My family history for the previous generation is nil. we are pretty sure that it was my dad that had it. but at the time he died we knew nothing about HD but my mom never showed any symptoms, but she was 75 when she died in a car accident, so it could have been her. but statistics says it was dad. his family 2 siblings 1 with 10 kids 1 with 3, no one ever tested. ? on how many granby Lorettal - Huntington's Disease Support Center
Congradulations on the results, It will sure help a lot if the GINA BILL passes. I guess we will all have to push harder, so we can't be denied INSURANCCE because od genetic results. LORETTAby Lorettal - Huntington's Disease Support Center
Hey i quit for almost three months, with nothing, but i just have to have at least two a day now for some strange reason. Haven't been able to figure ti out. I know i can do it, i guess i panic after that long because it has been my nerve calmer for 41 years. maybe i should try the chantix, but will have to wait until my medicare starts in January. my ins. will not cover at this time. you'dby Lorettal - Huntington's Disease Support Center
Marsha even though i don't get here very often i do visit both sites when i'm able. You are an outstanding person, you've taken on a huge load. Now it is time to take care of your own. I will think of you and pray that your cares will fall away like so much fluff, and your world becomes bright again. Lorettaby Lorettal - Huntington's Disease Support Center
Ok no more dirty words from me., i try to avoid it as much as possible anyway. just thought it was funny when all that came up. I'll try to keep in line ok? and i will not ask questions about what happened. Lorettaby Lorettal - Huntington's Disease Support Center
OH Alice, I wish my life would go along the same route yours. I haven't really given up, it's just that i'm afraid of what they will see when they find out . People can be so cruel sometimes. And if you are like me you have a million Dr. Appointments, and so many tests and there is no way to conceal so much activity in someone who is disabled. I only have to use a walker for now but i knowby Lorettal - Huntington's Disease Support Center
Lovinglife I know how hard a decision it is for you to make' My daughter and two grandchildren are at risk. She feels that she has it, but is not going to be tested until either the kids start showing symptoms or they reach childbearing age. She wants to know though, there is the insurance thing still out there too, and she's only 31, so it will be pre-existing conditions, hopefully you'by Lorettal - Huntington's Disease Support Center
Guess you have, so i won't type it again, that was wierd though.by Lorettal - Huntington's Disease Support Center
that was supposed to say wal-mart but it would't print it. did someone fix it that way Lorettaby Lorettal - Huntington's Disease Support Center
Hey i never fold anything but towels. i keep hangers at the dryer, and if it won't fit on one it just gets thrown in a laundry basket until i need it, or find it weeks later. Fortunately i have tons of everything to wear, so if i don't do laundry for six months i would still have a lot left. hence the reason i don't fold. Girls you'll have to share the cabana boy, i want to go on an island tby Lorettal - Huntington's Disease Support Center
Dee38 I was in a relationship for 5 years, and 4 yrs into the relationship, i tested positive. He got mad because i even got tested. said i didn't need to know. after that things really changed for us. I had to file for disability and that was the end. said he deserved a better future than that. so i gave him his engagement ring back after a year of loneliness there, and moved out to my owby Lorettal - Huntington's Disease Support Center
I'm sorry to disagree with that statement: I know i have HD. and i notice a lot of the symptoms But i guess that could be because i've always been intune with my capabilities. When a dancer can no longer dance without a partner holding and directing the movement, she knows she has it. when you notice the sloppiness of handwriting after having such lovely penmanship all your life, you are awaby Lorettal - Huntington's Disease Support Center
Hey guys thanks for the tips, I do try to shower every day, i just meant that it was so frustrating that i forget about it until late. but i will tell my daughter to give me a call to remind me earlier. She's already saying that if i don't start doing some of the things that i used to enjoy so much on my own, that she will really start to push me. i live so close to her but she makes me geby Lorettal - Huntington's Disease Support Center
Hi everyone I'm single and live alone to. And it is difficult to get any motivation to do anything or go anywhere,, and i get so frustrated with dishes, I've always hated doing them, and now even though i have a dishwasher, i still get angry everytime i put them away too. Does anyone else have a problem with showers, Every morning i get up and say i'm going to take one, and yet it's always eby Lorettal - Huntington's Disease Support Center
