I agree!by Paula B - Huntington's Disease Support Center
Welcome. We have a lot of new people posting recently. I am so glad.by Paula B - Huntington's Disease Support Center
Good luck.by Paula B - Huntington's Disease Support Center
You have such an incredible, beautiful family Maggie. You must be so proud of your sons and of Tony. Thank you for sharing the story.All of you are so amazing!by Paula B - Huntington's Disease Support Center
I'm glad you see an improvement.by Paula B - Huntington's Disease Support Center
Welcome. I know that many people have tested confidentially and/or anonymously. Good luck.by Paula B - Huntington's Disease Support Center
Maggie, I know now why you and Tony have done so well, it is your sense of humor.by Paula B - Huntington's Disease Support Center
Take a deep breath. Many people have thought they were symptomatic and tested neagtive. Others have tested positive and have coped very well. Many people have gone through what you are going through right now. It is a very normal response to a very stressful and shocking situation. Given the abuse you suffered at your father's hands, your stress be even more than others. If you can, I would sby Paula B - Huntington's Disease Support Center
Reading Liz's post and your post, I now understand much betetr what is going on since your testing center does not work with insurance and you didn't want to go the insurtance route. I'm also glad to hear that the neurologist is very experienced and trustworthy. It was just such a different procedure than that used at the Center that I went to.by Paula B - Huntington's Disease Support Center
I'm sorry to hear about your results and glad you are going to be proactive.by Paula B - Huntington's Disease Support Center
I'm sorry to hear of your clinical diagnosis and of all the stress you are going through.Where is the Hereditary Disease Neurological Ceneter? I'm just curious. Because the HD Ceneters of Excellence include a genetic test in the prorocol for definitve diagnosis now that it is available. Ypu received many good answers and great advice.by Paula B - Huntington's Disease Support Center
Take a deep breath and take one day at a time. He may have HD and he may not have HD. As Shar said, it is a good idea to get your insurances in order before you consider having him evaluated for HD. There is a lot of information on the main page of this site about testing and preparing for testing. Many people will respond to your message and tell you what they went through when they thought theyby Paula B - Huntington's Disease Support Center
Very interesting. It goes along with what some researchers have been saying that the damge in the brain of HD humnans has been ocurring for 10-15 years before classical onset.by Paula B - Huntington's Disease Support Center
Welcome back. Stop in whenever you want to.by Paula B - Huntington's Disease Support Center
Welcome. Good luck on Saturday. If you have a CAG count in the HD range you will develop HD before you die. However, that does not mean you have HD now. The doctors at my clinic use a neurological and neuropsychological assessment to diagnose the actual onset of HD. You could also have a CAG count in the Gray range, which means you may or may not develop symptoms before you die.by Paula B - Huntington's Disease Support Center
Welcome. You have come to the right place. You have many people here who can help you and support you. You have many good years ahead of you. Paulaby Paula B - Huntington's Disease Support Center
Jim, thanks for stating this important imformation about nursimng homes for families. You worded it very well.by Paula B - Huntington's Disease Support Center
I'm glad she is doing fine and is safe.by Paula B - Huntington's Disease Support Center
Maggie, I just read Jason's posting. What an Amazing family you have! His posting is wonderful. You and Jason are both great writers! Tony is an amazing man! Thanks for the update on Tony and Thank you for sharing your fanmily's journey with us. Paulaby Paula B - Huntington's Disease Support Center
I, too met Phil Hardt, and he looked fine to me. However, I did not know him before the injections, so I have no idea if they helped or didn't help. However, I do trust Marsha's advice.by Paula B - Huntington's Disease Support Center
Barb, Thanks for your post. It helped me a lot in non HD related ways. Thank you. Paulaby Paula B - Huntington's Disease Support Center
Happy Birthday Eric!by Paula B - Huntington's Disease Support Center
Welcome. It is an adjustment to find that you have the gene. I do agree that itit is imopiortant to live your life as fully as you can now and enjoy your son and husband and liofe now. you may have many productive years ahead of you. there are also good suggestions for living a healthy life on this site called the HD Triad.by Paula B - Huntington's Disease Support Center
The caregiver's Handbook is excellent!by Paula B - Huntington's Disease Support Center
Thanks KT, this is a Great Idea!by Paula B - Huntington's Disease Support Center
Alice and Ray, That is beautiful!by Paula B - Huntington's Disease Support Center
What a beuatiful letter.by Paula B - Huntington's Disease Support Center
Welcome. there is a lot she can do to stay as healthy as she can as long as she can. There is information on the main page od this site about licing with HD and one of our posters, will, has lots of information about what he does. Regular, daily excercise is helpful. Also, there are some supplements that some people find useful.by Paula B - Huntington's Disease Support Center
You can have symptoms before any changes show up on your MRI. You do not get a hole in your brain. Brain cells die and are damaged and the changes eventually show on an MRI. People have symptoms long before the MRI shows a change. Is your doctor a speialist in HD? IF not, you need an HD speialist. They mneed to do a baseline Neurological assessmnet and a baseline neuropsynchological assessment. Tby Paula B - Huntington's Disease Support Center