Has anybody went to Dr. Phil and asked him to have a show with a few of us explaining our disease? Then have him to get viewers to donate for our cause? I really am thinking doing it. My husband now makes me stay upstairs, he wants nothing to do with me. He says I should be in a mental hospital in front of my two children, I know I need to leave him but I am stuck here. If I move I only haveby Heidi - Huntington's Disease Support Center
Hi I am 44 with a cag count of 45, I think the first thing I noticed was forgetfullness and my stubling and losing my balance. I think this has been going on for 2 years, with severe depression and crying all the time.by Heidi - Huntington's Disease Support Center
Happy Birthday Len It is graet to hear this, I needed this right now!by Heidi - Huntington's Disease Support Center
Hi i have hd, cag count 45. I noticed when I got off the route that I usually take going to my brother, it really scared me. this is a 5 hour trip for me, this year it took 7 hours. I go home to my brother's at least once a year. This year I took the wrong exit in a very unformelar part of town. Which this part of town was where i was reaised until we moved to WV, when I was 15. I neverby Heidi - Huntington's Disease Support Center
I do know that I was working two jops, my husband hasn't worked for 2 1/2 years. He thinks he is disabled but has never applied. So when I had to quit working we had no income comming in at all. This is very stressful. This stuff is very difficult to understand. The called me and told me that I was approved, disability I have to wait 6 month from the last day I worked, which was 12/31/07.by Heidi - Huntington's Disease Support Center
Hi, I quit work 12/31/07 because all my doctors insisted me not working. In January and February I attended Beacon Outpatint Therapy sessions. I applied for SSI and Disability in February 2008, I actually got my first SSI payment in April 2008. They told me that I would recieve SSI until my Disability clicks in, which is in June 2008. I was told that they don't turn down anybody that has HD.by Heidi - Huntington's Disease Support Center
Nicole I am sorry about your results. I have only found about my results in 12/07/07. I am realizing that I don't hate God anymore. It took me a couple of months and theraphy really helped me. Mine is 45. This is really hard for all of us. But I have 2 beautiful children so I can focus on doing the best I can do for them.by Heidi - Huntington's Disease Support Center
Nicole I am sorry about your results. I have only found about my results in 12/07/07. I am realizing that I don't hate God anymore. It took me a couple of months and theraphy really helped me. Mine is 45. This is really hard for all of us. But I have 2 beautiful children so I can focus on doing the best I can do for them.by Heidi - Huntington's Disease Support Center
Hi I am new to everything. Is it hard to get on the chats that are going on here at the Lighthouse? Heidiby Heidi - Huntington's Disease Support Center
Hello, Thank you all. I really was needing somewhere to talk to and not get in trouble for what I am saying or doing. Sometimes it is really hard to get all the support that you really need. I am looking forward to doing some chats. Heidiby Heidi - Huntington's Disease Support Center
Great Video!!!!!!!! I know exactly how you feel. I have 2 kids. It really breaks my heart too. keep your chin up. Heidiby Heidi - Huntington's Disease Support Center
Hi I am on the generic brand of Haldol. I haven't had any Psychotic episodes yet. My head was jerking alot and she put me on Haldol. I have been feeling like a zombie. Very tired all the time. I am going to call her tomorrow. Thank you for your advice. Heidiby Heidi - Huntington's Disease Support Center
Thank you I am on Metformin 500mg, twice a day, Effexor XR 300mg per day, Haloperidol .5mg twice a day. I just started taking the Haloeridol, I have only been on it for 3 weeks, it has calmed me down , my head wouldn't stop jerking.now it doesn't move as much, but it still moves. What kind of meds are out there? What is SSRI's? Are all of you taking everything that is listed on the Ligby Heidi - Huntington's Disease Support Center
Hi I am 44 years old. I have 5 siblings all brothers, One passed away at the age of 26. My CAG count is 45. My mother was diagnosed in 1998, she passed away in 2000 at the age of 64. My mom was in 2 mental hospitals and in a nursing home. My father gave up on my mom and divorced her. I stayed in WV with my father and brother, Walt, the one that has passed. I am the only one showing any sby Heidi - Huntington's Disease Support Center
Hi, My name is Heidi, I am 44 with a CAG count of 45. I just been diagnosed in December 07, 2007. My mother was diagnosed in 1998, she died in 2000. My parents were divorced so fast. She lost sight of her self. She ended up in two mental hospital and one nursinghome. Poor woman wasn't diagnosed until 1998, she passed away in 2000. She had 5 children, 4 boys and me, the baby of the familby Heidi - Huntington's Disease Support Center