Good luck! I really believe that the known is better than the unknown anyday! I have an at-risk son who is 11. His dad (my ex-husband) is also at risk and hasn't tested. And I also have a daughter with my current husband. The infertility treatments aren't bad (I've gone through them simply due to infertility). The ability to produce many eggs has to do with more than age, but being young yby gct - Huntington's Disease Support Center
Eric, I had a dream about you and Teresa last night and in my mind saw the photos that you had taken with her 5?? years ago... except in my dream she was not affected by HD anymore and it was a shock to everyone. I haven't even visited this site in years, but that dream is what brought me here today. So, I was surprised (or maybe not surprised) to see your post. I know you and I have had ourby gct - Huntington's Disease Support Center
Hi, I was in this same situation about deciding to have a child 12 years ago, except that my ex-husband wanted to have a child. So, in that way it was different... I almost think your decision is less about passing on HD and more about having a child with someone who doesn't want to have children. There are many options for having a child without HD with someone who is at risk, such as IVF-PGDby gct - Huntington's Disease Support Center
When my son was little he had an eating disorder due to an intestinal birth defect. His feeding therapist recommended duocal for calorie supplementation. The good thing about it is that it could be added to thicker liquids and foods, which were better for him (thinner liquids often made him choke). It's tasteless. It's marketed for kids and people with certain metabolic disorders, but recentlyby gct - Huntington's Disease Support Center
Not dumb. Just hard-headed. Thanks for the welcome back.by gct - Huntington's Disease Support Center
HI. I've been around for years and years, but thought I'd say hello to those who don't know me. My ex-husband and son are both at risk for HD. (My ex refuses to test.) We divorced last year after I truly felt I was no longer safe in the home with him (HD related or not...I'm not sure because he won't test). Two of three brothers are both positive for HD (the other hasn't tested). One is onby gct - Huntington's Disease Support Center
Everyone's advice is really good. The truth is, even without HD, you have to decide when you can change someone else and when you simply need to change yourself and your own expectations. When I read this "I go for counseling and the psychiatirst has told me why are you giving a 100% when your husband who is still capable refuses to do a thing." I wondered if your psychiatrist/therapyby gct - Huntington's Disease Support Center
Shy has good ideas. And I'd tell her as soon as possible, before things get more serious. She has a right to know upfront. And will trust your son more in the end if she knows he was honest with her. Good luck.by gct - Huntington's Disease Support Center
Eric, As I said to you by PM, I'm not the only one who doesn't know your (or others') motivations when commenting. If it's not apparent in the post, it makes the board seem hostile, instead of welcoming. And that's sad for anyone new who stumbles upon it and needs a place to come for support and guidance. While I don't think our thoughts, feelings and the Truth need to be sugar-coated, wheby gct - Huntington's Disease Support Center
I realize this is an older thread, and I haven't posted in forever, but.... here it goes. Why are so many here (Phds and especially non Phds) so argumentative and quick to judge and confront others?? I've been reading off and on and read several tonight. And it seems that much of the kindness and support I first found in this group has been replaced by sarcasm and attempting to "one upby gct - Huntington's Disease Support Center
I'm so sorry for your loss. I'm sure you feel very alone. My prayers are with you.by gct - Huntington's Disease Support Center
I understand the mood swings. I also understand your fears. I do not know anything about the military or that side of the discussion. But, PLEASE be sure that you know who to call and have somewhere to go if things get ugly at home. At one time I was told by the social worker to stash some things with a friend, like an extra set of car and house keys, a calling card, some cash, a change or twby gct - Huntington's Disease Support Center
Trish, As you know, I'm in a similar situation, and I understand how difficult it is and how difficult your decision was. I'm glad to see you posting again. Did you fail? NO. You had to do what was necessary for your safety and health, and that of your girls. Many hugs!by gct - Huntington's Disease Support Center
Since your husband is no longer with you (I'm terribly sorry for your loss), I would make the decision based on what is in the best interest of your children. I would definitely have the sample tested so that you know whether or not they are at risk. At their age, they are nearing the time when they will want to make their own decisions about testing and their futures. And they have a right toby gct - Huntington's Disease Support Center
I don't think you're crazy at all. It is a difficult decision, having been there myself. It's not going to be an easy life for any of them, as I'm sure you know. But, it is a part of our genetic make-up to want to reproduce and create a new life. And new life is a miracle, regardless of the circumstances. Good luck.by gct - Huntington's Disease Support Center
