I have considered that also. I do think at this time that it would be too hard for me and everyone in my family for me to get tested right now. It is something I will be thinking about for a long time. It's good to hear from others in the same situation! Thanks for sharing that with me.by hardka - Huntington's Disease Support Center
Although I am not in your same situation I have also read that gene expansion is rare. There might not be a lot of information to go on as of yet with this testing being relatively new to the medical community. Best of luck and congratulations!! Hoping all is well for your littel one!by hardka - Huntington's Disease Support Center
I agree with most posting here. I would certainly want to know as soon as possible and would feel betrayed had the information been kept from me. Very likely that this could change family planning choices in the near future that they may want to re-think. They should at least be given the opportunity to do some research before they have kids and have to live with the guilt of passing this on. I wby hardka - Huntington's Disease Support Center
Hello all! New to the forum today. I just accompanied my parents to my father's genetics counseling appointment which confirmed his positive HD status (CAG 42). He has been showing symptoms for a while and we have seen the disease progress in his siblings my aunt and uncle so it wasn't much of a shock. My Aunt Diana was the first one diagnosed (CAG 46) several years ago and has since declinedby hardka - Huntington's Disease Support Center