yes, Robert is going t be tested, the regional advisor is visiting on wed to talk about the whole process and with details for insurance companies. PS nice ot be backby errie40 - Huntington's Disease Support Center
Hello to you all, sorry for being away for so long, think smethig called denial hit me and overload. been convinced for so long now that the docs got it completely wrong and actually i didnt have HD at all, no not me, not me for sure, the only one in the family, surley not, its MS isnt it, i wanted a lumbar puncture, but of course i didnt ask for one. reality hit tho when my adorable grand ba baby errie40 - Huntington's Disease Support Center
Have a fab time, rome is great a ruin on every corner, buy one of the bus passes to see the sites, its a huge city, your mum, will be able to see a lot more that way especially if her mobility not good, but be aware it is so expensive, about ?7 for coffee and dont buy an icecream outside the vatican. have fun annieby errie40 - Huntington's Disease Support Center
HI MISTY, terminal illness via insurance companies is usaully defined as having life expectancy of less than six months, excellant get out clause for insurance companies.... annieby errie40 - Huntington's Disease Support Center
I have critical illness policy which does not pay out on the basis of a diagnosis of HD, however you do have to inform your insurance company usually within 6 months of dignosis even if they do not pay out at that time,as it is not a listed illness,,,, however as i have informed them of diagnosis within in the time span they will eventually pay when a doctor probally asigned by them selves is ofby errie40 - Huntington's Disease Support Center
hi all, just annie,would like you all to share my good news..daughter Amy safely (just) gave birth to the most beautiful boy on tues 1.24am weighing in at a wopping nine pounds john jayden JAY for short...he is just sooooo lovely..will eventually get around to posting some pics love to you all from a very proud, yet too young to be grandmother Annieby errie40 - Huntington's Disease Support Center
hi all, would just like to share my nieces good news with you all. Natalie (19) Finally received her negative result on thursday. the whole family is just so thrilled and relieved. Still cant believe that she was so brave to go thro the testing proces at such a young age, brings it home to you how the whole H and being at risk affects the younger ones. also iam baby sitting for my 18month oldby errie40 - Huntington's Disease Support Center
hi to you all, its been along time since i last posted, so i thought id let you no that iam stillabout and how things are going. Ps its errie aka annie. firstly my youngest daughter amy is due to be a mum again (eek, aboy due in april), my niece natalie aged 19 had her blood drawn for her test on the third and results due in one month. My son robert as you may recall had rarely left the house forby errie40 - Huntington's Disease Support Center
looked up the articles certainly found them intersting, tho can you answer whther or not my low repeat and earleir onset influences who long i can expect to live with the illness( providing i dont succumb to something else first, cause in all honesty another 30 years doesnt appeal. in answer to earlier q, i dont believe he has the illness despite a suicide attempt i think he just cant cope.by errie40 - Huntington's Disease Support Center
looked up the articles certainly found them intersting, tho can you answer whther or not my low repeat and earleir onset influences who long i can expect to live with the illness( providing i dont succumb to something else first, cause in all honesty another 30 years doesnt appeal. in answer to earlier q, i dont believe he has the illness despite a suicide attempt i think he just cant cope.by errie40 - Huntington's Disease Support Center
yip, i wonder most days, why i became symptomatic at such an early age re repeat length. I was in a car crash a year before i noticed symptoms (tho at that time had no idea it was HD). the weired thing is about three months before the tremours, tics and epilepsy kicked in i was driving home and couldnt feel the pedal properly, not sure how to describe it, just couldnt work out how fast the car wby errie40 - Huntington's Disease Support Center
Hi Annie (gateshead,UK) aged 42, symptomatic 5 years, cag 36,early -mid stages. Three children, one grand daughter. Eldest brother repeat of 34. Still working tho only part time as occupational therapist. HDAC is my life lineby errie40 - Huntington's Disease Support Center