I found out my husband was at risk.by gct - Huntington's Disease Support Center
Hi all. It's been a while since I've posted. Life has been kicking my behind and I'm trying to keep up. But, I was at the psych's office for my son's med appointment yesterday and in the waiting room was a young woman, maybe in her 40s, with another woman a bit older. They were related...couldn't tell if they were sisters or mother/daughter. The younger woman CLEARLY had HD. Her movemenby gct - Huntington's Disease Support Center
I'm so sorry for your pain. HD spares no one, not the ones with it, nor their spouses and families. Not everyone is equipped to be a caregiver. And if that's the case with your husband, perhaps in the long run this will be better for you. I know it's hard to imagine that now... As far as your belongings, you have a right to 1/2 of your things, as well as financial assetts, in most statesby gct - Huntington's Disease Support Center
Hi. I was in your place about 9 years ago. In fact, not only was I in your place, but I was also suffering from infertility and went with treatment (but not PGD) knowing my husband was at risk. I ended up getting pregnant naturally, though. I will never ever regret my decision because my son means everything to me and I wouldn't trade him for the world. However, if faced with the same decisioby gct - Huntington's Disease Support Center
I believe that you should answer children's questions honestly and try to reassure them at the same time. I also think that it's not something where you need to give them all the information at once, but rather address their curiousity as they ask. Kinda like the sex talk, except of course, this is quite a different topic. I truthfully dread the day my seven year old starts asking questions, bby gct - Huntington's Disease Support Center
Yup, Eric is right. I'm a worrier. I tried not to worry, convinced myself not to worry, only to start worrying again. We're separated now, and I still worry. Worries are a bit different, but still there. I think it's GREAT that your husband is talking about it and letting his feelings out. That is so important. Mine stayed in denial. The nighttime movements thing was an issue for my husbanby gct - Huntington's Disease Support Center
It's easy to quit when things get tough. But it's important to persevere. If you love to learn, and want to go back, then try it again. Yes, depression and anxiety can cause those problems too. I understand the battle in your head. My husband (we're separated now) is at risk, and so is our 7 year old. I went through that battle....does he have it? Does he not have it? for years and yeby gct - Huntington's Disease Support Center
Hey and welcome. Us moms, we have a hard time hearing that our children might be sick, especially sick with a terminal illness. Our reactions might go from shock to denial to anger to sadness. I'd try talking to your mom again, though. If talking is "scary" try an email or letter. There are many things that could be causing your "symptoms" but at 23 if you are unableby gct - Huntington's Disease Support Center
Marsha, Hugs to you. I really understand. Take care and take your time. You do so much!!by gct - Huntington's Disease Support Center
I don't know what's best, but wanted to offer my thoughts and prayers to you. What a difficult situation. Is there not any medication that can relieve some of the vomiting? What about a something to just put her to sleep, rather than full anesthesia?by gct - Huntington's Disease Support Center
Your English is pretty good. :~) I think that no one here can tell you what you can live with and what you couldn't live with. It's very smart of you to take your time to think things over. It's a lot to think about. There was a time I was in your shoes. I chose to stay. I love my husband but have questioned that decision many times. We are now separated, and getting divorced, with a chiby gct - Huntington's Disease Support Center
I've read this thread several times but haven't replied til now. I am the mom of a 2nd grader, who is at risk. I remember when I was contemplating having a child with my at risk husband, back in what seems like the dark ages. And I remember talking to Marsha, who supported me in that decision. We make the best decisions for ourselves at the time, though hindsight is always 20/20. However,by gct - Huntington's Disease Support Center
I have been through similar situations with my at risk husband and I find that he typically calms down about it within a day or two. And within a week, it's like it never happened. YOU have a RIGHT to communicate and talk to WHOMEVER you want to talk to. Even (ESPECIALLY) his family since even if you do follow through with divorce, you have your children who are also their family. Verby gct - Huntington's Disease Support Center
Hi Melissa, I agree with Eric and Renee. You needed to see a good doctor and sort out what is going on. My husband is 36 and at risk and showing many symptoms, but hasn't gotten tested, not in treatment. Who knows if what he's showing is symptomatic of HD or a mental/emotional reaction to the situation, or both. I'm sorry that your hubby is in denial. I TRULY know that is very difficult toby gct - Huntington's Disease Support Center