I am so sorry for what you are going through. Having tested (negative) and lost my mom, I know the process. The only reason I would encourage genetic counseling is because they ask questions and help you understand what the ramifications are on your loved one and family. They are so important. For me, I had to make sure that I had life insurance, nursing home insurance and disability before Iby Jvabean - Huntington's Disease Support Center
I have a younger sister who for most all of her life has been in some type of substance abuse. From drunk on a sidewalk in High School to threatening me with a knife while high on pot. For a few years you held a job, had a boyfriend and you had your only child - a son. But then she shoplifted and another time hit a car while intoxicated and landed in jail. Her now ex-boyfriend left with her sonby Jvabean - Huntington's Disease Support Center
I am curious as to whatever happened to the old group from the old Chat Room. Where I met Marsha, Sunshine Cindy, Pat, Jerry and many others. And from the old AOL Chat where I met Jean and soo many others. And then the Hunt-dis list where I cannot seem to send mail to myself. Where are the oldies? We need to get together for a good old chat. You can private message me here. Let's find eacby Jvabean - Huntington's Disease Support Center
My name is Julie Sando Teuber I am know as Jvabean or Upwithhd. I am an old timer within this site. I lost my mother at 64 to Huntington's two years ago this past January 5th. I went through being at risk for 5 years before going through the testing process. I tested negative. I have five family members still at risk. I have walked the road of being at risk, testing, and being caregiver.by Jvabean - Huntington's Disease Support Center
I wanted to let you know that I removed my post "This Day" because after reviewing the topics on this wonderful site I realized the same issue was being discussed. I am so proud of Marsha and Steve for this site. We go way back! Love to all Jvaby Jvabean - Huntington's Disease Support Center
Thank you to those of you who responded to "The Burning House". I wrote and shared that some years back during a session at the National HDSA Convention in Arlington. It was during a break out session where I met with others who have tested negative. Many identified with how I felt. This analogy describes exactly how I feel. I also might clarify that in the past I was known as Jvabby Jvabean - Huntington's Disease Support Center