Suezq, nice chatting with you this evening. Glad to hear things worked out with Ray and all. sorry to hear about your grandson. I will keep him in my prayers. keep positive, Hug and love the little guy and remember the power of human touch =) >>Lpby lpbp011 - Huntington's Disease Support Center
Hi Kay, I was just researching this my self. Here is a link to an article on lighthouse which has a means of buying it. Start there and see if they can help assist you with locating the importer for Oz or buying direct. Good luck and all the best. rgds, Lpby lpbp011 - Huntington's Disease Support Center
Hi Friends, I wanted to share with you an amazing thing I recently accomplished this past weekend for charity. I am not at Will's level of competition but I did complete a 170 bike ride for Multiple Sclerosis charity event, which brings me to my next point. Are there any fund raising events in which to particpiate to raise money and awareness for HD ? Where can I find them ? When I was onby lpbp011 - Huntington's Disease Support Center
Hi and thanks for all the info. Will, sorry I missed the creatine right in the beginning... trying to read and type to fast. When do you take a the supplements. I have a creatine powder that I take in the evening before bed and in the morning on an empty stomach with my fish oil and Flax seed oil. I take my others supplements at lunch time. Any preferences on times to take the supplements ? cheeby lpbp011 - Huntington's Disease Support Center
Hi Will, do you have any recommended web sites that you buy these from or do you go to GNC or vitamine shoppe ? Where should i get these supplements ? Also, i did not see any creatine in your supplements, is there any reason why you don't take that as well ? thanks in advance, >>Lpby lpbp011 - Huntington's Disease Support Center
Hi JL, its awesome to hear that situation is behind you. Congrats on your Freedom day and Cheers to your "new beginnings. Enjoy each day and relish in its beauty, " Life is good" . Carpe Diem!!! and god bless. >>LPby lpbp011 - Huntington's Disease Support Center
Hi All, I was wondering if someone has a definitive concise list of supplements they can share with me on the recommended dosages ? I have been reading thru the messages but am not sure what i should take and why or what else i should be avoiding ? Any and all help would greatly be appreciated. Thanks in advance...>>LPby lpbp011 - Huntington's Disease Support Center
Hi Alan, my name is LP and I live in the US and have been trying to get insurance as well but am concerned with applying. You mentioned that Met life knew of your at risk status, Was this before or after you filled out the paper work ? Did you have any mention of potential HD in your med records ? I am looking to get my DI and LTC but am concerned that I have a small reference in my records aboutby lpbp011 - Huntington's Disease Support Center
Hi JL, first i want to send my heart felt hugs to you . You are full of life and strength and if anyone can battle and win, its YOU!!! Please advise on how things with legal help work out. Have you consulted the ADA for a list of attorney's that may support your cause in your local area ? You were there for me when I first came to the chats and postings with so many questions and concerns and talby lpbp011 - Huntington's Disease Support Center
Awesome accomplishment!!! you are truly an inspiration for all. This only goes to show that age is only a state of mind. C'mon and share your secretby lpbp011 - Huntington's Disease Support Center
Hi PC, I am in a similar situation, however i have not had the test yet. I am still contemplating this. Welcome to the group and I hope it helps you as it has me. Talking with everyone in chats, reading and posting helps to not be in this alone. good luck and talk to you soon. -Lpby lpbp011 - Huntington's Disease Support Center
Hi Barb, I am new to the site and have been doing quite a bit of reading. I just wanted to tell you that your words and insight as many others as well have been inspriational to me. Keep positive and strong and focus on happiness as your journey not a one time destination. There are many options and the adobe 6 and 7 is good one. Also, there are sites like www.youtube.com to keep in mind as itby lpbp011 - Huntington's Disease Support Center
thanks for the info, yes the reference is definitely in my records i was looking thru them the last time I was in for a stomach virus and being treated. It was to my surprise that she even noted this so I am not sure how to handle this going forward. I am not asking anyone to commit a wrongful act but the info is not definitive and is family legend which i can't solve due to the fact of being esby lpbp011 - Huntington's Disease Support Center
Hi MRO, Dave, JL and Maggie, This is great info, here is my situation and maybe you can lend some adivce. I mentioned in casual conversation a couple years ago to my doctor that my biological father died of an accident and that the i believe that my paternal grandfather died of HD. However, after doing some recent investigation this is not definitive and i am not sure how to approach the doctoby lpbp011 - Huntington's Disease Support Center
Hi Steve / Barb and Everyone : thanks for your overwhelming replies and advice. I appreciate all the feedback and am feeling a bit better. I do however have a bit of a issue as I mentioned to my primary care physican in convervation that it was believed that my paternal grandfather died of this and it is referenced in my record. Will this prevent me from planning for the future or do I have optioby lpbp011 - Huntington's Disease Support Center
Hi Barb, and thank you for your reply. I am in a bit of bind with this as I mistakenly mentioned a couple years ago that i suspected that my paternal granfather died of this and it is in my records. Not sure what I can do, as I am not 100% that this is the case because I have been astranged from that family since birth and have no way to validate. My paternal father died from a gun shot wound atby lpbp011 - Huntington's Disease Support Center
Hi My name is Lp and I am a 36 yr old at risk and in desparate need of some advice and help. I am not sure who I can turn to and discuss my issues but it is slowly driving me crazy with anxiety. I recently went to the ER for dizziness and other symptoms kind of similar to brain pressure but the cat scan showed nothing and I was sent home. I can't explain why my head is feeling the way it is and fby lpbp011 - Huntington's Disease Support Center
My Name is LP and I am 36 with a wife and 3 children, 2 boys 7 and 5 and a little girl 3. I reside in the North East US. I am not sure if I have HD but have noticed a change in my head and starting to become sensitve to balance and judgement issues. It was said my paternal grandfather died over 40 years ago of HD. My father died at age 42, don't know if he had HD or had signs as I have been astraby lpbp011 - Huntington's Disease Support Center