Google it, recently I read somewhere there are 2 anesthesia's that should never be used with HD person. I would say with anyone if sedation is a possibility instead of anesthesia go for the sedation. Melissaby MelissaB - Huntington's Disease Support Center
It is true everyone is different bit I was told during my research visit that many have had good success withCelexa. Melissaby MelissaB - Huntington's Disease Support Center
Some doctors will order the genetic test without using the protocol, mine is willing to for my kids. One expert on HD at a University said be careful getting a lawyer especially if they get a percentage of the back pay he said some will not try to get approved the first time so they make more money. Melissaby MelissaB - Huntington's Disease Support Center
Without my anti depressants, Im pretty sure I would be out of control and likely to let more impulses control my behavior! I would probably slapped someone by now!! Anti depressants are a God send for people suffering from HD!! Melissaby MelissaB - Huntington's Disease Support Center
I had begun to have some problems with swallowing, the doctor sent me for swallowing test, it showed that my esophageous muscle was not working properly. I would insist the doctor bring in a speech therapist that can evaluate him and ask for necessary tests! As for the screaming and being out of control, the doctors can give him something more calming to help the outbursts. Melissaby MelissaB - Huntington's Disease Support Center
Yes, we have had marriage counceling and family counseling. None of it made any difference! Basically my husband told me he was not willing to change to accomidate mine or my daughters illnesses. And since I know neither of us can live like this any longer. I see moving is the only answer. My doc just had me apply for SSDi and it is possible something may come open in public housing in the next tby MelissaB - Huntington's Disease Support Center
Hi, this is Melissa Barnes, its been quite a while since I was on here. I am hd positive dealing with early hd. I have 6 children, I had 5 before I knew what hd was and that it was in my family. My kids are 24,23,20,17,13 and 4. Yeah I went a little crazy left my husband for 3 yrs and had another mans baby (not on purpose, because I was not planning another because of the hd). A couple years agoby MelissaB - Huntington's Disease Support Center
A great website...by MelissaB - Huntington's Disease Support Center
Whether it is HD or his personality or mental illness, the choice you have is can I live with a person who acts this way. If its HD he can't help it, if mental illness unless he accepts treatment, or its his personality. You only need to know can u live like this for years and years if he can't or chooses not to change!! Don't let "Love" lead u down the road of regret!! Melissaby MelissaB - Huntington's Disease Support Center
I just googled one of your questions and... There I did a little research for ya.by MelissaB - Huntington's Disease Support Center
Have you tried google?by MelissaB - Huntington's Disease Support Center
If she is on Disability and medicare doesn't that pay for those? Melissaby MelissaB - Huntington's Disease Support Center
YES look into the SSDI for underage children, the payment may or maynot be big but everything helps!! Melissaby MelissaB - Huntington's Disease Support Center
Just wondering? I was just diagnosed with "mild" OSA meaning that I stop breathing an average of 13.9 times per hour (It takes 15 per hour to be moderate) my insurance doesn't cover C-PAP for "mild" sleep apnea. even though the doctor says I need it Just wondering if there was any medical info that Mild OSA can affect HD at all? Thanks! Melissa Barnesby MelissaB - Huntington's Disease Support Center
There is a book called "The Woman who walked into the sea" The authors last name is Wexler. The story does track HD lots of history and articles from history about HD!!by MelissaB - Huntington's Disease Support Center
At this point and hopefully I wont ever go there, I am not approaching people for though it had BRIEFLY crossed my mind. I am at the stage where I have really strong urges for sex. My husband and I have talked it to death, I dont expect sex from him. I'm only 41!! The self pleasure does help some but I have a strong desire for a man to be with me for sex. I have talked to docs some have no idea oby MelissaB - Huntington's Disease Support Center
I have read very little about the subject but over the last 5 years my sex drive is increasing by leaps and bounds!! The problem is my husband is not in to sex at all. My neuropsych says that I need that release to help decompress the huge amounts of stress I experience. I'm at a loss as how to solve my problem!!! Melissaby MelissaB - Huntington's Disease Support Center
No, I wasn't dehydrated. I am traveling to Iowa University for my HD Research Study, there are lots of experts there maybe I can find some sort of answer there? If you haven't had a chance to participate in a research study please do it for all of this and the next generations!! There is a study now for kids too. My 13 and 16 yr old participates and they love it, they make it like a vacation foby MelissaB - Huntington's Disease Support Center
It was prescribed for possible help with focus and energy. I have found it helps me stay awake and have some energy, without it I would hardly be able to function as far as energy goes. I am beginning to wonder if there isn't something else wrong withe me in addition to HD? Correct me if I'm wrong but early HD doesn't cause EXTREME exhaustion, muscle pain, muscles weakening even aching when doingby MelissaB - Huntington's Disease Support Center
The adderall is definately not the problem, I've been taking it for over a year. It wasn't a panic attack. Melissaby MelissaB - Huntington's Disease Support Center
I posted a couple says ago about extreme tiredness. I have been really tired for a long time and my doc put me on Adderall that helped alot but the new tired ness I was referring to a couple days ago seemed different and after I had posted I went out and dropped my kids off and was heading home when all of the sudden my WHOLE body started shaking (medium intensity) my mind got a little hazy, I caby MelissaB - Huntington's Disease Support Center
Marsha, I am in early stage HD. Cognitive function deline in the last year more than usual for me, depression, stumbling, small movements occasionally. Yesterday I just felt so tired, like I couldn't get out of bed, I slept almost all day!! Today, I feel the same way! do you thing this may be HD or should I look for something else?None of my meds or anything have changed. Thanks!! Melissaby MelissaB - Huntington's Disease Support Center
Judy, I am so sorry for your children's reaction!! I hope your daughter will come to her senses!!! It is true about never knowing when age of onset will be!! My grandma dies at 83 with HD, my mom is 61 and she has less symptoms than I do at age 41. I don't kmow what my grandma's CAG is or my mom, mine is 40- That would predict a late onset, but I have been having the softer symptoms since2001-2by MelissaB - Huntington's Disease Support Center
I believe every person especially people who deal with hd in any way. I'm sorry if i hurt anyones feeling, i think right now for me i am dealing with seeing my kids affected by my hd and i hate anything that hurts my kids!!! I just want everyone to understand how painful and hurtful times with hd and kids are!! I love my kids more than life they dont deserve this and i cant change my symptoms. Itby MelissaB - Huntington's Disease Support Center
I understand the passion everyone has especially caregivers but, this is a free country and people can choose whatever they wish!! The best thing ANY person can do is make INFORMED decisions!! I understand some of you are trying to show the truth of the disease, that is needed, but at the same time u r calling names and judging people you will lose their ear before you EVER get your point across!by MelissaB - Huntington's Disease Support Center
Please stay!!! This is the only place I have for support!! Melissaby MelissaB - Huntington's Disease Support Center
MRO, I also agree with you. a neg test for the baby isn't necessarily having an HD free child especially if a parent has HD! I am speaking from my experiences as a 41 yr old HD+ mother of 6 children. If all my children were HD negative, HD would still be a painful and hurtful reality in their life because of me and their grandma!! When a mother has to worry about being on enough meds to controlby MelissaB - Huntington's Disease Support Center
Barb left?? What happened?? Been away for a bit. Melissaby MelissaB - Huntington's Disease Support Center
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Barb, So sorry to hear you have had an injury!!! Feel better soon!! Prayers for you!! Melissaby MelissaB - Huntington's Disease Support Center