Actually serequel is used sometimes (off label) to help with movement, it is actually an antipsycotic drug. The only thing that has helped the chorea for my husband is xenazine. The have to ramp it up slowley, but it has been the first drug to give him some relief from the constant movement, he is on 50g a a day. Sorry to say that there is little to nothing for the dementia, it is a part if theby Vicky - Huntington's Disease Support Center
So sorry to hear this and the others at risk. I know how devastating this can be and it just seems to go on and on. So sorry he has had to suffer so long. Praying for a peaceful transition for your Brother in Law and a cure for all those currently suffering and at risk! I think the answer is out there. SOMEONE has the key, and please know that we are supporting their efforts in every way possibby Vicky - Huntington's Disease Support Center
Your right noreaster. They deserve a lot of support and I didn't me to sound judgy! Best of luck with everything! I have not been in their shoes and really can't even imagine it. Vby Vicky - Huntington's Disease Support Center
Have to say I agree with djcloc. I don't see how that would give you any peace for you to find out if you are positive 10 weeks into a pregnancy. Even adoption or a negative test doesn't guarantee that you will have a child without some kind of terminal illness. I am sorry you are in this position, and I will pray for some clarity and peace with whatever you decide.by Vicky - Huntington's Disease Support Center
Denial is so much better than facing this fate. I personally love denial and would live in that state as long as I didn't have to take care of her and watch the decline. If she truly has HD and that is the change in her behavior, it won't get through to her whether YOU or HER family talk to her. She will get more and more symptoms if she is positive and all you can do is treat them as they cby Vicky - Huntington's Disease Support Center
I realize what a hard decision this must be for you and your husband. I agree with the last post-personally I think I would rather get tested myself first rather than finding out through a fetus that I was positive or possibly negative. Not judging you, just stating my opinion. My husband has HD and prior to knowing that, we tried for many years to get pregnant. Turned out I was infertile. I havby Vicky - Huntington's Disease Support Center
So very sorry. I know it must be so very hard for you and the feeding tube is really just a very personal decision. Praying for peace!by Vicky - Huntington's Disease Support Center
Short of sleeping in your own locked room, I'm not sure he would understand whatever "creative" things you can come up with. Some of the people get a little ego centric and not much empathy for other people's needs sometimes-sounds like that's where you might be in this journey. I would most certainly talk confidentially with his Dr. and YOURS. I would try to talk with him prior to hby Vicky - Huntington's Disease Support Center
So very sorry you are at this point. Sounds like you have tried everything that I would have suggested. Anything I could suggest would just be speculation as I can somewhat relate to the feeling of helplessness against this disease. I have had 22 years of an awesome partner, husband and friend, so I am able to separate that guy from what the disease is robbing us of. I know in my mind that theyby Vicky - Huntington's Disease Support Center
It is very possible you carry the HD gene on your dad's side. They would have to do a specific genetic test to find if that is truly what you have. You will need to get in with a genetic counselor first to be certain you understand all the information when your test is read. My husband had an MRI 2 years ago to rule out a stroke and the radiologist cleared him. No one ever showed him the MRI unby Vicky - Huntington's Disease Support Center
My husband has been having intermittent choking issues for 2 years or so, he was just diagnosed with HD in July of this year. He has had some help with speech/swallow therapy and has learned to swallow differently, not sure that is an option at your husband's stage, but just a thought. My husband initially said he did not want a feeding tube when the time came, but I think after researching itby Vicky - Huntington's Disease Support Center
Bless your heart. I have heard that the disease can cause "hyper sexuality" in some people. Not sure if he is on an antidepressant, but sometimes that can curb the appetite a bit!, You should discuss this with his Doctor, and please don't be embarrassed by this. I feel sure they hear this AND the opposite problem often. I wish you luck and totally understand your situation and how tirby Vicky - Huntington's Disease Support Center
Haven't heard of this being related to HD. Could be medications if he is taking some. Also could be his diet. Sometimes HD patients have swallowing issues and they alter their diets to mostly liquids and such due to that and don't really get enough solids to help his system kick in. Anything you ask here seems to be within limits, if it has to do with the disease or advise regarding. Still mayby Vicky - Huntington's Disease Support Center
