I was a caregiver for a 10 years span for two family members and it can take a toll on your health, mental and physically. You need a break every once in a while. My good fortune was to have a daughter that would give me 2 days and 2 nights a week. I could shop, sleep or do what ever I needed to do, it was a blessing. I always heard that it takes a village to raise a child, I think it takes aby sandycz - Huntington's Disease Support Center
This is exactly what I am thinking Pat, thank you and all others for you most helpful information. This is so nice to others to share with. My brother has cut almost all of us out of his life, he is so angry and has been for some years. After reading some of the others situations I now realize that this may have been the HD behind it. His wife talks to our youngest brother and I am gonna to tby sandycz - Huntington's Disease Support Center
sorry julie computer posted before I was finished. My brother is 56, 11 months younger than me and all 4 of us are from the same mother and father. I am now the oldest on both sides of the family, so family history is now hard to find. Can this be spontaneous??? And thank you julie and Paula for you input. I have not contact anyone yet. I am afraid of the insurance coverage issues, plus I hby sandycz - Huntington's Disease Support Center
Thank you for the information Will, that is good to know if I decide to do it. Only two hours from Chapel Hill and have a daughter that lives there. Julie, My mother died in a housefire when she was 37, so no history available there. My grandfather was in a state mental institution when he became to aggressive to handle at home. Father lived to be 82 years old and no history there. Maternalby sandycz - Huntington's Disease Support Center
thank you Dave & db for you information, it is very helpfulby sandycz - Huntington's Disease Support Center
Hi I'm sandy (NC). I am 57 year old and also at risk. My brother was tested 2 months ago and is positive. We noticed corera symptom in 2000, but have no family history that we know of. Paternal grandfather may have been, we are in the process of obtaining his medical records. We are a family with 4 siblings (all in our 50's now) and trying to sort things out as should we be tested or not.by sandycz - Huntington's Disease Support Center
Hello, my name is Sandy, age 57, married 2 children ages 35 & 30, one grandson 11 yrs., I live in NC, near Charlotte. My brother found out he is PHD two months ago. We as a family are just starting to try to find out as much information about HD as we can. There are 4 children in my family and no history of HD, but our maternal grandfather was institutionized the last 6 years of his life.by sandycz - Huntington's Disease Support Center