My ex is seen at Columbia Pres. the clinic there has been great but both the psychiatrist and neurologist have both recently left. There is also a clinic at North Shore LIJ and the sw there is great.by klivin - Huntington's Disease Support Center
will: so true I am so convinced that my husband constantly challenging himself has helped keep him doing well. He's in school and is learning a new computer data entry system and is being trained to train other staff at work. I am so proud of him.by klivin - Huntington's Disease Support Center
Melissa. Thanks for braving this subject. I am in a similar situation. 41 and my husband pHD, is on SSRI's that completely kill his drive. He is on Celexa and we have spoken with the Dr about it and recognize that the benefits are too great to change it. My husband is still working and driving...he has minor challenges at this point and I am grateful. There is medication to increase hisby klivin - Huntington's Disease Support Center
congrats to both you and Steve!by klivin - Huntington's Disease Support Center
It was the psychiatrist at the COE @ Columbia. Not aure thatthe husband is being honest. I've left a message for the doctors.by klivin - Huntington's Disease Support Center
thanks Marsha. My husband has been having this "skin crawling" feeling and couldn't sit still in a meeting. He spoke to the dr today and reported back that the dr said that its "not HD" related and gave him behavioral suggestions. He then said that they could discuss the possibilty of neurontin if that doesn't work. thoughts?by klivin - Huntington's Disease Support Center
anyone else prescribed this in early stage?by klivin - Huntington's Disease Support Center
thank you Mikee. I am very proud of my husband. He's an amazing person.by klivin - Huntington's Disease Support Center
I am so sorry that you are in this situation, it truly is the worst possible predicament to love someone and realize they no longer are who they were. That being said, the children are in need of care. It does not sound like your Aunt is capable. The state will want to use family ifrst to keep the cost down, however, is that always the best? I read your statement about "regular foster caby klivin - Huntington's Disease Support Center
KarenLea: Thanks for your response. My husband came home and talked to me about it. Wasn't irrational--with me about it. It seemed to bother him though. He tends to get heated when he plays ball (as some people do) and the responsibilty of managing and coaching seems to be too much. He said, I'm not having fun. I think maybe its too much. To which I agreed. The following dayhe textedmeby klivin - Huntington's Disease Support Center
Hey everyone. Its been a bit since I've posted. I need a little feedback if you will..... my husband Ken, pHD, age 40, (cag 42) has been doing fairly well. He is in school, working as a counselor at a drug and alcohol rehab and managing everything pretty well. According to the dr's at the COR he is "pre-motor" HD. Yesterday, he came home from softball and said that he had gotten intby klivin - Huntington's Disease Support Center
what a lovely post. Thank you.by klivin - Huntington's Disease Support Center
Nice to see positivity!! Thanks!by klivin - Huntington's Disease Support Center
we're in NY. Lots of changes here too...I think across the country. Are you home? working???by klivin - Huntington's Disease Support Center
Hey Mike.. I too am a social worker...well I am just about done with my Masters degree, but have worked with the homeless and MI/CA population for about 13 years. I am glad that you are fighting back...!! Where do you guys live?by klivin - Huntington's Disease Support Center
That's a tough one, Mike. I think that some people would be open to talking and some people, well....not so much.by klivin - Huntington's Disease Support Center
Mikee: I am too. My best guess is that is has to do with the fact that Ken has depression and irritabilty associated with HD that he is treated for but does not currently meet threshold for any motor symptoms. He does have some twitching in his toes that he has had for a while...other than that he is well. He received SSD in 2010, however, has pursued a goal of getting his drug and alcohby klivin - Huntington's Disease Support Center
My husband's father probably started having behavioral and cognitive issues around 39. (unknown CAG). He died at 61. My husband at 41 (cag 42) is considered pre-motor. My SIL's are identical twins with a cag of 43. They are early intermediate stage with symptoms manifesting differently for both. My husband's uncle is late stage at 68.by klivin - Huntington's Disease Support Center
Bob, I am so sorry for your loss. My prayers are with you. Kimby klivin - Huntington's Disease Support Center
Doctor1973: My husband is considered pre-motor and is currently in school and starting a new job. I wonder the same thing somedays as he has only been in school for a while and beofre that he was home full time with my little one ( again that's also stress). I think its a tough call. He is doing well now and the way he feels about working and doing something he loves seems to outweigh theby klivin - Huntington's Disease Support Center
so happy for you!by klivin - Huntington's Disease Support Center
Hi all: I wander in and out of the forum, keeping up and trying to now stay focused on the day. I all too often worry too much and if I allow it too, HD will consume me...so I've done as much as I can to keep it simple, not project so far ahead and do what I can now. My husband, pHD (pre-motor) is doing well. He is in school for his drug and alcohol counseling license, has a part time inteby klivin - Huntington's Disease Support Center
what are the sites Marsha?? We are in NY and are always interested.by klivin - Huntington's Disease Support Center
great news Will. Congrats!by klivin - Huntington's Disease Support Center
Thank you so much for this. It made my day.by klivin - Huntington's Disease Support Center
Jeanne H. Not sure if this is possible and what you want to disclose to the school in whcih you work, but would it be possible to have modified schedule in your school? In other words, can they make a reasonable accomodation for you. I know when my mother returned to work after having cancer, she was able to teach a different class (she was special ed) and it was less stressful for her. Whby klivin - Huntington's Disease Support Center
See my husband still does all of those things. He is also now in school. However, he was out of work for over six months when he applied.by klivin - Huntington's Disease Support Center
Absolutely on the Phil hardt stuff. I sent my husband in with that and he was approved on first shot. Our COE worked diligently on the application (I'm not always a fan of them but they did right on us with this) and COMBED the file for something physical to put on the app. In the end the eye saccades and gait were what they were able to put.by klivin - Huntington's Disease Support Center
Marsha. I know its and educated guess, but truly seeing that "five years" was the best gift you could have given me today.by klivin - Huntington's Disease Support Center