My husband takes it as well, no issues works wonderful!by franj - Huntington's Disease Support Center
My thoughts exactly....Every second of that day is etched forever in my mind!by franj - Huntington's Disease Support Center
Bill is obsessed with movies, HORROR MOVIES, he records several a day off the TV . He now owns hunderds!by franj - Huntington's Disease Support Center
Congratulations to you and your Daughter Judy~by franj - Huntington's Disease Support Center
Congratulations to you and your Daughter Judy~by franj - Huntington's Disease Support Center
LOL Coffee at 2:30!by franj - Huntington's Disease Support Center
My husbnds eating habits have changed as well, Meal time was always very fluid in my house, now he eats at exact times. And has to eat certain things during the day....Peanut butter and jeffly is a must during the day. He did stand and eat for a while said he helped him swallow better left it alone and eventually he began to sit again.by franj - Huntington's Disease Support Center
Judy, Yes, yes, yes...panic attacks on my part started around the time of my husbands diagnosis and like yourself I did the cardiologist thing ( clear). I as well do not take meds, although I do have them, I just try to refocus and remind myself that they are not real and wait for them to pass. the truth is with the care of my husband, two teens and my job I really don't have time for them. Iby franj - Huntington's Disease Support Center
Ho Rowan, My son was diagnosed with adhd and is at risk. I did inform the Neuro of his at risk status and while he recorded it as family medical history i am not so sure it played a huge role in diagnosis. We did do meds for a short time but Kyle chose to try to go without them and no longer takes meds. what has helped most in school is a 504 which allows for some accomadations for school woby franj - Huntington's Disease Support Center
Maria, I agree that having the HdSA Social worker can be a big help in this situation, ours was wonderful with the kids! I'm so sorry that the Indiana Social worker is not an option for you. I have spoken to both my kids and both would be thrilled to speak with your daughter if that would be okay with you! I know it's not the same, but our kids are both in similar situations all dealing with tby franj - Huntington's Disease Support Center
I watched that episode as well, and i thought the same thing! never heard of McCloud syndrome I always learn something new when I watch that show...love it!by franj - Huntington's Disease Support Center
Maria, Both of my kids are aware of their at risk status. they handled it pretty much the way they handled the news of their dad being positive. My older child asked a lot of questions about the genetics end of it and how it is passed on, ( good advice Barb) my younger one doesn't say much unless prompted. perhaps because they were young when we began discussing it, they seem to understand.by franj - Huntington's Disease Support Center
Maria, deciding to tell the kids is never easy, and each child is different. We told our kids right after Bills Diagnosis. They were Fairly young the oldest being only 9. They handled the news very differently, My oldest asked a million questions, Important questions that led me to beleive that he knew more then I thought he did. My daughter on the other hand listened but asked very few questiby franj - Huntington's Disease Support Center
So Sorry to hear this Eric, you and the boys are in my thoughts!by franj - Huntington's Disease Support Center
Hope, I believe that unless the child is 18 and can consent they have to be symptomatic to be tested. I beleive that the reasoning is the enormous psychological and discriminatory ramifications that a positive result would bring! I'm sure someone else can give you a much better explaination but this is how I usualy explain it when I am asked about my own childrens status.by franj - Huntington's Disease Support Center
We Also use the COE at columbia in new york. they are an amazing resourse full of information. They have true concern not only for my husband but for the rest of the family as well. I agree Howard, the process for becomming and participating in a trial is amazing and the care wonderful. We also do the cohort study and have done one other study as well....I truely think the COE is an amazing resouby franj - Huntington's Disease Support Center
We filled out paper work with the center of excellence for brain donation! you might want to try there...sorry you have reached this time!by franj - Huntington's Disease Support Center
Thank you Eric for letting us know...please let Marsha know that she is in my prayers!by franj - Huntington's Disease Support Center
So Sorry to Hear about your mom Marsha...You will be in my thoughts!by franj - Huntington's Disease Support Center
Kerri, So sorry you are going through this...I haven't been through this process so I can't offer any advice, but I wanted you to know that you are in my thoughts.by franj - Huntington's Disease Support Center
Eric, thank you for sharing this with us, you are an inspiration to so many of us and continue to be. You and Theresa and the boys will be in my thoughts.by franj - Huntington's Disease Support Center
wonderful News! congratulations....by franj - Huntington's Disease Support Center
Yes I do but not for HD. My son took it for a seizure disorder that he has, it is( i beleive) generally used for partial seizures. One of the biggest side effects is that those who tend toward depression may have suicidal thoughts.by franj - Huntington's Disease Support Center
Yes I do but not for HD. My son took it for a seizure disorder that he has, it is( i beleive) generally used for partial seizures. One of the biggest side effects is that those who tend toward depression may have suicidal thoughts.by franj - Huntington's Disease Support Center
Barb, so sorry to hear this, your in my thoughts!by franj - Huntington's Disease Support Center
Barb, so sorry to hear this, your in my thoughts!by franj - Huntington's Disease Support Center
there is a facebook page dedicated to this little girl...kathleen's crusades...if you have a facebook page add her and show your support!by franj - Huntington's Disease Support Center
WHAT WONDERFUL NEWS! SO HAPPY FOR ALL THREE OF YOU NOW I CAN START THE DAY WITH A SMILE!by franj - Huntington's Disease Support Center
well Said MRO!by franj - Huntington's Disease Support Center
I really don't think many told her not to marry him, Most told her to take the time to think about the big picture before she made her decision! Perhaps if he had told her about the family history from the outset she wouldn't have been so confused or perhaps she would have been. i commend him for testing before he married her, but now she needs the time to absorb what he had a life time to absoby franj - Huntington's Disease Support Center