Thanks Mikee for the advice, and no you're not boring me! A side note: I went to the neurologist convinced I had HD which turned out I was wrong. But he did recognize some of my clouded thinking, fatigue, muscle spasms and asked if I snore loudly. I said "ya." He set me up for a sleep study and I do have severe sleep apnea (stop breathing every 2-3 minutes). Just started using the breaby bluedaisy - Huntington's Disease Support Center
Hello! My dad has severe issues with vertigo (he is mid-stage HD). Bridges make him nauseous (sp?). We walked the Mackinaw Bridge on labor day 4 years ago while he still had good balance and he seemed to lose his balance once we were well on our way (on the bridge). Swaying, talking, sick stomach, headache, etc.... He pushed through till close to the end (with his arms around my shoulder for balaby bluedaisy - Huntington's Disease Support Center
Katie, keep writing! It's theraputic and you do it well; your snippet from your blog brought tears to my eyes. Your insight on the importance of staying positive is amazing. It took me a long time to get there. Some days I'm not. Best of luck, and give updates on the big event! Be thankful you get get to make informed decisions.by bluedaisy - Huntington's Disease Support Center
Smoking; Free Radicals; HD "Accordingly, the neurodegeneration initially caused by gene mutation in Huntington's disease may be further worsened by free radical damage underlied by oxidative stress" Hello! It is my understanding that stopping smoking, at any stage, is beneficial. Although, It must stand to reason the earlier the better. Smoking introduces in high doses, aside fromby bluedaisy - Huntington's Disease Support Center
Welcome! Glad to see you found this forum in these early weeks of discovering HD in your family. So sorry that you are experiencing this. My experience with testing: In the first years of discovering HD in my family (which explained a few things), I knew I had to be tested, I just had to know. I just wanted the insurance first. Friends and family told me I was ridiculous for wanting to getby bluedaisy - Huntington's Disease Support Center
Yes, I am. Grateful for my kids, that was an unimaginable relief. Now I just to tackle my thinking. It's not over just like that. Still my closests(sp) family are either at risk or have it. I'm grateful, but still hard to understand.by bluedaisy - Huntington's Disease Support Center
Thanks! It's great to have motivational messages postedby bluedaisy - Huntington's Disease Support Center
Awesome project! I really hope it all works out! I posted the video and link on my Facebook page. That was a big step for me, sorta coming out publicly that this runs in my family. I don't care what peolpe think anymore. I just want to try to help build awareness. It is a regular disease; we are not a freakshow. I hate seeing people stare. Matt is brave! Best of luckby bluedaisy - Huntington's Disease Support Center
Amazing! It must be so refreshing to be able to sleep again. Sleep is so important to our health and specifically: brain function. You must be onby bluedaisy - Huntington's Disease Support Center
Thank you everyone for sharing your experiences. That is very interesting about untreated infections; she does have pain in her teeth all the time and has not seen a dentist in at least ten years (no dental insurance). She has medical and goes freaquently, so I think it would be beneficial to get her to a dentist. It is always good to have a reminder to enjoy the good times we are still blesseby bluedaisy - Huntington's Disease Support Center
That is interesting. You are brave, I can't imagine going throught the process twice. Thinking of youby bluedaisy - Huntington's Disease Support Center
Paula, Hello! I can't imagine what it must feel like to be at that point. You have to be very strong to be handling it with such strenght; it seems as if we are alone with this disease... I would love some advice, I hope it is okay to ask.... My sister has attempted suicide (several times though the most recent was nearly successful). She still talks about it occasionally and I don't know hby bluedaisy - Huntington's Disease Support Center
It's so good to have positive information about HD! It gives me hope for my family and every other family with HDby bluedaisy - Huntington's Disease Support Center
Hello, sorry to hear about your brother. What you have describe is very similar to my experience with my sister. In the past year she has been under severe stress (more than most with HD-she found out her chidren were being abused). This, regualr court dates, DHS, CPS, ect... her symptoms went from maybe to extreme. She still has good days, but during intense periods she becomes a different persoby bluedaisy - Huntington's Disease Support Center
Welcome! I am so sorry to hear about you troubles. HD is not an easy thing to accept: in any family. Getting tested is extremely scary. Results have so many implications. Please feel free to talk on this site. I am relatively new here as well, but have been reading for a long time. Everyone on here is very supportive, understanding, and open-minded. Great support system. Perhaps you could find aby bluedaisy - Huntington's Disease Support Center
Amazing story! Inspiring, we should all look to children and see their strength!by bluedaisy - Huntington's Disease Support Center
I know everybody is different when it comes to symptoms, but I am in disbelief at how fast my sister is progressing. A year and a half ago I would have told you with great confidence that my sister had NO signs of HD. After she was diagnosed with HD (47 CAG); I began to admit that she may have a few symptoms. I guess, now, that she had many mental symptoms for at least a decade. Anger, depressionby bluedaisy - Huntington's Disease Support Center
I apologize; re-read your post and see that you have called APS. So sorry...by bluedaisy - Huntington's Disease Support Center
Hello! I am so sorry for your troubles; simply can't imagine. I have seen my sister(HD+) struggle in court over custody of her kids. I first, applaud you for seeking out truth and understanding on Huntingtons. My sister's ex denies the disease, believing that her actions are all her fault. I wish he could be as open as you to try to understand the disease. First, you have to protect your kids.by bluedaisy - Huntington's Disease Support Center
Thank you, it really is a blessing. I am happy for you, your husband, and you baby!by bluedaisy - Huntington's Disease Support Center
Hey! new here but reading old posts. My grandma hid HD from my family as well. I grew up crying thinking one day I would go crazy. ( I only knew that my grandma had refused an aoutopsy after grandpa killed himself: they thought he had a "condition;" 20 years later after my dad was sick we found the letter from Gramps doc. stating he most likely had HD; grandma never told anyone) But nevby bluedaisy - Huntington's Disease Support Center
Thank you for your reply. It is so nice to have a place to ask the questions nobody else seems to understand. I find a great comfort in knowing that others have expeirenced similar issues.by bluedaisy - Huntington's Disease Support Center
Hello! I am new here as well, but have been reading the inspiring stories for a few months. I am 32 with two children. When my sister had her kids taken from her, as a result of her declining mental status, at the age of 34; I knew that I had to get tested. She doesn't understand why her children can't live with her (even though she is very sick and has constant seizures). The HD has taken her abby bluedaisy - Huntington's Disease Support Center
My grandpa killed himself in 1985; it was a mystery then as to why he was having the problems he had. Then after my dad was finally diagnosed (2005; symptomatic, then test confirmed) the family found a letter from my grandpa's doctor (from 1985) that said he most likely was experiencing Huntington's Chorea but they could not know for sure because he didn't have any biological family history to coby bluedaisy - Huntington's Disease Support Center
Curious... I was tested and my CAG's came back with 17 and 18 (from each parent...) I know what this means, but I am scared that somehow they messed up my test. I have been petrified, for years, to even have hope for the possibility of not having this disease and now I can't believe my results. I twitch, lose my balance, have moments of unexplained anger, stumble over my words... I feel crazy.by bluedaisy - Huntington's Disease Support Center