thank you for all your advice.. i've been debating on whether to say anything or not for awhile now.. HD has been open more but the family still doesnt know how to address the possiablity of someone who might be showing signs and you know they dont want to be tested.... its such a touchy thing... I think I know what I am going to do now...With all the different prospectives it has really helped tby adkinsmt - Huntington's Disease Support Center
well the abusive relationship just started about 1 yr ago... lets see about 4 yrs ago she got a divorse from her first husband.. then she married a guy after 6 months of knowing him and he was a druggy.. had 2 kids by him..During this relationship she became very obsessive with where he was what he was doing and who was he with kinda things.. she divorsed him after 3 yrs. Then found this guy whoby adkinsmt - Huntington's Disease Support Center
hello everyone, I havent posted on here in a while. well I have an issue.. my older sister is 32 and in the last 2-3 yrs. we have seen some signs of hd. she has 3 young kids and one on the way. she is in an abusive relationship and is making lots of bad desions.. shes bad with money.. very obsessive...not indepentant at all.. She used to be very indepentant...and great with money...I know she doeby adkinsmt - Huntington's Disease Support Center
Cindy, just to let you know i am a massage therapist and that sounds like sciatica. i treat people with that all the time. you still might want to go to your doctor just to ease your mind if that helps.you might want to stretch out your glutes. they often get too tight and press on the sciatic nerve. violetby adkinsmt - Huntington's Disease Support Center
thanks deb, i will relax and maybe get a massage.. he he .. have fun at the meeting.. i'll see ya soon... violetby adkinsmt - Huntington's Disease Support Center
Hello everyone, i am going to rochester,ny for my perdict study. if anyone lives there and would like to have dinner or lunch let me know. I will be there on aug. 25th and 26th. or if you know of any places to go that is fun that would be great... violetby adkinsmt - Huntington's Disease Support Center
HAPPY BIRTHDAY BARB!!!!!!!!!!!!!!!!!by adkinsmt - Huntington's Disease Support Center
i red this earlie.. its great how well things are coming along and where things are headed. i'm glad that our generation will most likely have alot better treatment for hd.. thank you for putting this on here its great for everyone to see how things are coming along and to still have hope for a brighter future.. violetby adkinsmt - Huntington's Disease Support Center
i am so sorry to here whats going on. i myself have family members who want to push it under the rug and they think it will go away but its not fair to the ones that have to deal with it now and not later because they feel alone and not heard. i tested pos about 1 yr ago.there has been some healing happening in my family but there are still fears that are still there and i dont know if they willby adkinsmt - Huntington's Disease Support Center
i told my husband about 2-3 months into the relationship. I had already made up my mind though to be tested when I chose to have children. i knew when i was 16 yrs old that i could never pass this on and if i wanted to have children then this was a sacrifies i need to do to give the best for my children. I tested pos last yr. I am 27 and we are enjoying life to the fullest. its kinda crazy i actuby adkinsmt - Huntington's Disease Support Center
i'm so sorry to here about your husband is gene pos. I tested pos 1 yr ago. its hard to here the news but it does seem to get you focused on things that matter. i hope you have a great life together and know that we are always here for you and your husband.. god bless Violetby adkinsmt - Huntington's Disease Support Center
Matt, I'm so sorry for your loss and your pos result. it can be very hard to deal with. i'm so glad we have a person like you who is an advicate of hd and if you need us we are always here for you... good luck with your race....violetby adkinsmt - Huntington's Disease Support Center
deb are you in the chat i was just in there and no one was in there.. violetby adkinsmt - Huntington's Disease Support Center
it can also be caused by to much testostrone in the body. there are herbs out there that reduce the production of testostrone. Saw Palmetto is a really great one and its also good for mens prostate.. just some info....by adkinsmt - Huntington's Disease Support Center
I too am sorry for all your Mom is going through . May I ask how she is doing , how is the hospital stay going ? Every time my Mom has been in the hospital , we found her mind became more mixed up . Thinking about you . db My mom actually understands what is going on.. she still has that ability to know who everyone is and everything around her.. she really loves it when teh grandkids comby adkinsmt - Huntington's Disease Support Center
