4 days until my results day and believe me i'm counting down the hours! Think it's deffo a good thing that i'm working for the next 3 days, but then wednesday night...am I honestly supposed to be able to sleep??! We'll see xby Gemma - Huntington's Disease Support Center
Hi bd. I know excatly what you mean with finding humour in things. My mum's in the later stages and does all sorts of embarassing things, e.g. farting, burping in the supermarket etc!! On the one hand i'm cussing her because it's so god damn embarassing and then on the other hand I find it absolutely hilarious!! Get my results on thursday....so scared :-(by Gemma - Huntington's Disease Support Center
I saw a genetics counsellor yesterday who was so lovely and understanding. Cut a long story short, yes i'm finally being tested, I can't believe it really. With my mum being pretty ill i've not really considered myself, but what with the future ahead of me and wanting to start a family I now feel as though I need to know. I've got so many emotions running through me...how do you prepare for suchby Gemma - Huntington's Disease Support Center
I know it seems like i'm making ait of a 'brash' decision but i've decided that it would be unfair to bring a child into this world knowing already that it would have a 50% chance of being terminally ill. I cried myself to sleep all night last night thinking things over, but actually I think it was a good thing. It allowed me to come to terms with every-thing abit easier. I already have an appoby Gemma - Huntington's Disease Support Center
Thanks Wes. Take Care xby Gemma - Huntington's Disease Support Center
Thankyou so much to Zach, Maria and Marsha for your posts. I want a family so much, I never anticapated the thought of not having children- like for most people it is the natural progression that we all hope to go through. Growing up I didn't for one minute think that this horrible disease would take away my beautiful mother. Physically she is still here, but mentally she is not. If I was to hby Gemma - Huntington's Disease Support Center
Thanks for your reply Tracie. I know that there is alot of thinking to be done, and I can understand why people might be angered by my post. So much goes around in my head, one minute I am certain that I cannot have children and then in the next minute I have other considerations. I get upset every single day about my mum. I have an appointment with a genetics counsellor next month, hopefully sheby Gemma - Huntington's Disease Support Center
Hi I am Gemma, 26, and live in the UK, My mum is 48 and has Huntington's Disease. She was diagnosed approximately 10 years ago. Times have been hard with my mum trying to take her life on 3 occasions because of the disease. However life now is alot better with my mum working part time with me (I have a great boss who allows her to work with me) My mum now has a sense of worth again and is alot haby Gemma - Huntington's Disease Support Center
Dear All,I have only just registered with this forum and first of all i'd just like to say that my heart goes out to all of you that have Huntington's Disease within your family- and what strong admirable people you all are.I am 26 and have been with my fiance for almost 5 years now- I am truly blessed because he is so wonderful. My mother is 48 and has huntington's disease and is very much battlby Gemma - Huntington's Disease Support Center