I have been reading post for years. I guess you can call me a lurker lol. I have an adult daughter that is 27 with a gag count of 57 .She was diagnosed when she was 21. She is now barely walking , she needs assistance. My questions is she still gets up out of the chair and falls on the floor. It seems she ends up on the floor a lot lately also from sliding from her chair. She also bounces backby plterral - Huntington's Disease Support Center
trying hard, i am a mother with a 26 year old daughter with Hd which she lives with me.I know what you are going through.Yesterday me and stephanie went to the doctor and she started pitching a fit in the DR. Office not the first time it is exhausting.Have you tried asking your Primary care physician to sign her up on some home health where they may come and get some of the blood work needed iby plterral - Huntington's Disease Support Center
is anybody familiar with the EDA waiver? Pat Terralby plterral - Huntington's Disease Support Center
My daughter stephanie has bladder control issues.She is to me middle stages i guess.Any suggestions on this matter. Thanks Patby plterral - Huntington's Disease Support Center
Fred, it is her psychiatrist.She is very nice.I believe she has only one HD patient in the past.I am going to have to find another neurologist for stephanie.Her symptoms have always been so psychiatric(anger , psychosis) that the neurologist we had in the past did not prescribe much he felt she needed psychiatric care.Here in north Louisiana seems like a lot of the doctors don't have many orby plterral - Huntington's Disease Support Center
indiago9585, thank you for your post.I know that the seroquil makes stephanie sleep but i am not sure if it makes her sleep too much.I also have the same problem with anger with her.One of the other issues with her is bedwetting i am not sure if it because she is sleeping to hard.Last night she went to bed around 9 pm and she was up at 2:30 am saying she was cold but she had wet the bed.Do you hby plterral - Huntington's Disease Support Center
howard, where is the update section at? patby plterral - Huntington's Disease Support Center
indigo9585, Does your Phd sleep a lot .My daughter was diagnosed in 2006( Gag 57) at age 21. Patby plterral - Huntington's Disease Support Center
Debra, May i asked why at night?Do you know the reason why he suggest at night .just curious Patby plterral - Huntington's Disease Support Center
How much is to much sleep?My daughter Stephanie sleeps usually till noon or 1.She is on 400mg of seroquil a day that is what she takes to control anger it seems to helping .She usually is ready to back to bed around 8 or 9 pm.I know when she usually goes to bed at night she at times will get back up for reasons of being hungry so sometimes she does not fall asleep until 11 or 12 pm.We will be goiby plterral - Huntington's Disease Support Center
my daughter stephanie (age 26 Gag 57)takes 400mg of seroquil at night to control anger.Does this seem to be to much?We are still battling anger problems all the time honestly for the last 5 years since diagnosis.We have tried all different meds for anger. What seems too help for anger? Patby plterral - Huntington's Disease Support Center
hi everyone I have been registered here for years but have not posted just read.I am a mother of 3 beautiful daughters Ashley,Stephanie and Stacie(twins). I live in North Louisiana.The girls father passed away with HD in 2003.I hate this disease !!!!!!!! It tears families apart.I am really needing advise and friendship to get through this.My story is familiar as some that i have read over the yeby plterral - Huntington's Disease Support Center
HOWARD, WHAT MEDICINES DID WORK WITH HER.MY DAUGHTER IS HAVING PROBLEMS WITH WALKING .JUST ASKING WHAT DID WORK. THANKS PATby plterral - Huntington's Disease Support Center
my daughter of 21 has hd we have been experiencing voices and delusions has been hospilized twice now. we go to the state mental health clinic working with pschiarty that has not dealt with hd but she is experincing pschiarty issues.they say she has a neurological disease that her state neurologist needs to be the medicine perscriber and the neurologist says she need pschiatric care due to issuesby plterral - Huntington's Disease Support Center
HELLO EVERYONE MY NAME IS PAT I HAVE 2 DAUGHTERS THAT HAVE BEEN DIAGNOSED WITH HD THIS LAST FALL IN SEPTEMBER.ONE DAUGHTER SEEMS TO BE DOING WELL BUT THE OTHER DAUGHTER 21 YEARS OF AGE IS HEARING VOICES AND AGITATED.SHE HAS BEEN ON THE PSCHIATRIC WARD TWICE.WHAT MEDICINE SEEMS TO WORK WELL FOR VOICES AND AGITATION.WE HAVE TRIED ZYPREXIA AND NOW WE ARE ON GEODON,BUT SHE IS SAYING THE VOICES AREby plterral - Huntington's Disease Support Center