Well mom is doing well.. they have been keeping her on pain meds and keeping her comfortable.. she is now back in the nursing home.. they kept her overnight. she is eating better .. they had to fut a tube down her throat because of teh swallowing issues..I thank you all for every prayer.. I was scared about this whole thing...My mom is so strong and she has gone through so much.. I didnt want herby adkinsmt - Huntington's Disease Support Center
hello everyone, I would like for everyone to keep my mom in your prayers. My mom has HD and in the last and final stages.. we found out a few months ago that she had breast cancer. the doctors have recomended that she have the lump removed. so my mom goes into surgery tomorrow to have it removed. I hope everything goes great and she makes a great recovery please keep her in your prayers... vioby adkinsmt - Huntington's Disease Support Center
Welcome!!! I am glad you found us here.. I hope we can be a great suport for you and your family.. Violetby adkinsmt - Huntington's Disease Support Center
are you sure its not just low blood sugar? I have dizzyness when my sugar is low and also i notice when i have alot of caffine i get dizzy and light headed....by adkinsmt - Huntington's Disease Support Center
Creatine is very hard on the kidneys.. you want to make sure you're drinking lots and lots of water while on creatine.by adkinsmt - Huntington's Disease Support Center
Heidi, I am so sorry to hear of your results and what you are going through. I just resently got tested myself about 6 months ago. Its very hard to cope with and it doesnt help when family is not there for you.. My family has been in denial for some time also.. Just to let you know we are all here for you and feel free to share your storys. I hope we can give you that support you need.. I wilby adkinsmt - Huntington's Disease Support Center
Ron, I am so sorry for your lose. I will keep you and your family in my prayers.. Violetby adkinsmt - Huntington's Disease Support Center
Dcb wanted me to post that she might not be on tonight because of internet connection problems... I just wanted to give the message and she is really sorry if she cant make it...Violetby adkinsmt - Huntington's Disease Support Center
Wayne, Well 50/50 means that everyone has a 50% chance of inherating the gene. Every human has 2 huntington genes 1 from their MOM and 1 from their DAD. Thats how they get the 50/50. It all depends on if your parent that has the mutated gene passes it on to their offspring.It's all how the dice roll. Some Familys have just 1 or 2 that end up having the gene, and then there are other familys whereby adkinsmt - Huntington's Disease Support Center
Misty, I lived in San Diego for 4 yrs. we just moved back to MI 2 yrs ago. We lived in coronado. I really miss it. Godd luck!! I know the rock and roll marathon is lots of fun... Violetby adkinsmt - Huntington's Disease Support Center
Hello Everyone, I just wanted to let everyone know that Today at my Fundraiser We raised over $1300 for HD. I am so greatful for everyone who helped me out... thanks agian dcb.by adkinsmt - Huntington's Disease Support Center
Wes, Welcome! I'm so sorry to here of your results and your Mom.. I just tested positive about 4 month ago and I'm 27. I know this must be a hard time for you. You have gone through so much.. I hope this forum is as great to you as it has to me. I look on here everyday and I always find out something new..The people on here are very supportive. I hope to see see you in the chatroom.. Violetby adkinsmt - Huntington's Disease Support Center
Kristen WELCOME!!! I'm so sorry about your results. I know its a hard road to take but we are all stronger for it. I was resently tested myself about 4 months ago and I'm gene positive, with a CAG repeat of 42. I am 27. This place has been a great gift for me.. Everyone on here are very helpful and suportive. I hope we can make you feel like home here.. if you have any questions doby adkinsmt - Huntington's Disease Support Center
Hi everyone, just to let eveyone know I am having a HD fundraiser on Feb 9th.. we are offering spa services to clients and all the proceeds go to HD.. We are having a HD SPA DAY! I just wanted to let people know about it.. we are very excited because the whole day is already full.. Thanks dcb for helping..... Violetby adkinsmt - Huntington's Disease Support Center
Missy Iam so sorry of your resent news. I know this is really hard. I myself tested positive only 5 months ago. I have gotten great suport from this place and also in the chatroom. always know we are her for you if you need any advice or have any questioons. If you want to private message me you are welcome to do so. I will keep you in my prayers... oh also keep your chin up.. I know how hard thby adkinsmt - Huntington's Disease Support Center