As far as a spokes person could we just adopt someone? Maybe call the national inquirer and tell them that Ozzie Osbourne was in my HD Dr's office. And while I can't be sure of his diagnosis he certianly displays the classic symptoms of HD, slurred speach, odd gait, anger outburst, and inappropriateness. We could further the rumor that he is not on drugs, but pretends to be because being a drugby MRO - Huntington's Disease Support Center
Just to clarify, drugs will be part of the solution but not the drug companies. HD researchers are through the process of elimination testing drug compounds and mixtures to find something that works. Drug companies are not going to do this for a relatively unknown disease, they may back researchers with funding but, with few exceptions, they are not going to go all out with a dedicated staff toby MRO - Huntington's Disease Support Center
Kats, Sorry for the delay in seeing your message, I have been reading posts but not responding, although I have a lot to say some post have been tooooo heated. Eric thanks for responding for me. We have a bueatiful healthy baby boy born Nov 17th. So far things are going well although it is tough being almost the sole parent. My husband has handled the stress very well and shows litby MRO - Huntington's Disease Support Center
I don't think drug companies are the answer to a cure, eventually they will be but not until researchers discover what exactly is that causes the HD gene to fail, how to reverse it and how to stop it. There is so much that they don't know in order to find a cure. At this point drug companies don't have much to work with. I think money might be better spent investigating the gene itself to discby MRO - Huntington's Disease Support Center
Hi Stacey, I am formally from NJ. Moved to get out of the rat race and high cost of living. Not long after the move my husband was diagnosed after years of my suspecting. I am now in INDY and we are much better off here than NJ. One thing that NJ should have is a no-destatute law protecting the government from spending down every asset once a patient goes into a nursing home. It is not mby MRO - Huntington's Disease Support Center