Troopie i have dealt with this situation myself i'm positive to. My brother stayed home as long as he could. but when he went to the nursing home he seemed to take it better than he said he would. there will be activities going on to keep them occupied. Please be careful in the moving in with her. I know from my own experience. that we phd's are a selfish bunch. and we really don't reaby Lorettal - Huntington's Disease Support Center
Diane I don't have any info on it because mine also stay dry. however my brothrs DR gave him some kind of ointment but sorry i don't remember the brand. It made his eyes start to water and make it do it for several hours. check with his DR because it is a prescription only med for dry eye and allergy eye. good luck Lorettaby Lorettal - Huntington's Disease Support Center
HI My senators are split, here in Tn.and so far there hasn't been anyway that he will change his mind about GINA. Bob Corker is sticking with letting his own personal feelings about it affect all the good that can come from allowing it to get through. Lorettaby Lorettal - Huntington's Disease Support Center
Sue-Al thanks for the info. i hope to ask my Dr. about the Memantine, and Rivastigmine. Hopefully something will come together soon. right now i'm taking so many meds, and supplements that i don't know where i would fit anymore in the schedule! Lorettaby Lorettal - Huntington's Disease Support Center
Sue-Al thanks for the info. i hope to ask my Dr. about the Memantine, and Rivastigmine. Hopefully something will come together soon. right now i'm taking so many meds, and supplements that i don't know where i would fit anymore in the schedule! Lorettaby Lorettal - Huntington's Disease Support Center
Hey Sue-Al did it say which medication it is? there is a couple out there. i believe the Aricept is the newest one. Lorettaby Lorettal - Huntington's Disease Support Center
Hey JL If i'm not mistaken if you wait a little time after this first check you may get a bigger one once your LTD is approved. I know i did and it was a fairly good one. Don't hold me to it though some states do things differently. But congrats on this new start for you. i know you feel as if the weight of the world has lifted for a time. Lorettaby Lorettal - Huntington's Disease Support Center
Hello Everyone I know it's been a while since i've been here, but it has taken me a couple of months to getmy pc in any kind of working order. I was reading some of the responses to this thread, and feel like a lot of others do. We all have days when there just doesn't seem to be any hope left, and we have a bad way of expressing it. and those of us who have HD sometimes don't have a lotby Lorettal - Huntington's Disease Support Center
you know my thinking wasn't affected but the ability to form what i was thinking into intelligent conversation is affected. Now it takes me a lot longer to write what i think. and i even have to reread this post several times and correct it before i do post. but the fact that i can think, is the reason i know i do have to correct it.by Lorettal - Huntington's Disease Support Center
Eric, I was just reading about the meet-up in IN. is that open to anyone? Sorry i was away for so long, i was having internet troubles. Had to install a whole new Windows XP to get rid of all the "Trogan Horses that managed to infiltrate my pc. my provider suspended my services because i was infecting other pc s but i'm here again and i missed everyone. it will take me days to catchby Lorettal - Huntington's Disease Support Center
Kelly it is truly a sad time for you and your family. take comfort in knowing that she sleeps with THE FATHER now and no longer need be worried about how she was living. I wish you peace, and solace tonight as you go through what is yet to come. Lorettaby Lorettal - Huntington's Disease Support Center
Kelly it is truly a sad time for you and your family. take comfort in knowing that she sleeps with THE FATHER now and no longer need be worried about how she was living. I wish you peace, and solace tonight as you go through what is yet to come. Lorettaby Lorettal - Huntington's Disease Support Center
Kelly it is truly a sad time for you and your family. take comfort in knowing that she sleeps with THE FATHER now and no longer need be worried about how she was living. I wish you peace, and solace tonight as you go through what is yet to come. Lorettaby Lorettal - Huntington's Disease Support Center
Kelly it is truly a sad time for you and your family. take comfort in knowing that she sleeps with THE FATHER now and no longer need be worried about how she was living. I wish you peace, and solace tonight as you go through what is yet to come. Lorettaby Lorettal - Huntington's Disease Support Center
Welcome pc to our group, i hope you find the information and support here as helpful and comforting as the rest of us. ask away on anything you need too. some one here will have answers for you , or will get them for you. Lorettaby Lorettal - Huntington's Disease Support Center
Sue Your loss is so great that no one can possibly ease the pain right now.coming from someone who has lost 1 sister & 1 brother in the last few years, i can relate to some of it though. I will pray for you in your time of loss. I hope the girls have been shielded from as much of the publicity as possible. they have enough to live with as it is. To lose both parents at the same time, and oby Lorettal - Huntington's Disease Support Center