Dear Pat (second time), Please watch the video link I posted several posts above and let me know what you think. Thanks......Philby Phil - Huntington's Disease Support Center
Dear Pat, thanks for making me aware of someone else who ONLY had a CAG of 39 and who is already dead too. Almost everyone diagnosed at the same time that I was is dead now. It's a real eye-opener to me and just further proof of the injections in my opinion. Have a great weekend!.....Philby Phil - Huntington's Disease Support Center
Oops. I forgot to add my e-mail address: phardt1@cox.net .....Phil Hardtby Phil - Huntington's Disease Support Center
Thanks Everyone! Bridget and JL: I also have a modified Phd ID card in Powerpoint. If anyone would like it please send me your e-mail address and I'll forward you the version that Ardie Newbold, Lou and I worked out a long time ago. I don't call them shots, just shark bites! o; .....Philby Phil - Huntington's Disease Support Center
Here is a recent video I did for the Doctor to show the benefits of the live cell injections. It contains lots of facts and irrefutable data and facts for those more scientifically orientated. I would happy to provide anyone who wants to see the actual copies of the Mayo Clinic and Cigna Health Care Letters from the video:by Phil - Huntington's Disease Support Center
Hi Jeff and others. No, there has been no peer-reviewed double blind placebo studies done. Do you know that to achieve this it would take tens of millions of dollars for the doctor to do this? According to the FDA- to test any substances containing anything with animals in them you would need to completely rebuild the test lab so it wouldn't be contaminated before you could run drugs in itby Phil - Huntington's Disease Support Center
Oh yes, no subsequent pages of the HDAC website you'll also find my "Testimony before the Secretary's Advisory Committee on Genetics, Health, and Society." One of 7 chosen from the U.S. to participate. This testimony and subsequent usage of my testimony on the Senate and Congressional floors resulted in GINA! You'll also find: "Mitchell Urges Support of Stem Cell Research&quoby Phil - Huntington's Disease Support Center
For those of you who don't know me, my picture and guidelines to help those struggling with HD are on the front page of the HD Lighthouse at www.hdlighthouse.org. Scroll down and look on the right had side of the page! You can also look on the front page of this very website too. There you will find 3 recent scholarly articles I've written inclduing: "Using the Neuropsychological Examby Phil - Huntington's Disease Support Center
Hi Deb. This is Phil Hardt. I would be happy to give you names and information on other Person's with HD who are taking the injections so you can contact them. Please e-mail me at phardt1@cox.net. You will get a lot more reliable answers to your questions from those of us who are taking the injections, instead of those whoby Phil - Huntington's Disease Support Center
I said he paid for the majority of his OWN travel expenses, not mine. My expenses were already paid for by the generous family who subsidized my last 3 trips to Colombia to help others with HD!by Phil - Huntington's Disease Support Center
Oh, one more thing- Barb, I'd love to help you (or anyone else) if you'd let me! And no, we don't have to talk about the injections either!! Better living through modern chemistry......Alice, sorry to hear about your husband's passing.by Phil - Huntington's Disease Support Center
Good night for me all! I'll check back tomorrow to see if anyone else has additional quesitons I may be able to answer!by Phil - Huntington's Disease Support Center
jl - As a wonderful friend of mine used to say about anti-depressants- better living through modern chemistry! Yes, they definately keep you from being so angry and lashing out so much. And, although they are primarily for depression, I have personally found that they give my anger a longer fuse where I can recognize it and most of the time defuse it before it gets too late!by Phil - Huntington's Disease Support Center
Oh, by-the way- I forgot to mention- the doctor paid the majority of his own way on these humanitarian missions! He didn't have to do what he did. He gave physical examinations to everyone, he wrote prescriptions for those who needed them, gave genetic counseling since he is bi-lingual, and translated for me at the homes of individuals struggling with HD and at community meetings where I answerby Phil - Huntington's Disease Support Center
Oh my gosh, another 39 who is symptomatic! I don't ever remember saying I was selling the injections to help myself in any way on Hunt-Dis! People deposit their money into the doctor's bank account, not mine. He is a good man and has helped me for the last two years in Juan de Acosta, Barranquilla and Bogota Colombia on humanitarian missions where we helped hundreds of families struggling withby Phil - Huntington's Disease Support Center