I totally understand your dilemma. My husband was the most mild mannered human on the planet, until this wretched disease. He still is to some extent, but I understand the eggshells, not always certain what is going to set him off or when. Pretty much only directed at me for now and always something I do wrong. When he gets that way, I try really hard to just not take it personal and not arguby Vicky - Huntington's Disease Support Center
There was an episode of Scrubs (comedy) where one of the Drs. had to explain it to a patients family and was encouraging the sone to get tested...by Vicky - Huntington's Disease Support Center
I totally understand! You feel like you have zero time for yourself! They do often get upset when things are not focused on them. It's HD and they can't help it! I find also that my husband gets happy just as quick as he got angry with me, so I just don't take it personal and I have found a way to just not argue with him and do my thing! The schedule suggestion seems to work great and maybe yby Vicky - Huntington's Disease Support Center
Indeed it must be so frustrating and heartbreaking for you! I certainly understand the phrase "it's not his fault", but it isn't ours either! Seems like we get the anger and frustrations the worst. I am not sure what on earth I would do if my husband became violent, but again safety for you is KEY. You can't care for ANY of them if you are in fear. Hang in there and know I am prayingby Vicky - Huntington's Disease Support Center
Am I reading this right all three of your children have positive HD? I can not even imagine! I have 3 stepsons and 1 granddaughter at risk. None have been tested nor have obvious symptoms. I know the odds are against all three boys escaping this nightmare, I could not imagine going through this at every turn. Again bless your heart, I am praying for peace for you, I know it just must seem uby Vicky - Huntington's Disease Support Center
Bless your heart. This has got to be the worst nightmare for you. You need to be safe first and foremost! If he is violent you may have to help him find other living arrangements. Drinking is common for many HD sufferers, but if it causes him to be violent, you are not safe. He can not control much of his behavior, but you can not tolerate being afraid of him. Are you able to discuss this wiby Vicky - Huntington's Disease Support Center
Wow! How exciting is that! So happy for you guys. Seems like such a small victory to most, but huge in "our" world. Hope it continues to be a source of contentment for you to be able to provide him with home cooked options and he allows you to help him!by Vicky - Huntington's Disease Support Center
Ringing bells for me! This was so similar to my husband's behavior. His mother and uncle have HD, so when I started to notice this drastically different behavior, I knew this is where we were headed. The disease has totally self centered my husband, who was so incredibly selfLESS before the onset. I have had to get to the point where I just really pick my battles, otherwise I would be battlingby Vicky - Huntington's Disease Support Center
So sorry about his uncle. I understand his fear. I also know that as a caregiver, you will in some ways have it harder than he will. He has no choice but to go through what he has to go through. You however do, that is hard, because you so want to be there for him, but at times you will feel like running away so far that no one can hear you scream! Both emotions are normal! You will certainlby Vicky - Huntington's Disease Support Center
Zoloft from our regular MDby Vicky - Huntington's Disease Support Center
My husband is on Zoloft. It has worked since the first week he started it. He was given that by out family MD, who is familiar with Huntingtons. Dont know what part of Texas you are in, but December is way to long to wait. We are in Texas too. I wish you luck!by Vicky - Huntington's Disease Support Center
Texas Vicky 48 yo here-married to Dave (58 yo) 22 years. Dave was recently diagnosis (CAG 42). His mother and uncle both Cag 41. He has 4 at risk siblings (none have tested at this time) 3 at risk sons and 1 at risk grand daughter. Many symptoms: falls,swallowing, chorea,depression, anger, anxiety,OCD, facial contortions. On disability from work. His mother in assisted living-mostly apathetby Vicky - Huntington's Disease Support Center
Yanta, I have been married to my husband for 22 years. He was gene tested in July of this year. I am 48 and he is 58. His mother was found to have HD with a late onset about 15 years ago. You should be aware this is not going to be easy for either of you. My husband has spoiled me for all these years, paid the bills, hired contractors, filed our taxes, invested our money, had the health andby Vicky - Huntington's Disease Support Center