I just wanted to stop by and say Hi Barb. I'm glad to see you are still here and keeping the conversations going. I know you were a bright spot on some pretty cloudy days for me. I can't speak for others but I don't come on here as much anymore because I find I'm a little too sensitive to all the pain people go through due to HD. It's not to say that people like you aren't a big ray of sunshiby TracieT - Huntington's Disease Support Center
My condolences to you both. May he be in peace.by TracieT - Huntington's Disease Support Center
Over the years, there have been a lot more than 2 people that have tested negative after having jerking and twitching issues. I had a big scare in 2007 with the same thing. It was stress. Waiting for your test is going to be very stressful. Don't pick yourself apart while you are waiting, it does no good. Try to live for just today.by TracieT - Huntington's Disease Support Center
Itchyscratch- There are a lot of maybes in life. And I know from growing up with HD all around me that even if you do know you have HD the "when and how" of how HD will affect you is a maybe. HD follows no set rules. Ally mentioned that her boyfriend doesn't want to be tested. She may have to realize that may be a fact that she cannot change and decide if she, personally, can accepby TracieT - Huntington's Disease Support Center
Hi Ally. It looks like a lot of people have already responded but I thought I'd offer my thoughts. I'm at-risk and have been married for five years, though I met my husband seven years before we got married. You mentioned you know your boyfriend does not want to be tested. For me the turning point in my relationship was when my (then) boyfriend told me that he respected my decision not to teby TracieT - Huntington's Disease Support Center
I don't post often but I wanted to say that I think Marsha gave some very good advice. When I was close to your age I really wanted to know so I could plan for my future. I went through 2 of the 3 steps necessary for testing. I remember one evening thinking to myself "why don't I just give myself a break?". As Eric pointed out, there is often just a few years of reprieve for each faby TracieT - Huntington's Disease Support Center
Just stopping by to say "wow" the new look of the forum is fantastic. I had to log in because I wasn't sure I was in the right place. Hi to everyone. (Hi Barb! lol)by TracieT - Huntington's Disease Support Center
Done. Miss you guys. All is well here. -Tracieby TracieT - Huntington's Disease Support Center
Hi Cindy, I'm 35 and at risk and a couple of years ago I had a bad period where I was pretty obsessed with whether or not I would develop hd. During that time I definitely had a period where I had an "internal" shakiness. I think I even wrote about it here but I was calling it an internal tremor. Anyways I know now that it was that my anxiety level was pretty high during that timeby TracieT - Huntington's Disease Support Center
Luz, I don't have time right now to read into your history, so please let me know if I am speaking out of turn, but my first thought with you what said about your husband's movements during sleep and "blank" looks is the same thing I see in my husband currently. My husband is not at risk...I am...he's just stressed due to the amount of hd talk in our house. Being at risk is very,by TracieT - Huntington's Disease Support Center
I, personally, only want to hear about research that is in human trial. It does seem to me that there is always a plethora of pre-clinical information and, of course, everyone is hopeful at that point in the game. I feel weary because I feel that at my age, 36, I have been hearing my entire life that we are just on the edge of a breakthrough...ever since the test was available in 1993 (Iby TracieT - Huntington's Disease Support Center
Did you go to Dr. Bouneff/Dr. Green JL? I, too, had terrible wisdom teeth but taking them out was the easiest (at least the most painless) dental procedure I've ever had done.by TracieT - Huntington's Disease Support Center
And back to one of the original questions...has anyone ever found a relative here or found that someone is from the same area originally?by TracieT - Huntington's Disease Support Center
I had read somewhere that the village of Bures in Suffolk, England was the place that most of the hd community in New England had descended from? Anybody know if there is any truth to that?by TracieT - Huntington's Disease Support Center
I am always fascinated by the thought that some of us have got to be related. I am wondering- has anyone ever discovered a long lost relative, even far removed, on this site? Also, I'd like to add that I am from a family from Spokane, Washington. My mother's maiden name was Thomas, her mother's was Bungay, her mother was adopted. My mother had 2-3 siblings. Greg, Pattie, and... I alby TracieT - Huntington's Disease Support Center
Great Post Barb. You inspire us all. Thanks for sharing your visit!by TracieT - Huntington's Disease Support Center
Alice, I'm with Eric. I enjoy your company here. Hope all goes well.by TracieT - Huntington's Disease Support Center
I don't know that I confirm that injury can cause a sudden onset of hd scientifically but there sure seems to be a lot of stories about it. My mother told me that my grandmother fell down a flight of stairs and when she was recovering is when they noticed her hd symptoms. Barb, wasn't it a car accident that seemed to bring yours on?by TracieT - Huntington's Disease Support Center
Hi to all, I just got news that they moved my brother the a care facility in Burley, Idaho. My parents say that there are other patients with HD there. I was wondering if anyone here has a loved one in the same facility in Burley?by TracieT - Huntington's Disease Support Center
Twice. It's happened to us twice. Both times were terrible.by TracieT - Huntington's Disease Support Center
I'm sure that she was and always will be proud to have you as a daughter. I agree that on a different level I believe that she knew you were there for her and comforted by it. Bless you.by TracieT - Huntington's Disease Support Center
JL and Barb, my friends, you are taking Margie's post in a literal sense... that is not how she meant it. You guys are misunderstanding it. Really. Take my word for it. She is talking about the irony of what the book says and how it relates to her post. She is not saying she found a new cause for HD. There are plenty of quacks out there that do that outside this forum. I think we (anby TracieT - Huntington's Disease Support Center
My husband is not at risk for hd and I am... my husband definitely has a lot more movement in his sleep than I do. When I am stressed I twitch a lot. I also notice that I do it a lot more around that "time of the month". When I am having big anxiety problems I will twitch so much that I wake myself up. I agree with Eric, in the end it does not matter what is causing the issue- if iby TracieT - Huntington's Disease Support Center
17/17 who knew two numbers could be so beautiful! That's great news!by TracieT - Huntington's Disease Support Center
"But I came to the conclusion that one thing I can do no matter what is pray. So now that is my contribution to others--a worthwhile one I think." Margie, I am literally in tears. I think that is the nicest, most compassionate thought I've ever heard someone say. Huntington's did change my view of God. Or maybe it would be better to say it certainly obscured it. My mother hadby TracieT - Huntington's Disease Support Center
Missmolly, I love where you say "my mind is quiet now because I'm doing the things that I should" That is where I am at right now. Thank God. Though I can definately relate to the panic and anxiety also because I just went through a few years of that also. It helps to hear that other people feel that way too, as selfish as it sounds. The waking up knowing you should do somethingby TracieT - Huntington's Disease Support Center
I do agree with you JL, it is important for family planning. That just does not apply to me. I tied my tubes awhile ago now. And it does not guarantee anything about my future, which is why I say if I felt I needed to test or my husband asked me to, I would.by TracieT - Huntington's Disease Support Center
Liz, stress will make your body twitch, twitter, and jump. And you will start to forget things because you are so busy thinking about why you are twitching that you'll forget to remember things. And you will lose sleep. This is not HD, just normal stress. And it sounds like you may be under some stress. Please be easy on yourself. And get help from your doctor if you need some help dealingby TracieT - Huntington's Disease Support Center
I honestly have to say that there is not anything that would make me test presymptomatically short of a guaranteed cure. If I felt that I had symptoms that could not be explained in ANY other way or my spouse asked to to test, then I would test.by TracieT - Huntington's Disease Support Center
Happy Easter to you too JL. -Tracieby TracieT - Huntington's Disease Support Center