Hello All! I haven't posted in a while, but I've been checking in regularly. Since testing positive in March, my mother was admitted into an acute care center. It's been especially hard because I can not have contact with her because she gets so agitated when she sees me or my brother. I've been working with a social worker for the past six weeks and together we have contacted hundreds ofby Nicole77 - Huntington's Disease Support Center
I received my positive results this week at UCLA (CAG 46) and the neorologist stated repeatedly that I have NOT been diagnosed with HD, nor have I received treatment for it in the event I'm asked on an insurance app. However I'm not taking his word for it as I chose to take preventative measures in testing under an assumed name. I plan on taking the risk and getting the insurance I need but Iby Nicole77 - Huntington's Disease Support Center
Thank you everyone for your supportive advice and it's all so true. I lived more life while I was waiting for the results (going to beach, enjoying friends and family) than I had the six months prior to getting my blood drawn. And that's what I'm going to continue doing now that I know the results are positive. I felt like I was exhibiting symptoms before but now they've disappeared. Wow, eveby Nicole77 - Huntington's Disease Support Center
After testing anonymously at UCLA on 2-25, I recieved my results on 3-17. The results are positive CAG 46, the same count as my Mom. My friends and family have been incredibly supportive. It feels strange and surreal to know without a doubt that I have HD. I feel validated and free in one sense and disappointed and pissed off all at the same time. I'm sure I'll be digesting it for a while. Thby Nicole77 - Huntington's Disease Support Center
Thanks DB for posting the article.by Nicole77 - Huntington's Disease Support Center
Hi SweetWes- Thank you for your comment. It certainly "seems" like I have it under control...when in fact I'm waiting on test results that I have no control over...I guess it's like poker, project strength when actually you're weak. Take care, Nicoleby Nicole77 - Huntington's Disease Support Center
Hi Gemma- I'm new to the forum too but I've been following your story. Your decision to get tested before having children is a difficult one that requires a lot of courage. I wasn't ready at your age because I wasn't ready to have children but I am now and I'm in the process of waiting for my results. The best we can do is make an informed decision. I wish you all the best. Nicole77by Nicole77 - Huntington's Disease Support Center
Thank you for your welcoming and understanding replies. I hope you don't mind if I reply to everyone at once... HD, its impact on my life/family, living at risk and caring for my mother is something I have not shared with many other people simply because it's hard for others to identify and understand the complex nature of the disease. I've been privately symptom searching especially in the laby Nicole77 - Huntington's Disease Support Center
Hello all! I?m 30 years old and my name is Nicole. My grandmother was diagnosed (age 44) with HD in the mid-eighties and my mother was diagnosed (age 44) with HD (CAG 46) in 2001. I?m currently attempting to transition my mother to a SNF, which is a frustrating process to say the least. I?ve been aware of my at risk status since I was 10 and have been living as if I was positive my entire aduby Nicole77 - Huntington's Disease Support Center
Nicole77: Hi, my name is Nicole and I?m 30 years old. My grandmother was diagnosed (age 44) with HD in the mid-eighties and my mother was diagnosed (age 44) with HD (CAG 46) in 2001. I?m currently attempting to transition my mother to a SNF, which is a frustrating process to say the least. I?ve been aware of my at risk status since I was 10 and have been living as if I was positive my entire adby Nicole77 - Huntington's Disease Support Center