I can tell by the tone of your messages! I'm sorry if I offended you. I must have missed the link you provided. Most people with angry perseveration on these type of lists probably do have HD and as part of living positively with HD, we should be doing everything we can to help ourselves live a quality of life that is very, very high! To do every single thing that we can to live positivley andby Phil - Huntington's Disease Support Center
Barb, do you have HD or are you a caregiver? Alice, do you have HD or are you a caregiver too? Sorry, since I just bopped on the list I don't know where you're coming from. About deceiving people out of their money- becasue me and others with HD have had so much success with this therapy I naturally want to share with others. I don't want to hide my candle underneath anything if you're Biblby Phil - Huntington's Disease Support Center
Eric, I don't have time right now to respond as I am travelling to meet with 3 of my cousins, two of whom just got back positive test results. You see, I help everyone I can, I don't tear down anything. I'm just wondering why you are so vindictive, bitter and negative. You may want to try some anti-depressants real quick to brighten up your life a bit! Some people spend twice as much on CoQ1by Phil - Huntington's Disease Support Center
Barb, wow, I sorry to upset you so much. I have gotten Social Security Disability and Long-Term Disability monthly since 1998. I am completely functioning as if I were not disabled now as long as I continue to take my injections every 3-4 weeks. I am also back driving too. I quit driving in 1996 and didn't start again until around 2003- two years after starting the injections. What would bby Phil - Huntington's Disease Support Center
Hey Steve I. How are you doing? Glad to hear from you and you'll be able to feel my back again this year at the convention to make sure no fins are protruding yet!by Phil - Huntington's Disease Support Center
Alice, Absolutely, everyone with HD begins experiencing the "softer" symptoms of HD 10-15 years prior to the onset of the old "hallmark" of HD-chorea! I also had lots of these softer symptoms when I was forced to go out on disability in 1997. I had memory problems, was running red lights, having affairs, drinking, etc. I also lost my visual spatial coordination and forgot hby Phil - Huntington's Disease Support Center
jl - it's my Step by Step Insturctions on the HDLighthouse that has helped thousands qualify for SSD the first time around! You may have used them?by Phil - Huntington's Disease Support Center
Great articles Eric. They have both shown that sometimes alternative medicine or therpies don't work either. However, sometimes traditional doctor's patients die on the operating table, sometimes they contact mersa and die afterwards, sometimes the patient goes in for hundreds of thousands of dollars of cutting out the cancer and the patient still dies but since it's "conventional" meby Phil - Huntington's Disease Support Center
You're abolutely right! So you're on SSD now or did you go out on long-term disability from work in addition? Stress needs to be eliminated in everyone's life who is at-risk!!!by Phil - Huntington's Disease Support Center
I understand! I was hoping you were a little bit closer so we could compare "notes!"by Phil - Huntington's Disease Support Center
I know you weren't dissing me and you are so right! I remember the bell curve from statistics and my teacher stating that the majority will fall under the bell shaped curve on any distribution but there will also be those who fall under the flatter areas. Sounds like you've found the right balance for your life to keep HD at bay a while longer and that's great. I also feel that diet, stress toby Phil - Huntington's Disease Support Center
I know you'd be telling others about something you discovered if it really helped most of your symptoms. That's all I'm doing- trying to help others!by Phil - Huntington's Disease Support Center
Hi Eric! What you quoted is partially right- the shark can get cancer and it doesn't have a perfect immune system BUT injections have helped me and others with HD for over 8 years now. It hasn't cured me or anyone taking it as we must take new injections every month or symptoms return. I hope to meet you at the convention in a couple of weeks and you can see for yourself. I don't know whyby Phil - Huntington's Disease Support Center
jl - By documentaion I mean what recent report(s) are you quoting that still have 39 as not technically HD? Pretty old ones I think. Full penetration is full penetration- not 1/2, not 1/4. Yes, unfortunately, no one has gotten with Athena diagnostics to have them update their diagnostic reports based on the new information either. We've lost most of our advocates who were championing our causby Phil - Huntington's Disease Support Center
jl 36-38 used to be in the gray area but now several major reports, probably because there is more statistical data now on more people, that they are beginning HD at 36. The Gray area is now between 33-35! I personally knew a woman who had a CAG repeat of 38 and who is already dead. BTW - I'm 53. I also personally know one individual in Italy who has a CAG of 49, is 38 and not symptomatic -by Phil - Huntington's Disease Support Center