Yes. My son does this. I believe it is a form of chorea...the ability to modulate the tone volume and rhythm is impaired. Couple this symptom with a subject that they feel passionately about...OMG! I just go with it because soon enough I will not hear his voice at all and that is a very sad thing.by carla - Huntington's Disease Support Center
Hello everyone. In my experience, Marijuana is one of the best drug treatments for the symptoms of HD. I have watched 2 sons living with HD...one has smoked pot forever and one has never smoked pot in his life. Their CAG counts are 48 and 51, so quite close. They grew up in the same household so environmentally the same. One of them needs assistance with all facets of daily living and can bareby carla - Huntington's Disease Support Center
Will, Nice article. I also try to use humor and look on the bright side of HD. Thanks, Carlaby carla - Huntington's Disease Support Center
Nice to see Dusty poking her head in! How have you been? Carlaby carla - Huntington's Disease Support Center
Glad to hear that whatever it was has passed for now. Good to know you have someone there to watch out for you! Take care Barb, Carlaby carla - Huntington's Disease Support Center
I would encourage you to take a break from this relationship and concentrate on your personal health. As you feel better, you will be able to examine the relationship with a clear head. I agree with Vicky, HD does not get better. Take a step back and take care of you for now. Carlaby carla - Huntington's Disease Support Center
As the mom of 2 sons with HD, I was closely monitoring my sons ability to continue working. He was having some issues but when I would ask him he would say everything was fine. One day a friend of mine who was his foreman, called me. He said I needed to get Mike to the doctor because he was making many mistakes at work and had just had a verbal outburst on his boss. He knew, as did the company, tby carla - Huntington's Disease Support Center
Wonderful!!by carla - Huntington's Disease Support Center
Wonderful and joyous news! Congratulations! Carlaby carla - Huntington's Disease Support Center
Wonderful and joyous news! Congratulations! Carlaby carla - Huntington's Disease Support Center
So wrong!! Are they aware of how upset you are? If not, I would make sure they became aware. Very distressing. So sorry. Carlaby carla - Huntington's Disease Support Center
All good advice, also remember that besides taking any SSDI back pay, they will not only reduce your LTD payments by the amount of SSDI you receive but also any dependents whether or not they live with you or whether you receive those benefits. The insurance companies are not your friend, they do not want to pay these benefits and will get out of it any way they can...and there are many ways. Thby carla - Huntington's Disease Support Center
So very sorry that your mom passed away. I know she is up in heaven dancing with your daddy just like you said. Carlaby carla - Huntington's Disease Support Center
Djcloc Yes! if only I weren't subject to randoms for my job!! Carlaby carla - Huntington's Disease Support Center
Actually, both of my son's have HD. One still lives on his own and has 2 kids at risk. Tim, the son I brought home is doing great. We were blessed to have a way to build a place onto our home for him and his brother eventually. It turned out great and he loves it! It's very nice to not have to stress out over what is going on at the NH. I work part time and pay a lady to help in the afternoon. Soby carla - Huntington's Disease Support Center
I have 2 sons with HD, CAG repeats very close. One smokes marijuana and has since he was a teen. The difference in the two is striking...the one who smokes is older, worked longer, still lives on his own, has had minimal Psych issues...the other needs assistance with all ADL, lives with us, cannot drive, has been hospitalized and has had to live in NH. He never did any smoking or drinking. Our nby carla - Huntington's Disease Support Center
Sad news.by carla - Huntington's Disease Support Center
I understand your frustration, my son lost 30 lbs in 4 months at the NH. I was nuts trying to get them to do their job. I ended up bringing him home, could not take it any more. Not for everyone but I was able to make it work, it will be 1 year in May that he has been home. It was not helpful for me but maybe the long term care ombudsman in your state could help? Take care, Carlaby carla - Huntington's Disease Support Center
I agree with all of the others who have commented here. It is necessary and "okay" for you to set boundaries with your dad, there are medications to help with these Rage and Anger symptoms but he has to want to feel better. He needs to get off alcohol, give him a list of detox places and make him take the next step. No meds will be effective or safe until he is off alcohol, it just doesby carla - Huntington's Disease Support Center
Viktoria, I am so sorry that your dad passed away. I have 2 sons who have HD one of them lives with me, the other one still able to live alone. I also have 3 grandkids, 2 live at risk and one has tested and is negative. (she was 21 when she decided to test) This disease is a heart breaker, your daddy is finally free and I'm sure he is smiling down on you every minute of every day. Sending you mby carla - Huntington's Disease Support Center
Marsha, that information about HDSA board members just does not seem fair or right. Steve's contribution of his time and energy and expertise should be enough. And why would they not hold board meetings using technology? Like, Go to Meeting or something? Well, we appreciate you both for all that you do for this community. I have often wondered to myself where the money goes. I am not 100% sby carla - Huntington's Disease Support Center
My son has three kids and they knew he was going to be tested and there was no holding the news back. They were waiting and when he walked in he just burst into tears and told them. We were all holding each other and crying. Such a sad scene, but life has gone on and we are all coping. His oldest tested at 21 negative and the other two are still deciding. It is very personal. We have not hiddenby carla - Huntington's Disease Support Center
Barb, I know, I was reading this and thinking wow this sounds familiar! LOLby carla - Huntington's Disease Support Center
I also care give for my sons. Both have HD and one of them lives with me. It is heartbreaking and there is not a lot of support as both Howard and I know all to well. Hang in there. Carlaby carla - Huntington's Disease Support Center
Yes, sniffling, snorting, throat clearing, change in voice etc are all early symptoms. My son had them, the doc called them tics. He has moved onand does not do that anymore, so they do eventually stop. One thing odd, he can no longer blow his nose. He cannot make the nose blowing but he can sniff. The brain has so many unanswered questions, such a complex organ. Carlaby carla - Huntington's Disease Support Center
It should be on their website, have you checked there?by carla - Huntington's Disease Support Center
Very common and as some of the others said, one of the main reasons for being placed in a NH, or being divorced/estranged from those who love them. Medication can help, but in my experience the progression of the disease, being bounced in and out of psych units and NHs and medication brought relief. This was over a 2 1/2 year period. It was a terrible time for him and our family. My son now liveby carla - Huntington's Disease Support Center
Will, you are too funny!by carla - Huntington's Disease Support Center
Never give up...not ever. Carlaby carla - Huntington's Disease Support Center