovely...by skmf12 - Huntington's Disease Support Center
DURRAN, you have more years than you think, use them wisely... live your life to the fullest, perhaps there will be a treatment or a cure in your life time, perhaps not... BUT... if you live your life to the fullest, you will choose happiness over misery... how do you want to live? time enough for heartbreak later... its hard news, its unfair, it really sucks... feel it, cry over itby skmf12 - Huntington's Disease Support Center
this is not unheard of barb, fortunatly this is often the case with alot of foundations... there may be someone with a dear one or themselves, who have an illness, and they will do whatever it takes, and give whatever they have... often secretly... my mother worked for a 'very' wealthy family, that gave to many causes anonimously. they never took credit for those, and no one knew the depth ofby skmf12 - Huntington's Disease Support Center
SIMON, thats so true, if your not taking donations, it would be so wonderful to have a clearing house to temporarily assist phd's thru crisis situations and interim spans between income and insurance...by skmf12 - Huntington's Disease Support Center
yeah fred... DITTO on that... W O W..... i mean, if its true, than thats good... ..amazing... but definitely good....by skmf12 - Huntington's Disease Support Center
well eric, your a great moderator, you're trying to engage people in your posts, what you've said is true. we do need to get involved... if you did your 'topic of the week', would readership be up? maybe you could post not just script, but sometimes video or photos incorporated with the discussion you could have some political discussions as it pertains to hd, and maybe we would beby skmf12 - Huntington's Disease Support Center
"Man, I hate it when people resurrect old posts.".... D I T T O on the other hand, glad to have you SIMON.. DONT YOU DARE VISIT AND NOT COME BACK AGAIN HEAR ME DUDE? welcome... the community needs to hear from people like you. next time would you do a short article and post for us giving us some salient points about your work? OH AND STEVEI... STEVE YOU LISTENING? i was tby skmf12 - Huntington's Disease Support Center
hey troopie, WE ARE HERE FOR YOU BABE !!!! this is it, you know that, thats why you came back. when you need to escape to get unbiased, unjudgemental, and even anonimous feedback, you have a home here... getting out in the open certain worries, and hearing similiar experiences, and even crying when necessary, this is the place. even when i dont have much to say, i check in everyday aby skmf12 - Huntington's Disease Support Center
ummmm yeah granola at stacks is proposterous, just sayin... i'll take the potatoe, bacon, mushroom, cheddar skillet please, hold the onions...by skmf12 - Huntington's Disease Support Center
O M G!!!! WHAT STACKS? redwood city or san mateo? DUDE, i eat there all the time!!!!! oh and what airline, and what airport? i work at sfo you know... united airlines (soon to be uninental) LOL... dont tell me, i dont want to hear any complaints, i'm way too stressed out as it is.... well cant wait to hear the report, i have mixed feelings about HOPE... as a novice to HD, HOPE scareby skmf12 - Huntington's Disease Support Center
ohhhhh ok, good article...(thanks marsha) is it working? that newspaper article makes alot of sense, and explains alot, still its good to know there are people trying to figure ways around all this...by skmf12 - Huntington's Disease Support Center
eric i totally see where this is true, can anyone say, what the plan is? ok i know.. go read marsha's article... i'll be back...by skmf12 - Huntington's Disease Support Center
muahahahaha.... okay eric, i'm pretty sure i can take em in a bar fight, its on a mensa test, that really counts with these people, and i am just a tad bit short in that area... LOL... one look at me at the door, and i'm headed for rejection..... i'm quite sure marsha would have to pretend to not know me... (reputation and all that)...by skmf12 - Huntington's Disease Support Center
yeah, but its humiliating to be face first on the curb LOL...by skmf12 - Huntington's Disease Support Center
oh thanks eric.... I LIVE FIVE MILES FROM STANFORD.... im right between stanford and ucsf, both doing great research on huntingtons, thats why i feel a little nauseated by the whole, 'its not going to go anywhere' feel of the article... ok, well i'ld invite marsha to do lunch, but i'ld rather she got some good inside info for us... oh by the way, you've been posting really good comby skmf12 - Huntington's Disease Support Center
are we screwed basically? SPONSORED BY: Desperately Seeking Cures How the road from promising scientific breakthrough to real-world remedy has become all but a dead end. Breakthroughs and Breakdown Drugs that changed lives, for better or worse By Sharon Begley and Mary Carmichael | NEWSWEEK Published May 14, 2010 From the magazine issue dated May 31, 2010 "From 1996 toby skmf12 - Huntington's Disease Support Center
oh mango, i fill the same way, but 'what the hell'?... now that its out there... you do the worrying and maybe its cool that your husband has something to believe in huh? ...dont hurt over this mango, k? it'll be ok...by skmf12 - Huntington's Disease Support Center
eric, that was well said, and i agree on all points... we can only try to be self informed and not pass on inaccurate information. after that, there will always be occasions out of our control... thats why hdac is such a safe and important place for the community.by skmf12 - Huntington's Disease Support Center
well i dont think we can do anything about this anyway, and i guess if it gives anyone any UNDUE HOPE, well... hope never killed anyone, so i guess i cant be hating on this news piece, its unfortunate and than again, maybe not... we are lucky we have so many dedicated and earnest people trying to tackle this problem, and i am so grateful to all those who have put their heart and soulby skmf12 - Huntington's Disease Support Center