Will, I am so glad to hear you are doing so well. I copied your letter and sent it to myself to show my husband, as he respects what you write, and this has really helped me with all my creatine, and pill pushing I do. Thanks, Edwinaby Edwina - Huntington's Disease Support Center
Well, I ordered the neotine A week ago from the neotine store. Well no neotine. I sent them an email, no response. I see it is listed out of stock again. Anyone with any updates. Edwinaby Edwina - Huntington's Disease Support Center
I ordered my neotine (creatine on the 20th) Now I am hoping it was shipped as it is now the 27. Ground shipping, maybe the cause. Hopefully it will be here soon. Edwinaby Edwina - Huntington's Disease Support Center
I ordered the packets yesterday. I order theses because they are easy for my husband and he doesnt have to measure them out at work. As it is I pack him a ton of pills every morning. We just bought a 7 day pill case. I really need to start using it.by Edwina - Huntington's Disease Support Center
Hi In regards to wheel chairs.. Sometimes local groups have them and will donate them to you or loan them to you at no charge, like Elks or one of those. Other sourses I have seen is www.craigslist.com , sometimes people sell them on this or give them away free. another sourse is www.freecycle.com . This is a green group. You pass things along free . No charges, it keeps stuff oby Edwina - Huntington's Disease Support Center
I guess it means I mine my P's and Q's while writing anything on the web, that might come back and bite me. Anyway I only brought it up because it was interesting to find it on the web. I guess thats what the WWW is all about, geting out informaton. :-) Eby Edwina - Huntington's Disease Support Center
I just watched her walking video , this made me rather sad. It is clear she is delusional and not treated.She does have HD and she IS symptomatic. Maybe we could look at this book as a testamony to her illness. There have been a number of Arthors who have a mental illness, who write books. I perfer not to judge her and will reserve my thoughts. Maybe there is away to reach out to heby Edwina - Huntington's Disease Support Center
Hi all , I was looking to see if the Neotine store was selling creatine and I typed in Neotine store. Well of course that came up along with, My question asking about the Neotine store AND yes some of your answers too. I guess I just need to be careful what I write so it doesn't someday bite me back. :-) Anyway The Store products are still out at the Neotine Store and mby Edwina - Huntington's Disease Support Center
Eric, I feel it is important to have a person like you and the many other people on here , who express there feelings, regardless of being good or bad. This disease is not a simple one. It take us, our lives, loves ones. It has no mercy. It takes our children. We may need a day to express our feelings on here. Someday we just may get angry, we may express ourselves to strongly. I do thisby Edwina - Huntington's Disease Support Center
Oh , I just was wondering if dimebon is available now or just in the trails? Thanksby Edwina - Huntington's Disease Support Center
This was written so well. I want to thank you for all your time and effort put into this, and all your past works also. When I read your information, you post it gives me hope. Thank you, Edwinaby Edwina - Huntington's Disease Support Center
Here is my experience.. My now husband told me within the first few weeks of our relationship. He told me his mother had hd. I had no clue what that meant, but I looked it up.. It really did not scare me away.. I fell in love with him, not really ever talking much about the subject. He is at risk for Hd. There are problems , I feel are related to Hd, that have come up . He takes suppliments,by Edwina - Huntington's Disease Support Center
Will Thank You, I wrote them an received and email, saying they were temporary out of stock , try back in a few weeks.. So is there another company to order premade packages...?? These work so well for us. thanks Edwinaby Edwina - Huntington's Disease Support Center
I just tried to order Neotine and the website would not allow me to order even 1 box. It kept saying, it did not have the quanity to send. Does anyone know if there is a [problem ordering creatine from the them My husband perfers this as it is easier for him to take at work. Thanks, Edwinaby Edwina - Huntington's Disease Support Center
Marsha , Thank you for the information you sent me. I want to respond to JL and Eric, Yes this is a private subject, but sometimes you have to address it. I am really not confortable as you stated addressing it here, but I do want to say Thank you for your input on the subject. I just want to say, that I am coping and things are ok as of now. Thanksby Edwina - Huntington's Disease Support Center
Ok I feel very uncomfortable asking this question but I need to. Is is common to make poor judgements when it comes to sexual issues . I can not explain why I am asking this, but I need to know. Thanksby Edwina - Huntington's Disease Support Center
My question is can you take creatine mixed with coffee or tea or other hot liquids?by Edwina - Huntington's Disease Support Center
I am wondering , if you can check the phase 2 study on creatine, maybe there is some information.by Edwina - Huntington's Disease Support Center
Congratulations... Life is meant to live .. Live it.. Enjoy your life together. Edwinaby Edwina - Huntington's Disease Support Center
I think this happens with harmones... I think it happens with with non phd's. Allot depends on the person and midlife . If we were active and intrested before, in midlife , it doesn't make us less interested and it even may increase or degree depending on each of us as indidiuals. I would think if you pratic safe behavior in your sexual life , being a phd or a non phd and are not harming youby Edwina - Huntington's Disease Support Center
If I took red meat off the table.... I would be ok with it, as I perfer Chicken and fish....but I don't think my husband would be too thrilled.. I keep it down to once a week now.. He loves his steak. I understand red meat has creatine in it..by Edwina - Huntington's Disease Support Center
Trey, Welcome to the lighthouse, it has helped me. My husband is at risk for Hd. Things are not always easy, but always remember you have my thoughts and we all share something in common here, we are affected by Hd in some form. I research online all the time looking for answers. I do believe there is hope, and we all must do our share in some way. Thank you for letting more people know aby Edwina - Huntington's Disease Support Center
Happy Valentines Day to you and to Everyone!!!by Edwina - Huntington's Disease Support Center
I say it hurts... me.. and I don't have Hd. It makes me feel sad to think about it, and maybe losing the man I love to it.by Edwina - Huntington's Disease Support Center
Dusy, Go to another doctor.by Edwina - Huntington's Disease Support Center
Eric, Please come back. Sometimes being upfront and honest about how you feel hurts, but you have feelings because you have been in a long term situation with your wife and I know I miss your writings as I have been reading and allot of information you have wrote on here has helped me. SO PLEASE COME BACK.by Edwina - Huntington's Disease Support Center